Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,028 members • 4,569 posts

All posts for July 2014

Swallowing/Vomiting

Seen different doctors about this and all have different views, had camera down throat and all that stuff. One camera up/down nose that was awful. on liquids...

Seen different doctors about this and all have different views, had camera down ...

•10 years ago

Spam

Dear all Some of you may have noticed someone called 'zimula' posted a lot of spam here this afternoon. I have reported all the posts to the team at...

Dear all Some of you may have noticed someone called 'zimula' posted a lot of s...

Administrator•10 years ago

Injections

I started having B10 injections yesterday, I am lacking vitamin B12 so my Dr said I need these to bring my vitamin levels up. I really hope that the first...

I started having B10 injections yesterday, I am lacking vitamin B12 so my Dr s...

•10 years ago

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coloscopy!

Last week I had a coloscopy, which was nothing to do with my ataxia, but because my dad died of colon cancer. I have been having trouble going to the toilet...

Last week I had a coloscopy, which was nothing to do with my ataxia, but because...

•10 years ago

Hi going to the common wealth games

Got tickets for next Wednesday and Thursday at the SECC, any suggestion's on what else to see in Glasgow and Edinburgh while I am there with a seven year old?

Got tickets for next Wednesday and Thursday at the SECC, any suggestion's on wha...

•10 years ago

Hi does anyone with ataxia use the gym or go swimming.

Does anyone have positive experiences of using the gym or swimming to help with their physical symptoms and mental wellbeing.

Does anyone have positive experiences of using the gym or swimming to help with ...

•10 years ago

Dystonia

Has anyone got this? I have. Is it linked with Ataxia?

Has anyone got this? I have. Is it linked with Ataxia?

•10 years ago

Hearing?

Has anyone got suggestions to help with hearing on the phone for people with ataxia? When face to face I can lip read and read faces. I'm not sure if voice...

Has anyone got suggestions to help with hearing on the phone for people with ata...

•10 years ago

Your help needed: Neurological Alliance patient experience survey

Hi All The Neurological Alliance has launched a patient experience survey to collect information about the experiences of care received by people affected by...

Hi All The Neurological Alliance has launched a patient experience survey to co...

Partner•10 years ago

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I have got an appointment with Dr Ming at Hull Royal Infirmary in 3 weeks.

This will be the second time that I will have seen him. I am going to ask about seeing a specialist nurse, I didn't get told about being able to see anyone...

This will be the second time that I will have seen him. I am going to ask abou...

•10 years ago

Nicotinamide

At the advice of the Dr at the ataxia centre I have started taking 2g of Nicotinamide a day for energy and I have to say I have really noticed a difference. To...

At the advice of the Dr at the ataxia centre I have started taking 2g of Nicotin...

annasgonesailing

•10 years ago

Sternum

For the last week or so I've been experiencing pain in the Sternum area of my chest everytime I move (i.e. leaning forward in chair or standing). It is quite...

For the last week or so I've been experiencing pain in the Sternum area of my ch...

•10 years ago

Stomach Problems

Has anyone have problems with their stomach? Most days & nights I experience a number of stomach complaints. I have'nt been to see GP as last time he sent me...

Has anyone have problems with their stomach? Most days & nights I experience a n...

•10 years ago

am I the only one who finds the new improved HealthUnlocked sh one t

I write in word and cut & paste so I can use the autocorect but the new site won't let me does anyone else have this problm

I write in word and cut & paste so I can use the autocorect but the new site won...

•10 years ago

hi ya , not had a very good day . Froze for 20 mins when my body did its own things . Does this happen to others ? x

I had a lovely day yesterday nothing to exciting just sat down to watch a bit of tv then bam i couldn't move , my mouth started to slowly open and my tongue...

I had a lovely day yesterday nothing to exciting just sat down to watch a bit of...

•10 years ago

Hiya people im 25 n have been diagnoised with ataxia but they dnt no which type is it good they have found out while im younger?

•10 years ago

Ataxia

Does anyone have info about dr. Tom Clouse and his walking with ataxia program? He does tours in the US and maybe Europe? I think someone posted about...

Does anyone have info about dr. Tom Clouse and his walking with ataxia program? ...

•10 years ago

Hello Does anyone use an 'easystand' standing frame. My physo recommended it. I have used an Oswestry frame but the easy stand gave me ...

Much better support and I did not wobble at all. Has anyone had any experience of these frames.they are supposed to be good for the whole body - bones,...

Much better support and I did not wobble at all. Has anyone had any experience o...

•10 years ago

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Local?

Is their anyone on here affected by Ataxia who live or are local to long eaton? If so get in touch maybe for friendship and chat.

Is their anyone on here affected by Ataxia who live or are local to long eaton? ...

•10 years ago

Medi Alert Bracelets/necklaces

Recently I saw a post where someone was looking for something like this, unfortunately I can't remember who it was! Just this morning an elderly relative of...

Recently I saw a post where someone was looking for something like this, unfort...

•10 years ago

Hi ya I would like to ask a question not sure if anyone can help?just forgotten it don't you just hate that!i see a neurologist

Start again lol I see a neurologist who says i have SCA she doesn't know which one i have as i'm a bit of this and a bit of that . I only get to see her for...

Start again lol I see a neurologist who says i have SCA she doesn't know which o...

•10 years ago

Baby Hippopotamus

Has anyone else ever been asked by their Neurologist to pronounce these words "Baby Hippopotamus"? I can not remember how far back it was when I was first...

Has anyone else ever been asked by their Neurologist to pronounce these words "B...

•10 years ago

hello is there anyone that has been diagnosed with SCA3?

•10 years ago

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