Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,028 members • 4,569 posts

All posts for January 2020

Hello again!

I haven't posted anything for a while. I wrote quite a long price a while back I thought I sent it out and I must have pressed the wrong button or something!...

I haven't posted anything for a while. I wrote quite a long price a while back I...

•4 years ago

New Year Great Start😂

What a start to the New Year😳 Suffered a blackout, falling on the armchair and apparently damaging it so much it’s useless😂 black and blue all over my body....

What a start to the New Year😳 Suffered a blackout, falling on the armchair and ...

•4 years ago

From where do I seek an allowance?

I was diagnosed with SCA some eight years ago. To date I have never claimed any form of allowance. Off hand, the only form of assistance I recall seeking is...

I was diagnosed with SCA some eight years ago. To date I have never claimed any ...

•4 years ago

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Ataxia spasticity

Has anyone got this,if so what treatment are you on

Has anyone got this,if so what treatment are you on

•4 years ago

Citrulline malate

Has anyone any experience of taking this amino acid for fatigue and endurance? I've heard pretty good things about it and I'm interested to hear your thoughts...

Has anyone any experience of taking this amino acid for fatigue and endurance? I...

•4 years ago

My Sheffield Visit update

Hi guys.My appointment with Sheffield, they were amazing, however as I was given it appears a cancellation appointment there was no info from Salford or...

Hi guys.My appointment with Sheffield, they were amazing, however as I was given...

•4 years ago

T3 - where to buy online

I have been on t3 on its own for 4 years, but my GP has retired and I am scared that they are going to insist I do a trial of T4. So would appreciate it if...

I have been on t3 on its own for 4 years, but my GP has retired and I am scared ...

•4 years ago

How to unfollow?

Hello there, I follow the Health Unlocked CLL site and somehow inadvertently ended up following the Ataxia site when I responded to someone’s query. I’ve poked...

Hello there, I follow the Health Unlocked CLL site and somehow inadvertently end...

•4 years ago

Re Photo ID

🙂 This is the reverse of the card. Contact www.ataxia.org.uk

🙂 This is the reverse of the card. Contact www.ataxia.org.uk

•4 years ago

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Photo ID available to Friends of AtaxiaUK

🙂 Contact www.ataxia.org.uk for details

🙂 Contact www.ataxia.org.uk for details

•4 years ago

What anaesthetic

Recently I had an operation which is normally performed with a general anaesthetic but because of my ‘late onset idiopatic cerebellar ataxia’, I had a local...

Recently I had an operation which is normally performed with a general anaesth...

•4 years ago

Advice re safety when using a Mobility Scooter

🙂 Click on the link, and then click on the redirect. https://roadsafetygb.org.uk/news/new-hazard-perception-training-resource-for-mobility-scooter-riders/

🙂 Click on the link, and then click on the redirect. https://roadsafetygb.org....

•4 years ago

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Possible causes of Ataxia

🙂 This is a ‘long read’ and may be difficult to interpret, but never the less it’s interesting. What processes can cause ataxia? The pathophysiology of...

🙂 This is a ‘long read’ and may be difficult to interpret, but never the less i...

•4 years ago

Prime editing of the Crispr Gene, what it means to Ataxians.

🙂 Click on the link, and click on the redirect....

🙂 Click on the link, and click on the redirect....

•4 years ago

In need of cheering up

I have just completed my application for PIP and on answering the questions I realise how disabled I have become. Ataxia progresses so slowly, that on a day to...

I have just completed my application for PIP and on answering the questions I re...

•4 years ago

Tips and Tricks

Hi everyone! I’m Jess, the new Communications Intern. I was just wondering if you could all share with me what your tips and tricks are to help with your...

Hi everyone! I’m Jess, the new Communications Intern. I was just wondering if yo...

•4 years ago

Research and Trials

www.ataxia.org.uk Over the last week there have been some great articles about research and trials from all around the world, which we have shared on our...

www.ataxia.org.uk Over the last week there have been some great articles about r...

•4 years ago

Advice available at www.gov.uk

A to Z Apply for a community alarm Apply for a disabled person's bus pass Apply for a needs assessment by social services Apply for equipment for your home if...

A to Z Apply for a community alarm Apply for a disabled person's bus pass Apply ...

•4 years ago

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A major step forward in testing for rare deiseases

🙂 Click on the link, and click on the redirect. https://news.sky.com/story/revolutionary-dna-test-can-detect-thousands-of-rare-diseases-in-children-11900023

🙂 Click on the link, and click on the redirect. https://news.sky.com/story/revo...

•4 years ago

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New Info on SCA7

New study sheds light into origins of neurodegenerative disease Saturday, December 14, 2019 By Will Alexander La Spada New research has shed light on the...

New study sheds light into origins of neurodegenerative disease Saturday, Decemb...

•4 years ago

Not all Rollators are suitable for taller people

Rollators for Tall People Why Should I Buy a Tall Rollator? A rollator can help you to maintain your independence by allowing you to continue walking by...

Rollators for Tall People Why Should I Buy a Tall Rollator? A rollator can help...

•4 years ago

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Explaining Foot Drop

🙂 Click on this link, and then click on the redirect link. https://www.webmd.com/a-to-z-guides/foot-drop-causes-symptoms-treatments

🙂 Click on this link, and then click on the redirect link. https://www.webmd.co...

•4 years ago

Sheffield Ataxia Support Group

Senior ataxia specialist Nurse Emma Foster is going to be attending our Sheffield Branch meeting at 11am on 6 Feburary at the Circle. She will be talking...

Senior ataxia specialist Nurse Emma Foster is going to be attending our Sheffiel...

•4 years ago

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Niagen and or Trehalose Mannitol experiences? Please share

Does Anyone has experience with Niagen and or Trehalose/Mannitol for SCA or Huntington? What was your experience? Anyone took Trehalose as a nose spray or...

Does Anyone has experience with Niagen and or Trehalose/Mannitol for SCA or Hunt...

•4 years ago

Adrenaline is not my friend!

I have noticed that any rush of adrenaline, from a sudden shock to delivering training for a large group of people for work, makes me super wobbly. I couldn’t...

I have noticed that any rush of adrenaline, from a sudden shock to delivering tr...

•4 years ago

Nausea/dizziness when bending over

When I put my head forward and down all I feel dizzy and sick. It doesn’t seem to happen when I put my head back. Has anyone else experienced this and is...

When I put my head forward and down all I feel dizzy and sick. It doesn’t seem t...

•4 years ago

Dry mouth

Hi all. Does anyone experience dryness of the mouth? If so is this a symptom of ataxia? Any solutions?

Hi all. Does anyone experience dryness of the mouth? If so is this a symptom of ...

•4 years ago

How does CAG length tract effect Ataxia symptom onset

The instructions our bodies need to grow and function are contained in our genes. These instructions are made up of tiny structures called nucleobases. There...

The instructions our bodies need to grow and function are contained in our genes...

•4 years ago

NHS

The NHS is really at breaking point! I have just come home from 3 weeks in the hospital after a bad leg break and an operation and saw how they almost cannot...

The NHS is really at breaking point! I have just come home from 3 weeks in the ...

•4 years ago

Email

I want to change my email address

I want to change my email address

•4 years ago

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