Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for May 2016

Any advice regarding alarm pendants?

My ataxia is mild according to the Ataxia Clinic in Queens Square in London, but when combined with the degeneration of part of my spine, the pain (sometimes...

My ataxia is mild according to the Ataxia Clinic in Queens Square in London, but...

Wyndham

•8 years ago

7 Replies

Accessible holiday in France

Dear All, If you are planning a holiday anywhere in France this year, and would like to have a local person make all the arrangements for you, then I can...

Dear All, If you are planning a holiday anywhere in France this year, and would...

Iain_100

•8 years ago

4 Replies

i belive it helps :)

hi all! sorry for my bad english! For half year I drink Oenothera biennis oil (I didn't find translation, it is latin name) and I can say it helps: my writing,...

hi all! sorry for my bad english! For half year I drink Oenothera biennis oil (I...

boki

•8 years ago

18 Replies

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Test date at last

Finally got my tests at last,the consultant made the appointment so it won't be cancelled. It would be good to find out what might be the cause. Roll on...

Finally got my tests at last,the consultant made the appointment so it won't be ...

Gallanp

•8 years ago

3 Replies

Spastic ataxia type one

Hi I've finally got my diagnosis after getting my genetic testing back of spastic ataxia type one. I'm waiting to see a specialist in this area hopefully but...

Hi I've finally got my diagnosis after getting my genetic testing back of spasti...

Daisychain18

•8 years ago

3 Replies

Driving and car insurance

Hi I was diagnosed with SCA3 a few years ago after the birth of my first child. I was taking driving lessons but stopped as I had a fall and shattered the bone...

Hi I was diagnosed with SCA3 a few years ago after the birth of my first child. ...

Eveie78

•8 years ago

5 Replies

Pain starting in my wrist and Fingertips not 'bouncing' back when depressed.

Sorry to bother you. Have started getting pain in my wrist along the side of my hand down my thumb to the wrist. Burning sensation when rubbed... I won't...

Sorry to bother you. Have started getting pain in my wrist along the side of m...

PGee

•8 years ago

6 Replies

Work Capability Assessment WCA for ESA?

Made redundant 5 years ago, spent 4 years claiming JSA because my mortgage was insured for 3 years (with a PPI that payed up!) and because I believed I could...

Made redundant 5 years ago, spent 4 years claiming JSA because my mortgage was i...

Smallblackdog

•8 years ago

3 Replies

Alternative medecine

I've been reading a lot about the benefits of cannabis.there must be some truth in the claims I've been reading about. Would like to know if anyone has any...

I've been reading a lot about the benefits of cannabis.there must be some truth ...

Rayy

•8 years ago

5 Replies

Giving up work

Hi, I last posted about a month ago and asked the question "when is the right time to give up work". Since asking the question, I have had my diagnosis changed...

Hi, I last posted about a month ago and asked the question "when is the right ti...

Coxy123

•8 years ago

1 Reply

Jonathan/media/ataxia

Hi my name is carole and I have celebellar ataxia. I currently work as a staff nurse in Scotland. I am very interested in having a chat regarding mainstream...

Hi my name is carole and I have celebellar ataxia. I currently work as a staff ...

carol369

•8 years ago

8 Replies

MSA and athleticism

Thank you all for replying to my earlier post. ianluce001 Has hit the nail on the head. Those of us who have led athletic, competitive lives are aware of...

Thank you all for replying to my earlier post. ianluce001 Has hit the nail on th...

Pec2884

•8 years ago

2 Replies

TV Opportunity for ataxia

Hi everyone, Jonathan from Ataxia UK here... We have been contacted by a leading TV production agency who are currently recruiting people to talk frankly about...

Hi everyone, Jonathan from Ataxia UK here... We have been contacted by a leading...

Jonathan_Evans

•8 years ago

7 Replies

Nu-drive lever drive question

Hi, I'm Nigel (new member), age 67, retired. I have CA of unknown type but I'm told there is a link to SCA5. We thought I'd got mitochondrial disease but now...

Hi, I'm Nigel (new member), age 67, retired. I have CA of unknown type but I'm t...

NigelH

•8 years ago

8 Replies

Foldable mobility scooter recommendations

Hi, could anyone recommend a foldable mobility scooter that would fit into a car boot. I've had a test drive in a tga minimo plus but wanted to know what other...

Hi, could anyone recommend a foldable mobility scooter that would fit into a car...

Daisychain18

•8 years ago

13 Replies

Gabapentin problems

I was prescribed to start taking Gabepentin at the end of January as I had increased pain in my legs to the point I wasn't sleeping even though I was already...

I was prescribed to start taking Gabepentin at the end of January as I had incre...

Tiggywinkles

•8 years ago

16 Replies

Alcohol and Ataxia

Hi My name is Stuart i live in Glasgow, and i have recently been diagnosed with Cerebellar Atrophy Ataxia, no body in my family seem to have any of the...

Hi My name is Stuart i live in Glasgow, and i have recently been diagnosed with ...

Stu46

•8 years ago

11 Replies

Deliveries

I do most of my shopping online saves so much time and effort. The only thing is when they get delivered by the time I have got to the front door they have...

I do most of my shopping online saves so much time and effort. The only thing is...

wendygirl

•8 years ago

13 Replies

Mobile Hoist

Ataxia UK has been contacted by someone looking for the best mobile hoist to buy. It needs to be able to be operated by one person in the house and for...

Ataxia UK has been contacted by someone looking for the best mobile hoist to buy...

SueMillman

Partner•8 years ago

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Intrducing myself

Hi, My name is Luke and i am new to Ataxia uk. I was diagnosed with with FA when i was 9 , i am now 19 and want to now meet other people my age with the...

Hi, My name is Luke and i am new to Ataxia uk. I was diagnosed with with FA when...

Luke1

•8 years ago

8 Replies

Non Genetic Cerebellar Ataxia

Hello all, My name is Margaret and I am reaching out to people who have non genetic Cerebellar Ataxia. I would like to know does anyone have the same problems...

Hello all, My name is Margaret and I am reaching out to people who have non gene...

maggsataxia

•8 years ago

9 Replies

Feeling faint on standing.

I have had a relaxing day and thought to do the housework slowly, however whenever I went to stand up after bending down, I felt a bit faint (but didn't pass...

I have had a relaxing day and thought to do the housework slowly, however whenev...

PGee

•8 years ago

11 Replies

SCA

I was diagnosed with Spinal Cerebellar Ataxia about 30 yrs ago. I have all tests known to man except one where a piece of muscle is taken from your leg, I've...

I was diagnosed with Spinal Cerebellar Ataxia about 30 yrs ago. I have all tests...

berejena

•8 years ago

12 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for May 2016

Any advice regarding alarm pendants?

Accessible holiday in France

i belive it helps :)

Test date at last

Spastic ataxia type one

Driving and car insurance

Pain starting in my wrist and Fingertips not 'bouncing' back when depressed.

Work Capability Assessment WCA for ESA?

Alternative medecine

Giving up work

Jonathan/media/ataxia

MSA and athleticism

TV Opportunity for ataxia

Nu-drive lever drive question

Foldable mobility scooter recommendations

Gabapentin problems

Alcohol and Ataxia

Deliveries

Mobile Hoist

Intrducing myself

Non Genetic Cerebellar Ataxia

Feeling faint on standing.

SCA

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive