Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for February 2013

Just got my genetic test results

Hi just had my results back from the genetic test for ARSACS illness. They were negative, so i guess that means that i have one of the many unidentifable...

Hi just had my results back from the genetic test for ARSACS illness. They were...

wibblywobbly

•12 years ago

8 Replies

does anyone feel more confident about switching to pip now they have seen the channel 4 documentary

depicting a "doctor" who asked a man with no leg to wriggle his toes on the missing leg! people with sca don't even have bits missing so how is this stress...

depicting a "doctor" who asked a man with no leg to wriggle his toes on the miss...

Hidden

•12 years ago

5 Replies

Hiya! does anyone know of travel insurance that covers SCA?

loopylainy

•12 years ago

9 Replies

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Survey for parents of children with ataxia

Dear all Ataxia UK are writing a new leaflet aimed at parents of children with ataxia. Below is a link to a short survey in order to help with this. We...

Dear all Ataxia UK are writing a new leaflet aimed at parents of children wit...

HarryB

Administrator•12 years ago

8 Replies

The bitter reality of ataxia

I guess one could say that my ataxia is relatively mild (so far). In the past two weeks, for example, I managed to travel across the world; go to a ballet...

I guess one could say that my ataxia is relatively mild (so far). In the past tw...

neta

•12 years ago

69 Replies

Is there a connection between frequent UTI's and CA? Or, between IVIg and UTI's? Neta

neta

•12 years ago

14 Replies

Annual Conference 2013

Dear all Ataxia UK will be holding its annual conference on Saturday 5th October 2013 at the Radisson Hotel at Manchester Airport. I was wondering about...

Dear all Ataxia UK will be holding its annual conference on Saturday 5th Octo...

HarryB

Administrator•12 years ago

29 Replies

Relief from skin problems caused by sweat rash.

Hi, my son is a full time wheelchair user and for a couple of years has suffered from sore itchy skin caused by a sweat rash from being sat in a wheelchair all...

Hi, my son is a full time wheelchair user and for a couple of years has suffered...

bakethat

•12 years ago

4 Replies

Anyone with F.A. got bruised-looking sore toes? Is it chilblains? Or what?

grumpygranny

•12 years ago

7 Replies

Am getting referral to london ataxia clinic, is free on nhs?

Pinkpiglet

•12 years ago

11 Replies

Good toothpastes for us chokers

Just to say I've found a really good toothpaste recommended to me by my dentist. Its the Sensodyne repair and protect version. Its less soapy and sharp and...

Just to say I've found a really good toothpaste recommended to me by my dentist....

Hidden

•12 years ago

1 Reply

Does "National Health" - a system that spends millions on ? - really care about Ataxians ?

jurgen

•12 years ago

6 Replies

Is 2013 any better?

November 2911 saw me in hospital with a broken hip. Here I stayed after a spell in ICU for 7 weeks This took me well into 2012, Chritmas came and went. When I...

November 2911 saw me in hospital with a broken hip. Here I stayed after a spell...

Fifa

Volunteer•12 years ago

10 Replies

Does anyone wake up during the night with intense fright and spouting out saliva either through the nose or mouth?

Hidden

•12 years ago

8 Replies

Does anyone meditate?

Not sure if meditation would help us. I was told by a shiatsu prof last year that opening energy pathways could make our illness progress more quickly. Does...

Not sure if meditation would help us. I was told by a shiatsu prof last year th...

wibblywobbly

•12 years ago

2 Replies

Does anyone have the diagnosis of auto-immune based cerebellar ataxia? Neta

neta

•12 years ago

37 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for February 2013

Just got my genetic test results

does anyone feel more confident about switching to pip now they have seen the channel 4 documentary

Hiya! does anyone know of travel insurance that covers SCA?

Survey for parents of children with ataxia

The bitter reality of ataxia

Is there a connection between frequent UTI's and CA? Or, between IVIg and UTI's? Neta

Annual Conference 2013

Relief from skin problems caused by sweat rash.

Anyone with F.A. got bruised-looking sore toes? Is it chilblains? Or what?

Am getting referral to london ataxia clinic, is free on nhs?

Good toothpastes for us chokers

Does "National Health" - a system that spends millions on ? - really care about Ataxians ?

Is 2013 any better?

Does anyone wake up during the night with intense fright and spouting out saliva either through the nose or mouth?

Does anyone meditate?

Does anyone have the diagnosis of auto-immune based cerebellar ataxia? Neta

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive