Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for May 2015

Mindfulness colouring helps me with stress

Hello all . When I saw my consultant on Thursday she mentioned I could try doing some mindfulness colouring to help me with my anxiousness . I bought this...

Hello all . When I saw my consultant on Thursday she mentioned I could try doing...

Anna29

•10 years ago

4 Replies

Anyone else with sensory ataxia ?

My consultant said it is confirmed now that I have the rubella sensory ataxia . NOT the motor ataxia - so I am trying to learn and find out as much as I can...

My consultant said it is confirmed now that I have the rubella sensory ataxia . ...

Anna29

•10 years ago

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Reading

I Always loved reading and b elong to a book club.Over the last year my Ataxia has got very bad. I have had huge difficulty turning pages. I bought one of...

I Always loved reading and b elong to a book club.Over the last year my Ataxia ...

silkwood

•10 years ago

8 Replies

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Calling 14-25 year olds in England-Applications invited to join NHS Youth Forum

NHS England and the British Youth Council are excited to announce that we are now recruiting for the 2nd year of the NHS Youth Forum and we are looking for...

NHS England and the British Youth Council are excited to announce that we are no...

HarryB

Administrator•10 years ago

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Can I still have a 'gentle' pedicure ?

Hello all . I used to have a gentle pedicure with a great beautician . She never cut my nails or did any fancy foot heat boot treatments . All she did was rub...

Hello all . I used to have a gentle pedicure with a great beautician . She never...

Anna29

•10 years ago

2 Replies

ataxia

I have the same ataxia as yourself and therefore suffer the same symtoms as you do, I am now 61 and was told the same as you its very progressive even...

I have the same ataxia as yourself and therefore suffer the same symtoms as you ...

LBenyon

•10 years ago

23 Replies

Why or how does ataxia tire me ?

Hello . I was born with congenital rubella . Only just recently been diagnosed with rubella motor ataxia . Last month only in April slight ataxia was...

Hello . I was born with congenital rubella . Only just recently been diagnosed w...

Anna29

•10 years ago

7 Replies

Hello am seeking others with Rubella Motor Ataxia

Hi . Am a newbie to the world of ataxia . Would love to hear of others with experience(s) of ataxia . Especially any others with Rubella Motor sensory Ataxia...

Hi . Am a newbie to the world of ataxia . Would love to hear of others with expe...

Anna29

•10 years ago

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Ataxia and EDS

Hi, i live with an unknown type of ataxia thought to be genetic. I have many internal problems with digestive system and unexplained feelings of racing heart...

Hi, i live with an unknown type of ataxia thought to be genetic. I have many int...

pennypoop

•10 years ago

6 Replies

Don't cry over spoiled milk

I know this might be a silly question but is semi skimmed milk good or bad for people who has got ataxia?

I know this might be a silly question but is semi skimmed milk good or bad for p...

AnneMenzies

•10 years ago

7 Replies

Invitation to take part in a survey - Wheelchair users and London public transport

Raquel Velho, a doctoral student at University College London in the field of Science and Technology Studies is planning to do PhD research on wheelchair users...

Raquel Velho, a doctoral student at University College London in the field of Sc...

Wyndham

•10 years ago

2 Replies

When is it MSA instead of idiopatic cerebellar ataxia?

MSA stands for Multiple System Atrophy and many of my systems have atrophied but other people with ataxia also have many different problems.

MSA stands for Multiple System Atrophy and many of my systems have atrophied but...

klazien

•10 years ago

3 Replies

Ataxia at the age of 27

hello my name is Harsh Joshi, i am from Mumbai, India. i am suffering from CA since almost 2 years now. I am married, can this disorder be any reason for my...

hello my name is Harsh Joshi, i am from Mumbai, India. i am suffering from CA si...

Harsh_Joshi

•10 years ago

2 Replies

On-Line

About 30 years ago I was diagnosed by a Neurologist as having Progressive C.A. He said it would get worse as I got older. As I am 69 now and it has now got to...

About 30 years ago I was diagnosed by a Neurologist as having Progressive C.A. H...

Pashka013

•10 years ago

15 Replies

Wales conference

Is anyone else going to Cardiff at the weekend?

antie666

•10 years ago

8 Replies

Mild ataxia

I have mild ataxia. I'm 33 years old. I have muscular pain in my back. I have difficulties sleeping. I have short term memory problems. When I was a child, I...

I have mild ataxia. I'm 33 years old. I have muscular pain in my back. I have di...

chedzoyjulie

•10 years ago

1 Reply

I feel like a burden.

I was diagnosed at the age of 16 with Spino cerebrellar Ataxia after suffering symptoms from around 12years old, extensive family history and genetic testing....

I was diagnosed at the age of 16 with Spino cerebrellar Ataxia after suffering s...

Chelseacord

•10 years ago

5 Replies

Ataxia Type 2 and employment

Hello group, my names William and i have EA2. I'm 28 years old and have been working all my adult life. The last year i have seen the number of attacks go up....

Hello group, my names William and i have EA2. I'm 28 years old and have been wor...

William_Lambson

•10 years ago

4 Replies

Help my gp

Is there anyway of passing on relivant informatio to my gp or an adress where he can find out directly about drugs ect that may have useful affects other than...

Is there anyway of passing on relivant informatio to my gp or an adress where he...

wobelyjohn

•10 years ago

1 Reply

Like to meet people with ataxia

Hello my name is Morgan Noble (boy age 17) i have ataxia since I was born and i have yet to find anyone else with ataixa who i know expect from my dad and i am...

Hello my name is Morgan Noble (boy age 17) i have ataxia since I was born and i ...

Morgan_Noble

•10 years ago

16 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for May 2015

Mindfulness colouring helps me with stress

Anyone else with sensory ataxia ?

Reading

Calling 14-25 year olds in England-Applications invited to join NHS Youth Forum

Can I still have a 'gentle' pedicure ?

ataxia

Why or how does ataxia tire me ?

Hello am seeking others with Rubella Motor Ataxia

Ataxia and EDS

Don't cry over spoiled milk

Invitation to take part in a survey - Wheelchair users and London public transport

When is it MSA instead of idiopatic cerebellar ataxia?

Ataxia at the age of 27

On-Line

Wales conference

Mild ataxia

I feel like a burden.

Ataxia Type 2 and employment

Help my gp

Like to meet people with ataxia

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive