Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,570 posts

All posts for June 2012

does eyesight get worse with cerebellar ataxia

my 14 yr old son diagnosed with CA 2 yrs ago, now wears glasses for reading etc, but now saying things are blurry and looks up with his head down, if that...

my 14 yr old son diagnosed with CA 2 yrs ago, now wears glasses for reading etc,...

•12 years ago

Have you joined an Ataxia UK branch or a support group in your area?If there isn't one would you like to help me set one up?

Joining a branch or a support group can help to alleviate the isolation often felt by people with ataxia. They are ideal places to share your issues and...

Joining a branch or a support group can help to alleviate the isolation often fe...

•12 years ago

impotence

does any males find they have problems like myself getting erections ive had this has been an issue since my early teens im now on cavajact which is injected...

does any males find they have problems like myself getting erections ive had thi...

•12 years ago

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Have you booked for the National Conference?

this year’s National Conference will be held at the Radisson Blu Hotel in Stansted, Essex on Saturday 13 October. This year, the theme is ‘Finding a cure...

this year’s National Conference will be held at the Radisson Blu Hotel in Stanst...

•12 years ago

Tack cleaning

Hello everyone As most of you will be aware I horse ride. Well I clean tack (horse equipment) once a week. With a certain lack of coordination it is...

Hello everyone As most of you will be aware I horse ride. Well I clean tack (...

Volunteer•12 years ago

does any1 have a problem with their bowls

I have FA I've had a bladder problem for a long time but now I'm having a problem with my bowls I was constibated for 8wks and now i've gone the other way,,...

I have FA I've had a bladder problem for a long time but now I'm having a proble...

•12 years ago

Riding

Hello everyone I am like Lit, she can't walk but she can dance. I can't walk but can ride. it is wonderful, as well as giving you a friend (the horse) it...

Hello everyone I am like Lit, she can't walk but she can dance. I can't walk ...

Volunteer•12 years ago

Did everyone receive their copy of the Ataxian last week? What did you think?

Administrator•12 years ago

Dirty Dancing

Hello Lit Do you still dance? I have just watched dirty dancing,it brought back a lot of memories. What torture!!Still it was worth it to dance.Now I can...

Hello Lit Do you still dance? I have just watched dirty dancing,it brought ba...

Volunteer•12 years ago

Bone scan

I went for a bone scan and I have found out in a roundabout way, the hospital didn't tell me!! That I have osteoporosis. it is not Ataxia related and I would...

I went for a bone scan and I have found out in a roundabout way, the hospital d...

Volunteer•12 years ago

Vitemins?

Hi, is taking vitemins a good thing for ataxians? I take 1xCo enzime q10(120mg) 1XSelenium(200 mcg) and 2x Omega 3,6,9 (1000 mg). I take these...

Hi, is taking vitemins a good thing for ataxians? I take 1xCo enzime q10(120mg) ...

•12 years ago

Did anyone else get a copy of their Genetics test ?

My Genetic test results I was given it stated that SCA6 Allele sizes are 5-18CAG repeats in the normal range and 19-33 in Cag repeats in the affected range. I...

My Genetic test results I was given it stated that SCA6 Allele sizes are 5-18CAG...

•12 years ago

Does anyone with FA take Revestarol?

Does anyon take Revestarol or any other vitamin? Dosage?

Does anyon take Revestarol or any other vitamin? Dosage?

•12 years ago

Changing Doctors

When I was diagnosed with Ataxia SCA6 my Doctor of 18 years was very open and Honest with me and told me he understood very little of Ataxia, and " we would be...

When I was diagnosed with Ataxia SCA6 my Doctor of 18 years was very open and Ho...

•12 years ago

After reading the Ataxian I'm thinking of asking for a referral to the ataxia centre in Newcastle for my son.

I'm a little concerned about what his Neurologist would think of this. Has anyone asked for a referral other than there own DR and hospital.

I'm a little concerned about what his Neurologist would think of this. Has anyon...

•12 years ago

does ne1 know where i can get an inexpensive handcycle in south east england?

•12 years ago

does weather make symptons worse

do you find the weather affects your ataxia i dont know if its because i have asthma but i feel worse in the damp weather than i do when its sunny.i am also on...

do you find the weather affects your ataxia i dont know if its because i have as...

•12 years ago

What mobility aids do people find most useful?

•12 years ago

Who is on Facebook ? Anybody wanting a friend ?

Hi, i'm on facebook, feel free to seek me out, lets get to know each other guys ............

Hi, i'm on facebook, feel free to seek me out, lets get to know each other guys ...

•12 years ago

crumbling teeth?

hi just wondered if anyone had experienced any crumbling of the teeth. just recently my bottom 2 front teeth have started to crumble from the back. have no...

hi just wondered if anyone had experienced any crumbling of the teeth. just rece...

•12 years ago

Is writing a problem for most?

•12 years ago

Does anyone use an iPad?

I was at a Branch meeting yesterday in Glasgow and one of the members whose speech is very slurred has been lent an iPad from the speech and language...

I was at a Branch meeting yesterday in Glasgow and one of the members whose spee...

Administrator•12 years ago

OT input

I will be moving to a new flat in the second week of July. Although I am not moving in for a few weeks I am currently renting it as of 1st June. I phoned...

I will be moving to a new flat in the second week of July. Although I am not mo...

Administrator•12 years ago

Has anyone got any tips about cutting fingernails?

I need to keep my finger nails short and as such I have to cut then once a week. I dread doing this and it has become a chore. It is something that I need to...

I need to keep my finger nails short and as such I have to cut then once a week....

Administrator•12 years ago

Frustration

I find it very difficult to speak.Words in isolation are fine but stringing a sentence together,well! In my head everything is fine. I seem to run out of...

I find it very difficult to speak.Words in isolation are fine but stringing a se...

Volunteer•12 years ago

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