Posts - Ataxia UK | HealthUnlocked

Ataxia UK
3,264 members3,380 posts

All posts for June 2012

does eyesight get worse with cerebellar ataxia

my 14 yr old son diagnosed with CA 2 yrs ago, now wears glasses for reading etc,...

Have you joined an Ataxia UK branch or a support group in your area?If there isn't one would you like to help me set one up?

Joining a branch or a support group can help to alleviate the isolation often fe...

impotence

does any males find they have problems like myself getting erections ive had thi...
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Have you booked for the National Conference?

this year’s National Conference will be held at the Radisson Blu Hotel in Stanst...

Tack cleaning

Hello everyone As most of you will be aware I horse ride. Well I clean tack (...

does any1 have a problem with their bowls

I have FA I've had a bladder problem for a long time but now I'm having a proble...

Riding

Hello everyone I am like Lit, she can't walk but she can dance. I can't walk ...

Did everyone receive their copy of the Ataxian last week? What did you think?

Dirty Dancing

Hello Lit Do you still dance? I have just watched dirty dancing,it brought ba...

Bone scan

I went for a bone scan and I have found out in a roundabout way, the hospital d...

Vitemins?

Hi, is taking vitemins a good thing for ataxians? I take 1xCo enzime q10(120mg) ...

Did anyone else get a copy of their Genetics test ?

My Genetic test results I was given it stated that SCA6 Allele sizes are 5-18CAG...

Does anyone with FA take Revestarol?

Does anyon take Revestarol or any other vitamin? Dosage?

Changing Doctors

When I was diagnosed with Ataxia SCA6 my Doctor of 18 years was very open and Ho...

After reading the Ataxian I'm thinking of asking for a referral to the ataxia centre in Newcastle for my son.

I'm a little concerned about what his Neurologist would think of this. Has anyon...

does ne1 know where i can get an inexpensive handcycle in south east england?

does weather make symptons worse

do you find the weather affects your ataxia i dont know if its because i have as...

What mobility aids do people find most useful?

Who is on Facebook ? Anybody wanting a friend ?

Hi, i'm on facebook, feel free to seek me out, lets get to know each other guys ...

crumbling teeth?

hi just wondered if anyone had experienced any crumbling of the teeth. just rece...

Is writing a problem for most?

Does anyone use an iPad?

I was at a Branch meeting yesterday in Glasgow and one of the members whose spee...

OT input

I will be moving to a new flat in the second week of July. Although I am not mo...

Has anyone got any tips about cutting fingernails?

I need to keep my finger nails short and as such I have to cut then once a week....

Frustration

I find it very difficult to speak.Words in isolation are fine but stringing a se...