Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,570 posts

All posts for June 2016

Cannabis

Has anyone got any experience of using cannabis or cannabis oil to alleviate symptoms of ataxia.

Has anyone got any experience of using cannabis or cannabis oil to alleviate sym...

•8 years ago

ataxia and love? how does it work?

I have addressed this issue before. I find that sadly that my husband's way of dealing with my ataxia is to make believe its not happening. For example, now...

I have addressed this issue before. I find that sadly that my husband's way of ...

•8 years ago

Groups

Are there any groups in Cardiff,it would be good to talk to others who are in the same situation.

Are there any groups in Cardiff,it would be good to talk to others who are in th...

•8 years ago

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Agent Orange

Hi folks! I've been silently taking advantage of your very helpful information for several months now....thank you. :) My 69 year old brother in law has...

Hi folks! I've been silently taking advantage of your very helpful information ...

•8 years ago

walkingwithataxia.com

Hey Canadians Great News!!!!!!! Tom is coming to Toronto in August and I am so excited wanted to share the news if anyone is interested. Who has had Tom...

Hey Canadians Great News!!!!!!! Tom is coming to Toronto in August and I am so...

•8 years ago

Gabapentine

I have recently been prescribed Gabapentine by my consultant in London, am a bit wary of taking it, but they think I need it. One thing I wanted to question...

I have recently been prescribed Gabapentine by my consultant in London, am a bit...

•8 years ago

On the tip of your tongue!

Dear all, You know that time, when you know what you want to say, but you just can't remember the word? Has anyone noticed that it happens more often as...

Dear all, You know that time, when you know what you want to say, but you just c...

•8 years ago

vit D

iI was browsing the Internet, and I discover an article advising a daily level of 5000iu/day for vit D. I know, each case shouled be considered individually,...

iI was browsing the Internet, and I discover an article advising a daily level ...

•8 years ago

Forgetting things

Hi I'm just after some advise please I've had cerebral ataxia since I was 19 am now 34. Just recently my partner had noticed I'm getting more forgetful as in...

Hi I'm just after some advise please I've had cerebral ataxia since I was 19 am ...

•8 years ago

Update on recent onset of shortness of breath

Hi just to let you know that my consultant is querying whether there could be some laryngeal spasm rather than problems with my lungs ie asthma he has...

Hi just to let you know that my consultant is querying whether there could be ...

•8 years ago

Ataxia and Driving

I was diagnosed with Idiopathic Late Onset Cerebellar Ataxia in March of this year. It is deemed, by the neurologist, to be mild, and my next appointment is...

I was diagnosed with Idiopathic Late Onset Cerebellar Ataxia in March of this ye...

•8 years ago

Applying for PIP, whether to or not?

I just don't know whether I should apply for PIP or not. I really don't want to claim anything that I'm not entitled to, and don't want to exaggerate my...

I just don't know whether I should apply for PIP or not. I really don't want to...

•8 years ago

Thanks

I want to thank all of you who took the time 2 answer my question about neuro's and PT's. I guess PT's can help a bit since neuro's cant currently at all.I...

I want to thank all of you who took the time 2 answer my question about neuro's ...

•8 years ago

Be the first to reply

I have a question about PTs v. Neuro's

Yesterday, a PT (Australian) came to see me. There's a fundamental difference, I think, in the way he think and the neuro approach CA. The PT (very...

Yesterday, a PT (Australian) came to see me. There's a fundamental difference, ...

•8 years ago

Holiday

I am sure that everyone of you will agree that everyone is entitled to a holiday. I can hear a loud YES. But I am NEVER entitled to a holiday. You don't...

I am sure that everyone of you will agree that everyone is entitled to a holiday...

•8 years ago

Site inactive

I havent here from Health Unlocked for some months. Is there a problem with this site or has there been no posts going on?

I havent here from Health Unlocked for some months. Is there a problem with this...

•8 years ago

TIA and Ataxia

Hi, Last week, on a hot day, I had a period of disassociation/ confusion whilst in a local cafe with a friend. An ambulance was called, I was taken to hospital...

Hi, Last week, on a hot day, I had a period of disassociation/ confusion whilst ...

•8 years ago

spinocerebellar type 13

Does any one know anything about this type of ataxia? just been told I have this, but with no family history of ataxia let alone genetic ataxia I am confused,....

Does any one know anything about this type of ataxia? just been told I have this...

•8 years ago

P.I.P??

Am I entitled to P.I.P with having Cerabellar Ataxia???

Am I entitled to P.I.P with having Cerabellar Ataxia???

•8 years ago

Best Types of Stick ?

I do enjoy some gardening and benefit greatly from the exercise and of course the garden fork is very useful as a stabiliser as I wobble around a garden. the...

I do enjoy some gardening and benefit greatly from the exercise and of course t...

•8 years ago

Is blood thicker than water

•8 years ago

Hi, I'm Kyra

Hi, I'm Kyra & I have Ataxia. I'm newly diagnosed and looking for any advice, tips on how to make life easier.

Hi, I'm Kyra & I have Ataxia. I'm newly diagnosed and looking for any advice, ti...

•8 years ago

Signs of a possible cure for MS

Hi, I read in todays Times that they have found a possible breakthrough cure in Canada for MS. It has had amazing effects on most of the patients, even though...

Hi, I read in todays Times that they have found a possible breakthrough cure in ...

•8 years ago

Indigestion

I'm new to health unlocked so thought I'd say a little about myself. I was diagnosed with cerebellar syndrome in Feb.this year and am quite wobbly when on...

I'm new to health unlocked so thought I'd say a little about myself. I was diagn...

•8 years ago

STEPS ON PLANE

Just wondering...haven't been on a flight for several years, but worried about booking due to steps down from plane! Is there a handrail, and is it easy to...

Just wondering...haven't been on a flight for several years, but worried about b...

•8 years ago

Harriet

This is a message for Harriet. I'm not sure if I have done the right thing but maybe you could advise me. I was diagnosed with cereal ataxia 26 years ago....

This is a message for Harriet. I'm not sure if I have done the right thing but m...

•8 years ago

Shortness of breath

Hi I have recently started with sudden onset of shortness of breath I have been to my GPS who has ruled out anything else has anyone else experienced sob with...

Hi I have recently started with sudden onset of shortness of breath I have been ...

•8 years ago

Exercise and ataxia. The mental benefits.

Let me introduce Tam Donnelly. Tam organises the Ataxia UK North London branch. I first met Tam in January during my wee birthday walk in London's Hyde......

Let me introduce Tam Donnelly. Tam organises the Ataxia UK North London branch....

•8 years ago

PROBLEMS GETTING UP FROM LOW CHAIRS etc

Hi, I have Late Onset Idiopathic Cerebellar Ataxia, mild, whatever that means!! Can walk okay at the moment, but wobbly at times, not in a straight line. My...

Hi, I have Late Onset Idiopathic Cerebellar Ataxia, mild, whatever that means!! ...

•8 years ago

Holiday ?

Hi, I have been diagnosed with Ataxia for three years and have had other issues making these years very rough with life. Is anyone interested in helping to...

Hi, I have been diagnosed with Ataxia for three years and have had other issues...

•8 years ago

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