Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,084 members•4,658 posts

All posts for October 2013

Should I go to an Ataxia UK branch or support group?

After months of deliberating, I have decided that I will join a support group, to meet other people dealing with ataxia. So I looked on the Ataxia UK website...

After months of deliberating, I have decided that I will join a support group, t...

•11 years ago

Does anone have marriage, relationship problems? i am in trouble. Its hard for me with the ataxia, but its just as hard for my husband..

•11 years ago

Hi

Hi everyone, I hope I can learn more about gluten ataxia here. I am a bit confused because I don't have balance problems, its more getting my legs to move,...

Hi everyone, I hope I can learn more about gluten ataxia here. I am a bit confus...

•11 years ago

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Taking Alprazolam with sucessful results

Over the last few months i've started taking Alprazolam for muscle relaxant at night. I only take about 1/2 tablet every 4-5 days and if i'm really contracted...

Over the last few months i've started taking Alprazolam for muscle relaxant at n...

•11 years ago

Appointment at John Radcliffe Hospital

After a long wait (6 months) I finally had my appointment at JRH with Dr. Tofaris on Friday. It was definitely worth both the wait and the journey (I live in...

After a long wait (6 months) I finally had my appointment at JRH with Dr. Tofari...

•11 years ago

Gluten Summit - including talk by Prof Marios Hadjivassiliou, free registration

This looks a really useful and interesting series of web broadcasts - especially for those of us with gluten ataxia but well worth a look for some of the...

This looks a really useful and interesting series of web broadcasts - especiall...

•11 years ago

Balance exercises

My main problem with my Ataxia is my poor balance. So i was looking for a regime of balance exercises i could incorporate in my daily exercise workout. Any...

My main problem with my Ataxia is my poor balance. So i was looking for a regime...

•11 years ago

Has anybody heard of the drug verenicline (Chantix) used for treating ataxia?

•11 years ago

Good way to complete my exercises

I found a nice way to help with my exercises. I play one of my favourite songs by the Commitments: "Mustang Sally" I can`t move as fast as I used to, but it...

I found a nice way to help with my exercises. I play one of my favourite songs b...

•11 years ago

Progress ay last.

Went to visit Professor Chinnery at the Newcastle ataxia research centre yesterday, he was a very nice man and has now taken me on as one of his patients. He...

Went to visit Professor Chinnery at the Newcastle ataxia research centre yesterd...

•11 years ago

Have A Great Weekend

The Weekend is here again, so I hope you can relax and take thigs easy - and maybe for a little while maybe forget about those niggly little things that we all...

The Weekend is here again, so I hope you can relax and take thigs easy - and may...

•11 years ago

Lifts, and power cuts

On Wednesday this week we had our first power cut of the season, it lasted one and half hours. It's never convenient, often a real nuisance but sometimes it...

On Wednesday this week we had our first power cut of the season, it lasted one a...

•11 years ago

funding for wheelchair for 16 yr old son

has anyone ever applied to charities to help with funding for a light weight wheelchair? I have applied to few childrens charities but the wait is very long,...

has anyone ever applied to charities to help with funding for a light weight whe...

•11 years ago

Is anyone else excited about the breakthrough or have I got it wrong?

Just heard on the news that scientists ( in England) have made a significant breakthrough in finding a drug to halt degenerative neurological diseases such as...

Just heard on the news that scientists ( in England) have made a significant bre...

•11 years ago

Sorry There Is A Problem

I`m using Google Chrome but Ataxia keeps giving this message when I try to create a post. Whatever they have done when they updatded the site it`s released...

I`m using Google Chrome but Ataxia keeps giving this message when I try to creat...

•11 years ago

I'm having carer (husband) problems

Hi folks, I really need your advice. My husband (a fit and healthy 75-year-old) calls himself my 'full time carer'. However, the only things I need him to do...

Hi folks, I really need your advice. My husband (a fit and healthy 75-year-old) ...

•11 years ago

Unable to Access Site Using Mobile Phone

No Longer able to access this using my mobile phone keep getting "page no longer available" from Healthunlocked :-( And having problems when using computer to...

No Longer able to access this using my mobile phone keep getting "page no longer...

•11 years ago

Hot flushing. Any one have the same

•11 years ago

at last

at last been to ataxia clinic at Sheffield , been waiting 6 months since my referral from a neurologist in Doncaster, seen professor Hadjivassiliou, he was...

at last been to ataxia clinic at Sheffield , been waiting 6 months since my refe...

•11 years ago

Is there Balance Wear vests for sale in Canada?

•11 years ago

Does anyone else on here 'bounce' when they walk during an ataxic attack? Any exercise will set me off but usually 2-3 hours later? Mxx

•11 years ago

So tired all the time :(

I am finding the tiredness very hard at the moment. I work each day but only part time to fit in with my daughters school (she is 9). My husband think I am...

I am finding the tiredness very hard at the moment. I work each day but only par...

•11 years ago

Frustrated

Hi I live in France so the system is somewhat different here. I'm feeling very frustrated at the moment. I live in a small village and can no longer drive....

Hi I live in France so the system is somewhat different here. I'm feeling very ...

•11 years ago

Hi I am new here,

I have clumsy Ataxia does anyone else here have this? and is there any treatment for it?

I have clumsy Ataxia does anyone else here have this? and is there any treatment...

•11 years ago

Sleepless night again

Aches and pains in the legs again last night - painkillers did ease it a wee bit. But what did work was dragging out my old VHS player and watching "Sailor"...

Aches and pains in the legs again last night - painkillers did ease it a wee bit...

•11 years ago

going to Glasgow next year, need a hotel near the Scottish Exhibition Centre (SEC), or near a station that has regular trains to the SEC

got lucky and managed to get tickets for the Commonwealth Games (Netball and Gymnastics) so staying in Glasgow is not an option, so looking to stay outside and...

got lucky and managed to get tickets for the Commonwealth Games (Netball and Gym...

•11 years ago

Anyone have experience with Fish, for mobility scooter insurance?

I have finally taken the plunge and have ordered a mobility scooter. I was number one hundred and one on the waiting list so it will be a few weeks before I...

I have finally taken the plunge and have ordered a mobility scooter. I was numbe...

•11 years ago

jomo50blue

Yippee. Visited the Neurologist today, who signed me off his books. I still have C.A.. Said I was walking better than I had in the last 7 years. The static...

Yippee. Visited the Neurologist today, who signed me off his books. I still have...

•11 years ago

Skype

I am just curious if anybody in our community uses Skype or similar. Never used it myself but i was thinking it would be nice to talk face to face to people If...

I am just curious if anybody in our community uses Skype or similar. Never used ...

•11 years ago

Occupational Therapist

Occupational Therapsit coming tomorrow, Wednesday 10.30am. Assess for wet room. I phoned her office and spoke to her and gave her number code for acces to...

Occupational Therapsit coming tomorrow, Wednesday 10.30am. Assess for wet room. ...

•11 years ago

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