Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members • 4,575 posts

All posts for April 2024

Don't use an EMS machine if you get burning hot feet at night.

Tried using an EMS machine for 4/5 days not sure if it helped peripheral neuropathy but it really made my burning hot feet worse at night I was up every...

Tried using an EMS machine for 4/5 days not sure if it helped peripheral neuropa...

carol31271

•1 hour ago

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My good friend

My best friend 👍🏻

paul456

•1 day ago

1 Reply

The good, the bad, and the not so good looking....

I confess I got this idea from an earlier post. Copied the concept as a compliment to the original (unknown) author while using words to describe my...

I confess I got this idea from an earlier post. Copied the concept as a complim...

Telegraphist

•2 days ago

2 Replies

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missing life before ataxia

Hi, I really miss the old me before I had ataxia. Ataxia took so much away from me and no one understands how hard it is not being able to do so many things...

Hi, I really miss the old me before I had ataxia. Ataxia took so much away from...

cherry311014

•3 days ago

15 Replies

Trembling

Hello I have SCA6 and it has been effecting my life for about 5 years, I am 67 years old, Just recently my hands have started to shake. If I just hold...

Hello I have SCA6 and it has been effecting my life for about 5 years, I am...

Kauri1

•6 days ago

10 Replies

vestibular dysfunction

Hello, I was diagnosed 7 years ago with SCA unknown cause, following blood tests. Does anyone else suffer with vestibular dysfunction? I’m seeing a vestibular...

Hello, I was diagnosed 7 years ago with SCA unknown cause, following blood tests...

mimosaholland

•8 days ago

10 Replies

Mollii Suit…..giving muscle stimulation

What is a Molli Suit A comfortable jacket and trousers with built-in electro-stimulation for adults and children living with motor function and other...

What is a Molli Suit A comfortable jacket and trousers with built-in electro-s...

wobblybee

•13 days ago

9 Replies

Researchers at King’s College London are recruiting participants for a remote study on online peer support.

Researchers from King’s College London, software developers, and a group of people living with long-term conditions have co-designed a new intervention to help...

Researchers from King’s College London, software developers, and a group of peop...

Irmmy

•15 days ago

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How things are now!

My G.P has prescribed me Tizanidine for my spasms at their worst they kept me awake throughout the night, now great no spasms in the night. She has also...

My G.P has prescribed me Tizanidine for my spasms at their worst they kept me aw...

carol31271

•20 days ago

4 Replies

🙂For those of us who have fond memories of Bill Treacher.

Bill Treacher, played the part of Arthur Fowler, for many years in the TV series Eastenders. https://www.ataxia.org.uk/in-memory-bill-treacher/?fbclid=

Bill Treacher, played the part of Arthur Fowler, for many years in the TV series...

wobblybee

•22 days ago

1 Reply

Peripheral neuropathy?

Hi everyone I have gluten ataxia and am curious if peripheral neuropathy is limited to just autoimmune ataxias or do other types like hereditary and acquired...

Hi everyone I have gluten ataxia and am curious if peripheral neuropathy is limi...

penelope2

•22 days ago

9 Replies

A new study on physical activity in hereditary ataxias is recruiting for participants

If you or someone you know is over 18 and has a confirmed diagnosis of a hereditary form of ataxia, you could take part in a new study on strength and balance...

If you or someone you know is over 18 and has a confirmed diagnosis of a heredit...

Irmmy

•26 days ago

1 Reply

driving a car

Ihave stopped driving my manual car. I have lost confidence as feet don’t always hit the pedals properly. I am wondering those who still drive is anautomatic...

Ihave stopped driving my manual car. I have lost confidence as feet don’t always...

Pussycat1

•28 days ago

9 Replies

neck problems

can anyone tell me why my neck leads to the left recently with a burning sensation & grinding when I turn it. Has this to Ataxia as I’m still unsure of the...

can anyone tell me why my neck leads to the left recently with a burning sensati...

Littlepopeye

•29 days ago

1 Reply

[i]Disability is other people: My Superhero Story[/i]

I have lived with ataxia for 34 years. I am an Ataxia UK Ambassador and former Co-Chair of Ataxia UK and have written a book: Disability Is Other People: My...

I have lived with ataxia for 34 years. I am an Ataxia UK Ambassador and former C...

RCBrownMBE

•29 days ago

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Tremor Assessment

Has anyone had a tremor assessment prior to deep brain stimulation?

Ostap

•29 days ago

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Key hole locator

I was diagnosed with cerebellar ataxia about 7 years ago affecting my balance speech swallowing and coordination. I am currently finding it increasingly...

I was diagnosed with cerebellar ataxia about 7 years ago affecting my balance sp...

Velocepede

•29 days ago

3 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for April 2024

Don't use an EMS machine if you get burning hot feet at night.

My good friend

The good, the bad, and the not so good looking....

missing life before ataxia

Trembling

vestibular dysfunction

Mollii Suit…..giving muscle stimulation

Researchers at King’s College London are recruiting participants for a remote study on online peer support.

How things are now!

🙂For those of us who have fond memories of Bill Treacher.

Peripheral neuropathy?

A new study on physical activity in hereditary ataxias is recruiting for participants

driving a car

neck problems

[i]Disability is other people: My Superhero Story[/i]

Tremor Assessment

Key hole locator

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive