Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,084 members•4,658 posts

All posts for February 2022

Rush

Hi, I wonder if anyone experienced this it is very hard to explain but when I lie down (doesn't happen all the time) I get a sore gut and some sort of rush...

Hi, I wonder if anyone experienced this it is very hard to explain but when I ...

Tazmurray

•3 years ago

5 Replies

Digestive

I've posted this before however been back and to drs last 6 months still feeling bloated burping alot alot of cramps and gas trying to get information my self...

I've posted this before however been back and to drs last 6 months still feeling...

Tazwaz

•3 years ago

4 Replies

New here

Hi all. Has anyone else been diagnosed with sensory ganglionopothy ? I have gluten ataxia and Limbic Autoimmune Encephalitis . The pain in my limbs is getting...

Hi all. Has anyone else been diagnosed with sensory ganglionopothy ? I have glu...

GlennB

•3 years ago

5 Replies

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Thank you

Thank you all for replying you never knew if its ataxia causing a problem or something else

Thank you all for replying you never knew if its ataxia causing a problem or som...

Elizabethtracy

•3 years ago

Be the first to reply

Handwriting and computer skills

Does anyone else with ataxia have problems with their handwriting. My handwriting now looks like a 10 year old My spelling has got worse and If I know how to...

Does anyone else with ataxia have problems with their handwriting. My handwritin...

Elizabethtracy

•3 years ago

23 Replies

Direct Payments

I have DPayments and my hours about to be cut again. My condition is getting worse not better. The rules of what you can do and can't appear to be very...

I have DPayments and my hours about to be cut again. My condition is getting wor...

crazycat18

•3 years ago

10 Replies

Severe balance problems

Hi i have ceĺlebèler ataxia péripheral neuropathy my health hàs gone downhiĺl rapidly in the last 9 months i have to use a wheelchair all the time now while...

Hi i have ceĺlebèler ataxia péripheral neuropathy my health hàs gone downhiĺl ra...

Arlo20

•3 years ago

6 Replies

Simple DNA test could detect common neurological disorders, study says

https://www.theguardian.com/science/2022/feb/16/simple-dna-test-could-detect-common-neurological-disorders-study-says Interesting to hear, good news for a...

https://www.theguardian.com/science/2022/feb/16/simple-dna-test-could-detect-com...

edfosho

•3 years ago

3 Replies

Nerves not working anymore!

Hi all, Last week I spent a day at hospital to have some tests and blood tests to try to get a clearer diagnosis. I know that there's probably no treatment...

Hi all, Last week I spent a day at hospital to have some tests and blood tests t...

ww-wibblywobbly

•3 years ago

8 Replies

Dr Thomas Clouse

I see Dr Clouse has produced his 2nd edition of his book. I know it’s based on his own experience with ataxia but at $50 it seems quite pricey. Has anyone...

I see Dr Clouse has produced his 2nd edition of his book. I know it’s based on h...

nigelrheath

•3 years ago

14 Replies

Bewildered

Hello to all, I’m new to this. I have a question for anyone who may have similar things going on as I’m bewildered about my diagnosis. I was diagnosed with...

Hello to all, I’m new to this. I have a question for anyone who may have similar...

Guardsman68

•3 years ago

15 Replies

Superficial Siderosis can cause Ataxia

Superficial siderosis is a rare degenerative condition which can cause ataxia. On 18 February, a superficial siderosis research team at UCL are holding a...

Superficial siderosis is a rare degenerative condition which can cause ataxia. O...

wobblybee

•3 years ago

Be the first to reply

need some treatment

i am a patient suffering from SCA3 for six years from asia,so i dont have a convenient treatment on this,recently,i find myself cannot focus to program(my job...

i am a patient suffering from SCA3 for six years from asia,so i dont have a conv...

4ever2gether

•3 years ago

3 Replies

Nilotinib/Tasigna

Some people mentioned using the Nilotinib/Tasigna off label. Can anyone help me figure out how and where to get it cheap and safe. I like to try it. I heard...

Some people mentioned using the Nilotinib/Tasigna off label. Can anyone help me ...

mpagganwala

•3 years ago

1 Reply

Life

Hello all. Life when diagnosed with ataxia is the beginning of a new life that can make everything harder to do although, harder doesn’t mean it can’t be done...

Hello all. Life when diagnosed with ataxia is the beginning of a new life that c...

paul456

•3 years ago

9 Replies

Hearing

Hearing Hi just out of curiosity, I have been diagnosed with EA2 ataxia been suffering from the condition and its challenges but just wondering if your hearing...

Hearing Hi just out of curiosity, I have been diagnosed with EA2 ataxia been suf...

claire01

•3 years ago

3 Replies

New to the site and looking for people's lived experiences

Hi, I recently had a very unsatisfactory neurology assessment which concluded after about 20 minutes and did not even include an assessment of my gait. I...

Hi, I recently had a very unsatisfactory neurology assessment which concluded af...

Frodocat1

•3 years ago

14 Replies

Hi newbie here

Hi new here 62 year old male . Been diagnosed with gluten ataxia after getting encephalitis in 2019. Am trying to get my meds sorted out at the moment, to...

Hi new here 62 year old male . Been diagnosed with gluten ataxia after getting...

GlennB

•3 years ago

1 Reply

Disclosing a disability in job applications

Hi everyone I am currently applying for new jobs and as part of the application process there is a section asking if 'you consider yourself to have a...

Hi everyone I am currently applying for new jobs and as part of the application ...

MSW_91

•3 years ago

3 Replies

Overwhelming fatigue after covid !

Hello everyone my question is to anyone who has experienced severe fatigue after covid 19 I have been triple jabbed ie both jabs and the booster plus the flu...

Hello everyone my question is to anyone who has experienced severe fatigue after...

Sphinx21

•3 years ago

3 Replies

Brain fog

Can anyone tell me how brain fog affects them I know what the dictionary says but would like other people with ataxia tell me how it affects them.

Can anyone tell me how brain fog affects them I know what the dictionary says b...

Elizabethtracy

•3 years ago

7 Replies

Does h ataxia affect heart rate

Does ataxia affect heart rate

Tazwaz

•3 years ago

7 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for February 2022

Rush

Digestive

New here

Thank you

Handwriting and computer skills

Direct Payments

Severe balance problems

Simple DNA test could detect common neurological disorders, study says

Nerves not working anymore!

Dr Thomas Clouse

Bewildered

Superficial Siderosis can cause Ataxia

need some treatment

Nilotinib/Tasigna

Life

Hearing

New to the site and looking for people's lived experiences

Hi newbie here

Disclosing a disability in job applications

Overwhelming fatigue after covid !

Brain fog

Does h ataxia affect heart rate

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive