GCSF Trial for FA
Tiggywinkles13 hours ago
Has anyone heard any more about this trial which was written about in the Autumn Ataxia magazine?
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Privacy issues on HealthUnlocked
SMarley14 hours ago
A Happy New Year to you, and I hope you're well.
Administrators on HealthUnlocked (HU) are currently discussing privacy issues on ...
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SO VERY PROUD X
Litty8 days ago
Slightly mad -
My son and his lovely team will be running the Tough Mudder Half on 28th April and any donations that you make would be greatl...
6 Replies2 Likes
What do you suggest ?
illerpath10 days ago
My friend got the same ilness as me- type 4 ca at 11 Years old, now around 27-Finds it hard to get around, go out of the house and make new ...
Capricorn915712 days ago
My Physio gave me some exercises to do at home if anyone is interested. They are for leg/knee/hip strengthening and side-ways walking. If yo...
4 Replies8 Likes
Dealing with ataxia and tremor
Litty13 days ago
Good tips x
6 Replies4 Likes
murcia13 days ago
Hi just wondering if anyone on here has been to Caribbean what island is Wheelchair if any,would love to go but have fears about accessibili...
7 Replies1 Like
Carers need support themselves🙂
wobblybee16 days ago
Although it’s a natural instinct to care for the needs of a loved one, we’re all aware that Carers themselves often need empathy and support...
6 Replies3 Likes
If you are a Carer, and are looking for options when planning a holiday in the UK
wobblybee17 days ago
See revitalise.org.uk 🙂xB
HAPPY NEW YEAR EVERYONE😊
For one reason or another 2017 may have been especially challenging for many of us and I know it’s not always easy to look on the bright sid...
1 Reply7 Likes
piglet318 days ago
Hello dear friends. I wonder if anyone could advise me on how to alleviate stiff limbs. By this I specifically mean back of the legs. ...
Hint of a direct link. Exercise to proteins.
sunvox19 days ago
Anyone who has read my posts knows that I am continually harping on exercise. Exercise has been shown to delay symptoms of numerous neurolo...
Help xxxx Tracheotomy
HazelCarr12320 days ago
My Mum, my nephew and his Mum and me all have Fred's Ataxia. I do loads of exercise and go out and think positive so does my Nephew. My Mum ...
2rayvon420 days agoPOPULAR
Has anyone been prescribed mycophenolate to treat the symptoms of their ataxia? I go to see Professor Hadjivassiliou in Sheffield and he sug...
23 Replies1 Like
xray2522 days ago
Good news got my pip payment enhanced rate on both care and monilitu
9 Replies3 Likes
Art6923 days ago
Merry Christmas and a happy new year
Hope 2018 is a excellent one for all of us
4 Replies4 Likes
Litty23 days ago
All have a great day and eat and drink too much. Love you all heaps xxxxxx
1 Reply5 Likes
wibblywobbly24 days ago
merry Christmas to all fellow ataxia sufferers, carers, families and all who are touched by this illness. Have a lovely day everyone. Wishi...
5 Replies8 Likes
Anxiety and Adrenaline
FFNick25 days ago
No longer am anxious about things and no longer get adrenaline shot when scared. Is this a side effect of SCA or Baclofen? Thanx for everyon...
rankin1sta month ago
Hi just wanted to say Merry Christmas to everyone and thanks for all the advice and support through this year of my husband getting diagnose...
8 Replies5 Likes
SamGHa month ago
Hi just curious about how much sleep people need.
I have CA and need about 10 hours a night. Currently I am only getting around 8 thanks to m...
Mri with laser treatment
foffee11a month ago
Has anyone heard of a treatment where you go to have an mri done they use a laser and put your head in like a football helmet apparently it ...
claire01a month ago
so frustrated this time of year is so challenging with so many tasks...writing cards and wrapping presents..do other people find this hard ?...
19 Replies2 Likes
Art69a month ago
Just wondering if anyone has trouble with trying to grip or hold things with there and try and move around,I am having trouble pic...
14 Replies1 Like
Upcomming CRISPR trials
Zephyr10a month ago
Just wanted to link this to you guys aswell. Very exiting news.
4 Replies6 Likes
ilhanaa month ago
I got it from Denmark to improve balance
I supper vertigo almost 3 wks now. I consult 3 doc. And diagnose vertigo. I feel dizzines,spinning,nause and sometime cant slep. Im frm phil
Ariesodchiguea month ago
My doc. Prescribe 16mg betahistne for 1 wk and i feel better but when i get exercise may head was put down to the flow suddenly i feel spinn...
celtic1888a month ago
I had a bad burst last Mon. and luckily my mum stays in same street. Been there a week but it's dries out enuf. Imagine, I'm a plumber but s...
1 Reply1 Like
tedjohnsona month ago
What a happy, colourful, joyous, clean show Strictly come Dancing has been (and it's all finished 'sob'). I am thinking of joining next year...
6 Replies5 Likes
My darling Dad died. I’m mortified and can’t cope xx
bevvick1964a month ago
I lost my amazing pops whilst on holiday in Florida but came back to major annamosity bacause I couldn’t be there because I can’t drive yet ...
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