Another SCA1 cure being studied too slowly. PKA inhibitors.
sunvox4 days ago
So in my never ending quest to keep abreast of the research on cures for SCA1, I came across several articles and a patent application that ...
5 Replies3 Likes
I have Spinocerebellar ataxia SCA 1
bulawayo84 days ago
Hello people...diagnosed two weeks ago.
2 Replies1 Like
Low blood pressure?
SamGH5 days ago
Hi I've been experiencing more and more when I get up, stand up from sitting, extreme dizziness and lightheadedness which often leads to me ...
jeffwelsh168 days ago
do u have any info of effects of general anesthetic on fragile x adult onset
idiopathic cerebellar ataxia
patsyday9 days ago
I've had cerebellar ataxia end of 2014. unknown cause they call it idiopathic.i am so fed up with it.. Does anyone else feel down with it. ...
so much for that
peterallison9 days ago
went for the assessment for, is it ESA? and I was turned down, and received, like another member here.... ZERO points. I did appeal, and the...
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Pineapple129 days ago
I've just been diagnosed with SPG7. I don't know what to expect. Can anyone help?
kjtibby10 days ago
I just had a call to arrange my face to face... i practically begged for a home visit. I gave up on ESA becsause they wouldn't allow i...
benning10 days ago
Attending Daycare at Ataxia Centre to have a few tests,a bit concerned, does anyone know more about it?
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Sleep and Symptoms of Ataxia
jneilw5110 days ago
I have noticed that the one thing that always has the greatest effect upon the severity of my dizziness and vertigo is how much below my ave...
impulse410 days ago
Has anyone done a gluten free eating plan, and what are the results? I am asking because I read that is has a significant role in helping to...
Has anyone else experienced the below?
Grapes1211 days ago
Over the last few months I have had these funny spells. I have slurred speech and greater weakness down my left side and I'm even more wobbl...
Trouble getting a diagnosis, any advice please.
Has anyone else had a problem with getting a diagnosis? And then finding out what has caused the Ataxia?
I have been told that I have an atax...
8 Replies1 Like
A couple of freebies
KIrvine201712 days ago
Hi Everybody, my daughter has Ataxia as a result of post viral/infectious cerebellitus about 18 months ago. She continues to gradually impr...
I cannot look into computer for 1 minutes
4ever2gether12 days ago
I was diagnosed SCA3 some four years ago,and recently I found I cannot look into the computer for only one minute，sun light too.I want to kn...
Can prochlorperazine make you feel more dizzier I'd hate to take a tablet that is going to make my vertigo worse.
V197813 days ago
Worried about my mum
Murphy8915 days ago
My mum is 59 years old and for the last 2 years has been in and out of hospital having various tests with neurologists etc because her...
UmmuR17 days ago
I am facing anxiety for almost 2 years now and, it lead me to Agrophobia. I have a hard time to be alone... anyone facing the s...
It came as a shock
chrismor17 days ago
One minute all systems working then a semi-collapse and partial recovery in June 2017 and the news of a degenerated cerebellum. Age 73 and...
17 Replies2 Likes
Glanawmor17 days ago
I’m new here and have recently been told I have SPG7
Yesterday I saw a geneticist who has referred me to her Consultant,Physiothe...
UmmuR18 days ago
Anyone taking BETHASTINE/BETARSEC for vertigo? Does it work for vertigo? I’m having vertigo since 2016 and, usually it last for ...
I’m new here.
RP5718 days ago
Hi,I’m new here and have symptoms of ataxia possibly due to gluten as have been coeliac for about ten years and have a gluten free diet.Havi...
Piero19 days ago
I am 74 years old and when I was 68 I was diagnosed with 'late onset SCA' I have accepted the presence of the condition and its inevitable p...
13 Replies1 Like
Stop work at 55
RobertV20 days ago
A question for you financial experts...
I have had SCA2 for over 5 years now and things are getting slowly (thankfully!) more difficult. S...
SCA Type 6 & CBD oil
Magicalwomanz21 days ago
Hi.... I have Spinocerebellar Type 6 heredited from my biological mother.... I am looking for anyone that has same condition ideally same ty...
16 Replies2 Likes
Happyfacexx21 days ago
Diet and vitb12 injections working? I’ve been following a gluten free vegan diet( Anthony Williams diet) for 4 months now and also had th...
6 Replies6 Likes
Ataxia or not?
Zombi22 days ago
My wife has had lifelong epilepsy since birth. She has had 2 brain operations to remove a Hypothalamic Hamartoma and has suffered the effect...
Nasty computer scams
tedjohnson24 days ago
A fellow Ataxian has had one of those nasty-----send $3000 to me or I will damage your computer email etc etc. These can be ver...
3 Replies3 Likes
Leicester and leicestershire
xray2524 days ago
Good morning Leicester are having there 1/4 ataxia meeting on 26th July all welcome at Local hero Aylestone Rd leicester
abster3424 days ago
HI I am new to this, wondering if there is a special diet or vitamins that help Cerebral Ataxia?
10 Replies1 Like
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