andama day ago
Is there an ataxia support group in Nottingham.
Sca 2 patient need friends
vinupr3 days ago
I am a sca2 patient. here I am searching for a good friend to discuss our worries and thoughts..kindly please message me you are interested ...
golfingsue4 days ago
Does anyone take b12 who have ataxia & stiff persons syndrome
South Yorks meal in January
Capricorn91574 days ago
Hi all. South Yorks support group has a meal booked for Thursday 10th January, 1pm, at the Crown Inn, crowninnbarnburgh.co.uk/
If you would l...
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Ataxia questions help
kalaganginparis4 days ago
My mom has a shrunken cerebellum shown by the MRI scanning. she has a gait but walks almost fine when stressing her legs. She has had the un...
icdowsettNZ5 days ago
Swallowing difficulties are common with ataxia people. First appears to be coming from lungs, asthma, chest infection etc.
Ivan recently h...
Grapes126 days ago
Do any of you have problems with swallowing?
Recently I have found mine has got worse. I am having recurrent coughing fits and almost being s...
C2a2o27 days ago
Does anyone else experience restless sleep and take any supplements or natural rememdies to counteract it?
By restless I mean that I toss an...
hab297 days ago
As my ataxia gets worse and my gastrointestinal issues are continuously flaring up my Gastroenterologist has suggested I have an ileostomy b...
Today's herbal supplement of interest: Skullcap.
sunvox7 days ago
A while back I was arguing with someone about which herbal flavonoid was best for helping clear toxic proteins from the brain. At the time ...
8 Replies8 Likes
Yet another big setback
peterallison8 days ago
I have in the past 2 days, had yet ANOTHER setback with the NHS round here. 7 months ago was the last time I saw the consultant Neurologist,...
ESSEX SUPPORT GROUP QUIZ NIGHT?
benning8 days ago
Did anyone on here go?If so HOW WAS IT??
How do you know when it's time to start using a wheelchair full time?
Grapes129 days ago
I use a scooter or wheelchair if i'm going out anywhere.
But I use a crutch for very short distances and around the house. But I keep losing ...
Stem Cell - Ataxia
AtaxiaCarer10 days ago
Stem cell alternative? Does anyone know about this?
Amazing unspillable mug
PeteW10 days ago
Just thought I’d share because I find this product amazing and it solves a problem of me keep knocking over my mug of tea after my PA has go...
2 Replies2 Likes
Adult ataxia centre
nfor11 days ago
Till about 2 years ago my daughter (who developed ataxia when she was 14) was being cared for by Great Ormond Street Hospital in London. Now...
3 Replies1 Like
Capricorn915711 days ago
Hi peeps. Our support group are having a get together in January, Thursday 10th, for a meal and fun. All of yu interested let me know. Will ...
Alip-j12 days ago
Got PIP letter today for my partner.Shocked and angry is an understatement.22 pound a week low rate mobility.I wasn't so bothered about that...
18 Replies1 Like
Why I asked about uk physio sessions
ww-wibblywobbly12 days ago
Thank you everyone who replied to my recent post. Some really helpful replies.
The reason I asked this question, is cos at the moment i live...
5 Replies2 Likes
benning13 days ago
What do my fellow Ataxians think of it?all appreciated.
foffee1114 days ago
Does anyone use oxygen treatment
Has anyone used oxygen to help
Tai Chi - Chinese martial art/exercise
AtaxiaCarer14 days ago
My partner, who was diagnosed 3 months ago, has been recommended to take Tai Chi. Balance is a question by it helps. He has also started goi...
Problems with sleeping comfortably
ConantheLibrarian14 days ago
This post is aimed at anyone with more advanced ataxia.
After 21 years of Friedrich's Ataxia I am now so stiff lying in bed that I find it ha...
ww-wibblywobbly14 days agoPOPULAR
I'm interested in how many people have regular physio sessions in the UK and how many sessions are you allowed in a year?
I don't know...
29 Replies1 Like
Donate Now to Ataxia UK via The Big Give
SueMillman15 days ago
We've been having a fundraising drive over the last week.
We're on £49,276
You have just 2 hours to push us over £50,000.
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Chunguz15 days ago
My life z such a mess I can't seem to do anything right #sofustrating #sad😟
vtx180015 days ago
Ive found over the past few month that i seem to be gaining weight as i am no longer as mobile as i used to be would love some tips
BIG GIVE 2018
Capricorn915715 days ago
Hi all. Hope you are all ok.
Just a quick note to remind you the Big Give for 2018 ends tomorrow. Every donated pound may, potentially, be do...
claire0116 days ago
has anyone been prescibed or had 'ACETAZOĹAMIDE'
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