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Ataxia UK

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hearing issues

Hello looking for some advice please. My partner who has cerebellar ataxia, diagnosed 17 years ago, has started to show some signs of hearing loss….or has she?...

Hello looking for some advice please. My partner who has cerebellar ataxia, diag...

TedTom

•2 days ago

4 Replies

Photo

This is a nice photo hope you like it

paul456

•5 days ago

Be the first to reply

Blind

If I go blind and get a white stick how will i know it’s white? I have never seen the value of a blind dog and how do you know it’s not a XL bully dragging...

If I go blind and get a white stick how will i know it’s white? I have never se...

paul456

•6 days ago

1 Reply

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Hello Lee

guardsmen Lee How are you doing any improvement with your condition are you any better?

guardsmen Lee How are you doing any improvement with your condition are you any...

paul456

•7 days ago

3 Replies

Nerve Pain

Has anybody suffered from nerve pain in the eyes its something that is new to me that it’s the eyes. If i go blind I might be able to keep my PIP and not have...

Has anybody suffered from nerve pain in the eyes its something that is new to me...

paul456

•7 days ago

5 Replies

Sca.aa

Does this hospital accept patients from abroad?https://www.uclh.nhs.uk/our-services/find-service/neurology-and-neurosurgery/ataxia-centre

Does this hospital accept patients from abroad?https://www.uclh.nhs.uk/our-servi...

Korkutalptug

•10 days ago

3 Replies

Sca.aa

What should I do to live in England and live there from now on (until I die). This disease is very, very difficult in Türkiye. You are very lonely.

What should I do to live in England and live there from now on (until I die). Th...

Korkutalptug

•12 days ago

5 Replies

walker

has anyone got any suggestions for a walker because they all seem to run away from me? has anyone any experience of a Veloped?

has anyone got any suggestions for a walker because they all seem to run away fr...

ParmaIT

•16 days ago

6 Replies

reckon I am being ignored, or...

This is a story that goes back over 2 months now and have given up. Its not a medical issue, but is Ataxia related. I had my PIP renewal form (or whatever...

This is a story that goes back over 2 months now and have given up. Its not a me...

peterallison

•17 days ago

2 Replies

Pamela

I suffer from SCA and the most embarrassing part of my condition is the decline in my speech. I'm waiting to see a Speech Therapist, but might be six feet...

I suffer from SCA and the most embarrassing part of my condition is the decline ...

ExiledScot

•18 days ago

9 Replies

Rock steady boxing

Hi everyone, I have multifocal Dystonia and have joined an exercise group mainly advertised for Parkinson Disease called Rock steady boxing. Is anyone else...

Hi everyone, I have multifocal Dystonia and have joined an exercise group main...

flybus

•27 days ago

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Nystagmus, Double vision Hereditary CANVAS Ataxia

my condition gets worse every week when I get out of bed , stand up after sitting down my problem starts, with constant vertigo my vision is terrible I...

my condition gets worse every week when I get out of bed , stand up after sittin...

boxerattims

•28 days ago

28 Replies

Brain shrinking

Hi everyone i once read ( cant find thé link now ) that its thé small brain that causes our atakia problems and that small brain is graduation shrinking !...

Hi everyone i once read ( cant find thé link now ) that its thé small brain th...

7151

•30 days ago

9 Replies

Trouble with family

Hi my grown up children are having lots ot trouble understang this antakia in fact i am becoming a nuisance i have fallen and finnished in hospital 3 times...

Hi my grown up children are having lots ot trouble understang this antakia in f...

7151

•30 days ago

2 Replies

Information.

https://ir.biohaven.com/news-releases/news-release-details/biohaven-announces-fda-acceptance-and-priority-review/ Information?

https://ir.biohaven.com/news-releases/news-release-details/biohaven-announces-fd...

Korkutalptug

•1 month ago

3 Replies

Suitable footwear

Good day all, hope you're all well. I would like to ask a quick question. What kind of footwear ldo you wear please? I'm finding that most of my trainers are...

Good day all, hope you're all well. I would like to ask a quick question. What k...

LOUISASAM

•1 month ago

14 Replies

Falling out a plane.

Hello everyone, I suffer with Ataxia through having Hereditary Spastic Paraplegia (HSP) and while I'm still mobile enough, I've decided to do a fundraising...

Hello everyone, I suffer with Ataxia through having Hereditary Spastic Parapleg...

StandByMe2

•1 month ago

2 Replies

ATAXIA AND NOW DYSAUTONOMIA

Was diagnosed on 2021 with ataxia but just recently with dysautonomia and autonomic neuropathy in feet and hands…one cold hand that freezes fast. Feet are numb...

Was diagnosed on 2021 with ataxia but just recently with dysautonomia and autono...

Hidden

•1 month ago

4 Replies

Brain fog

Morning everyone, As part of my Ataxia I suffer a lot with brain fog and confusion. Has anyone ever heard or had experience of a product called "Nurosym" that...

Morning everyone, As part of my Ataxia I suffer a lot with brain fog and confus...

StandByMe2

•1 month ago

9 Replies

ileostomy.

Have had an ileostomy for nine years, due to cancer. I also have hereditary Ataxia SCA6.

Have had an ileostomy for nine years, due to cancer. I also have hereditary Atax...

Lilielost

•1 month ago

1 Reply

Gettimg worse

In the past, probably more than a year ago, I used to get this forum on a daily basis. Then, inexplicably, it suddenly stopped. Every time after a fall or...

In the past, probably more than a year ago, I used to get this forum on a daily ...

klazien

•1 month ago

5 Replies

breathlessness

hello dear Members, my mother has SCA2 and has been living with it for 10 + years. I have noticed a sudden deterioration in her cognition and now for past 2...

hello dear Members, my mother has SCA2 and has been living with it for 10 + year...

rehmanm18e

•1 month ago

2 Replies

Carpal tunnel

Yesterday I had minor surgery for carpal tunnel which I thought it was a place in France but apparently it has lots of causes but one of them is using a...

Yesterday I had minor surgery for carpal tunnel which I thought it was a place i...

paul456

•2 months ago

5 Replies

Pregabalin for nerve pain........

Does anyone have an alternative to pregabalin? I recently decided to ween myself off it and am looking for any alternatives without all the side effects?...

Does anyone have an alternative to pregabalin? I recently decided to ween mysel...

sonofapeter

•2 months ago

11 Replies

Fall Detector Watch

Like many of us I’m prone to falls, my most serious falls have occurred when I’ve been alone and been unconscious .so I really need to consider a ‘Fall......

Like many of us I’m prone to falls, my most serious falls have occurred when I’v...

wobblybee

•2 months ago

9 Replies

My Ataia symptoms (speech, balance, dizzines) get much worse when it rains. Does anyone else experience this?

My Ataxia symptoms (SPEECH, BALANCE, DIZZINES) get much worse when it rains. Does anyone else experience this?

My Ataxia symptoms (SPEECH, BALANCE, DIZZINES) get much worse when it rains. Do...

Hickox

•2 months ago

2 Replies

Orthotics

With the rèçcòmendation from my OT I have been referred for Orthetic stockings,wondering if anybody has any opinions on these

With the rèçcòmendation from my OT I have been referred for Orthetic stockings...

Obeyonekonobe

•2 months ago

5 Replies

Anyone taking 3,4 Diaminopyridine (3,4 DAP)

I have SCA 6 and nystagmus as one of my symptoms. I’m increasingly having difficulties with this when walking as it exacerbates the poor balance problem. I’m...

I have SCA 6 and nystagmus as one of my symptoms. I’m increasingly having diffic...

Tyke-

•2 months ago

12 Replies

ataxia sore knees

Recently I have been having really sore knees when walking. Does anyone else have this with Ataxia? Have a great day!

Recently I have been having really sore knees when walking. Does anyone else hav...

flybus

•2 months ago

12 Replies

Help please

Hi has anyone had any luck with walking frames you can get ones with wheels on the front and back they also turn ok, I have a 4 wheel rollator. Just asking for...

Hi has anyone had any luck with walking frames you can get ones with wheels on t...

weegiz12345

•2 months ago

14 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

hearing issues

Photo

Blind

Hello Lee

Nerve Pain

Sca.aa

Sca.aa

walker

reckon I am being ignored, or...

Pamela

Rock steady boxing

Nystagmus, Double vision Hereditary CANVAS Ataxia

Brain shrinking

Trouble with family

Information.

Suitable footwear

Falling out a plane.

ATAXIA AND NOW DYSAUTONOMIA

Brain fog

ileostomy.

Gettimg worse

breathlessness

Carpal tunnel

Pregabalin for nerve pain........

Fall Detector Watch

My Ataia symptoms (speech, balance, dizzines) get much worse when it rains. Does anyone else experience this?

Orthotics

Anyone taking 3,4 Diaminopyridine (3,4 DAP)

ataxia sore knees

Help please

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive