Neurologist appointment in the future maybe
springlove6 hours ago
Saw a new GP yesterday regarding the rejected neurologist appointment. He wanted to know why I want to see one.... he agreed anyway but told...
Can you fix the holes in your roof!
sunvox18 hours ago
This is an excellent video, and I urge folks to watch it especially the second half. This is the drum that I am beating until my fingers ar...
1 Reply1 Like
Funny feeling in my body
Imrachela day ago
So, I don't know how to describe the title but for a while now I been feeling werid like for the past 2 or 3 years. I'm not sure if this has...
Let's Get Personally Physical
sunvox2 days ago
Hah, I know what you were thinking . . .
Anyways, todays tiny bit of information is this study on exercise. The "cliff notes" version is ...
3 Replies5 Likes
UK Disabled Facilities Grant
Poweruser2 days ago
I’ve recently started to use a wheelchair almost full-time after a series of falls. An occupational therapist has recommended a Disabled Fac...
xray252 days ago
Got my pip assessment date come through really quick end of month at home so worried
cutlery for disabled
Rachael19733 days ago
can anyone tell me of any place i can get knife forks spoons cups etc to help my son he was born with ataxia due to bleeds on the brain. He ...
Hi. I have Ataxia of unspecified type
Woodturnerman4 days ago
I have just found this site and as I have ataxia I would like to join in And hopefully find out more about others problems. I would also lik...
13 Replies6 Likes
Amynah5 days ago
I have been receiving Support for Mortgage Interest - benefit since 2014 and it is ending on April 5, 2018. Are any of you affected? and wha...
DeniseLB6 days agoPOPULAR
I am in a bit of a mess at the moment as I had a fall and broke my right ankle in three places, I was stuck in hospital for six days and kep...
21 Replies1 Like
How do you know what type you are??
AtomicBubba7 days ago
I was diagnosed a couple of years ago with severe cerebellar atrophy (ataxia). I’m still awaiting DNA results..will that tell me if I have S...
Support group in Nottingham or near
phelp8 days ago
Hi, anyone know there is support group we can go and chat with people, my husband has diagnosed with cerebellar Ataxia. I like to get him ou...
AtomicBubba8 days ago
Anyone know of any support groups in Barnet?
SCA17- Why is life so cruel sometimes
chartibaldi219 days ago
My mum, aged 46 has just been diagnosed with SCA17 after two long years of going back and forth to doctors and hospitals, given wrong diagno...
AtomicBubba9 days ago
Hi I’m Gemma and I’m 31 years old. About 2 years ago after a lot of hospital visits and scans etc.. I was finally diagnosed with severe cere...
Today's tiny bit of evidence supporting Niagen and Pterostilbene.
sunvox9 days ago
Never take anything without first consulting your doctor and doing your own research.
Now to the day's news.
For those not familiar with my ...
3 Replies4 Likes
SamGH10 days ago
It's about time I got back on a bike as I love the freedom of it.
I can no longer manage a conventional bike so have my eye on a recumbent ...
8 Replies1 Like
1940girl11 days ago
Hi, I have noticed that for the last month or so my throat feels constricted or that something is pressing on the front of it. I can swallow...
bevvick196411 days ago
Please bear with this as it’s quite long.
My name is Beverley and I am 52 years of age.
I live in Gravesend Kent with my husban...
18 Replies10 Likes
support groups in Worcestershire?
carol3127111 days ago
Hi does anyone know of support groups in Worcester or surrounding area, as I can't find anything nearby?
DVLA and Licence
Capricorn915712 days ago
Got a letter from DVLA stating they have withdrawn my driving licence and I can apply for a 'medical review licence'. I voluntarily stopped ...
12 Replies2 Likes
SCA6 and speech difficulties
pammyann13 days ago
I have SCA6 with plenty of wobbles and swallowing/speech difficulties. People have problems understanding my speech but to me it sounds norm...
14 Replies3 Likes
Problems with my hands
ScottCron14 days ago
Gradually my fingers have been curling and stiffening up. The joints feel fine so I think it may be tendons shortening. I can't straighten t...
piglet316 days ago
can anybody suggest any eye exercises to alleviate double vision brought on by .CA. thanks.
auntiesally16 days ago
Does anyone know if there are any support groups for ataxia on the Wirral?
Sharing Your Story
fnewellwise17 days ago
Hello everyone, I work at Ataxia UK and am putting together a few short case studies just to raise awareness about people who have Ataxia. I...
3 Replies3 Likes
sunvox17 days ago
So just musing today . . .
The number of molecules that are currently in clinical trial or close to clinical trial that work at the root pro...
3 Replies2 Likes
EA-1 Ataxia recipient since age 6 or 7
TimLowThom17 days ago
To WibbleyWobbly: I take a maintenance dose of Prozac (20mg per day) for EA-1 Ataxia. Works the best; and avoid stress!
DNA Repair/ Cockayne Syndrome and Niagen.
sunvox18 days ago
I knew that nicotinamide riboside was headed for a human clinical trial in Cockayne Syndrome, but I never found any underlying animal model ...
2 Replies3 Likes
PIP and ESA assessments your chance to tell government what you think
rankin1st18 days ago
Have you had a rough deal with PIP or ESA process you can submit your experience to the Work and Pensions select committee inquiry...
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