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Ataxia UK
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Does anyone take creatine monohydrate?

My neurologist told me I should take it and a few other things. What kind of ben...

Exercise

What kind of exercises do you do

Beating back my first bad symptom. Thiamin?

So, last August I was at work on a layover in Hartford, CT and went down to the ...

Things are looking up

Yesterday I had my two yearly appointment with the neurologist. She said that ...

UK available keyboard for ataxia

Hi, sorry, I know this follows a similar post but has any one got any suggestion...

Anti-Purkinge

For five days last week I had IVIg treatment I have to have blood test in August...

Blue badge refused

I have had my application for a Blue Badge declined without being seen and asked...

Keyguard on keyboard

Rather than hit the wrong key I now use a keyboard with a keyguard on. The keyb...

Manchester

IS their anyone in or around Manchester who would like to share their problems? ...

Multiple System Atrophy

Hi. My mum was diagnosed with a less common form of ataxia about 5 years ago. ...

Mobility cars

My sister and I now have our mobility cars - I love it, it was so easy to do... ...

Swallowing pills

My daughter has trouble swallowing pills. Between her gag reflex and her choking...

SCA6 and Newcastle

I hear Newcastle is a SCA6 hotspot. Can anyone confirm this please?

I’m new.

Looking forward to sharing tips and helpful advice.

My breathing is not good

I am having a bad week. It’s my breathing, when I am setting I am ok unless I ...

Modafinal and fatigue

Anyone tried this drug for their fatigue and has it helped?

Have you been accused of being drunk due to your ataxia?

Hi all, It's me again - but with a different sort of request this time! Just wo...

Third time lucky with PIP,,,,, but a question

I have just been awarded PIP at the standard rate. What does this mean as far as...

Do Compression Socks Work?

Hi -- Has anyone tried compression socks of any height and compression? I was ...

Appetite

Has anyone found that they have lost their appetite, and lost weight, after an A...

Holiday for 2020?

What, in your opinions are the best places to go to for quality (4 star and abov...

Monthly period

Hi all. Hope all is well. I just wanted to ask does anyone's symptoms get worse...

Helping my mum cope

Hi, My name is Pippa and am living in France whilst my mum is based in Sydney Au...

Looking for reviews on wheelchairs, rollators and walkers please!

Hello everyone, I work in the Communications team at Ataxia UK - I hope you're a...

I want to tell you a story! More for the women, sorry guys!

This is for the newbies as we tell ourselves that once we were all normal and fo...

HAS ANYONE USED THIS ?

Has anyone tried the weighted OT vest. I have just seen it on the internet and ...

clearing old posts

how do I delete posts?

DRUG TRIAL..

Did anyone ever participate in a drug trial/XXN

Ear problem

My ears have been plugged for a year and getting worse. It's like when u gat of...

Students

Hi all, I have been asked if I would attend a Medical School based in the hospit...
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