Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for February 2023

SCA 10

Hi!My partner was recently diagnosed with SCA 10. We'd be interested to know if anyone else has this rare type. We're waiting for an appointment with UCHL in...

Hi!My partner was recently diagnosed with SCA 10. We'd be interested to know if ...

SJP239

•2 years ago

8 Replies

It's Rare Disease Day! 💜

Several of our friends have already participated and shared their wonderful stories. This is a fantastic opportunity to raise aware and share your rare story!...

Several of our friends have already participated and shared their wonderful stor...

Irmmy

•2 years ago

1 Reply

Anything related with gene therapy??

I wonder.Relating with SCA.

Eunseoc

•2 years ago

6 Replies

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Important things

Ataxia has taken a lot from me but you know what I don’t care one little bit because it cannot take away the most important things in my life. Just get on...

Ataxia has taken a lot from me but you know what I don’t care one little bit bec...

paul456

•2 years ago

5 Replies

If you have Speech problems..take part in this Study

Researchers want to learn about experiences using call centres from people with speech that is difficult to understand. They will use the results of this...

Researchers want to learn about experiences using call centres from people with...

wobblybee

•2 years ago

2 Replies

On 28th February, we celebrate Rare Disease Day. 🌈 ✨

Hi everyone! 😊 3.5 million in the UK are affected by a rare condition, including 10,500 people with ataxia. That's 3.5 million unique stories to tell, or 1...

Hi everyone! 😊 3.5 million in the UK are affected by a rare condition, includi...

Irmmy

•2 years ago

1 Reply

A shared story of SCA3

Bill Moore & his daughter Jessica Oberlin, two members of NAF, recently shared their stories of living with SCA3 as part of a feature for the Critical Path to...

Bill Moore & his daughter Jessica Oberlin, two members of NAF, recently shared ...

wobblybee

•2 years ago

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Help again

How fast have people’s ataxia progressed, mine at the moment started about 12-13 years ago. Didn’t really notice it progressing until 2-3 years ago. Now it...

How fast have people’s ataxia progressed, mine at the moment started about 12-13...

weegiz12345

•2 years ago

11 Replies

Trackball for Ataxia

Are there any track/roller balls that are user friendly for people with Cerebellar Ataxia and very trembling hands?

Are there any track/roller balls that are user friendly for people with Cerebell...

klazien

•2 years ago

5 Replies

Short tempered

I have recently found myself on a short fuse can I blame Ataxia for this.? In the past , I would do anything to avoid an argument.

I have recently found myself on a short fuse can I blame Ataxia for this.? In th...

Knittlng

•2 years ago

10 Replies

Join a remote Study for SCA1. SCA2. SCA3. or SCA6

A new remote study from the Harding Lab at Monash University aims to better understand how different brain and body functions (movement, speech, thinking...

A new remote study from the Harding Lab at Monash University aims to better unde...

wobblybee

•2 years ago

9 Replies

Support Ataxia UK's friend Ben Spencer!

Here is Ben, also known as Tubesnapper! 🚇 Ben is doing an incredible job raising awareness, he says, "This is my journey to photograph all 272 stations on...

Here is Ben, also known as Tubesnapper! 🚇 Ben is doing an incredible job raisi...

Irmmy

•2 years ago

2 Replies

Walking aides

Hi everyone,. It's been a while since I've posted on here. I just wondered what everyone else does regarding walking aides. At present I walk with two normal...

Hi everyone,. It's been a while since I've posted on here. I just wondered what ...

ww-wibblywobbly

•2 years ago

29 Replies

PATHOLOGICAL ENHANCEMENTS

Does any body know the exact meaning of this terminology in the context of a follow up brain scan. The consultants letter stated that there were no...

Does any body know the exact meaning of this terminology in the context of a fol...

piglet3

•2 years ago

7 Replies

Indian Head Massage

I've got Cerebellar Ataxia and would like to ask has anyone tried Indian Head Massage and/or shoulders and neck massage? I suppose I'm a little bit...

I've got Cerebellar Ataxia and would like to ask has anyone tried Indian Head Ma...

Sailor_Girl

•2 years ago

8 Replies

Sca 2 Vitamins /suplements

I am 47 with Ataxia spinocerebellar sca 2. I would like to know if there are some vitamins could help me ? Thank you

I am 47 with Ataxia spinocerebellar sca 2. I would like to know if there are som...

simsydney

•2 years ago

11 Replies

Ataxia Forums

I want to be positive but am frequently left a little sad after reading fellow sufferers experiences. I believe I have Cerebellar Ataxia, although I have not...

I want to be positive but am frequently left a little sad after reading fellow s...

Ostap

•2 years ago

17 Replies

Accessible holiday in Europe

Recommendations for Travel Agents? I’ve just started googling and checking out Disabled Holidays and others.

Recommendations for Travel Agents? I’ve just started googling and checking out D...

BrettDarby

•2 years ago

7 Replies

ataxia programs, how do I join?

How do I join a ataxia program?

coupons

•2 years ago

4 Replies

luggie for sale

I have a luggie for sale . It’s about 2 years old , had very little use . I paid £2400 for it I would like £650

I have a luggie for sale . It’s about 2 years old , had very little use . I paid...

Oroklinibabe

•2 years ago

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B-Temia's Keeogo

Hi everyone, Has anyone used the B-Temia's Keeogo? It seems interesting, but I have found no specific testimonials for Ataxia. The best I can find is that the...

Hi everyone, Has anyone used the B-Temia's Keeogo? It seems interesting, but I h...

Tackeshi

•2 years ago

1 Reply

AtaxiaUK Virtual Ataxia Support Group online Sat 4 February 2023

🙂 This is the link to register for the upcoming Virtual Ataxia Support Group The registration link for this meeting is...

🙂 This is the link to register for the upcoming Virtual Ataxia Support Group ...

wobblybee

•2 years ago

Be the first to reply

the problem with ataxia.

This is prompted by Buffergirl and her post about neurologists. Ataxia as a medical condition is rare and therefore doesn’t attract money or medical interest....

This is prompted by Buffergirl and her post about neurologists. Ataxia as a med...

nigelrheath

•2 years ago

12 Replies

Foot massager to increase circulation?

Hi all, has anyone tried a foot massager, the sort on TV adverts, to increase circulation in feet and legs. The idea is you sit in bare feet for a few minutes...

Hi all, has anyone tried a foot massager, the sort on TV adverts, to increase ci...

penelope2

•2 years ago

13 Replies

Neurologists

I'm afraid I'm going to let off steam here and ask the following questions: 1) Do neurologists understand anything about our conditions? 2) Do they do any...

I'm afraid I'm going to let off steam here and ask the following questions: 1) ...

Buffergirl

•2 years ago

24 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for February 2023

SCA 10

It's Rare Disease Day! 💜

Anything related with gene therapy??

Important things

If you have Speech problems..take part in this Study

On 28th February, we celebrate Rare Disease Day. 🌈 ✨

A shared story of SCA3

Help again

Trackball for Ataxia

Short tempered

Join a remote Study for SCA1. SCA2. SCA3. or SCA6

Support Ataxia UK's friend Ben Spencer!

Walking aides

PATHOLOGICAL ENHANCEMENTS

Indian Head Massage

Sca 2 Vitamins /suplements

Ataxia Forums

Accessible holiday in Europe

ataxia programs, how do I join?

luggie for sale

B-Temia's Keeogo

AtaxiaUK Virtual Ataxia Support Group online Sat 4 February 2023

the problem with ataxia.

Foot massager to increase circulation?

Neurologists

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive