reading: Still being new to this, I find when I... - Ataxia UK

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siver52 profile image
10 Replies

Still being new to this, I find when I read my eyes "skip" words is this a prob related to Ataxia please

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siver52 profile image
siver52
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10 Replies
Fifa profile image
FifaVolunteer

Hello Silver 52

I have the same problems with my eyes as you. It's a bummer!!!!!!

I also have difficulty focusing, moving my head from side to side makes me dizzy. I just have to wait until my eyes focus.

Take care

Fifa

tedjohnson profile image
tedjohnson

Hi Siver 52 there are so many problems which we don't know whether they are related to Ataxia---and even the consultants don't know all the answers. Thats why his web is so helpful I too have sight problems mainly slight delay in focusing when I look sideways (Is this what you mean?) I do eye exercises which may or may not help Who knows

Take care Tedjohnson

klazien profile image
klazien

Many people with Ataxia have some involuntary movement of their eyes (Nystagmus). I have it too but only very slightly, maybe this is the reason that I have difficulty in keeping track of the lines. I don’t skip words though. Reading with a kindle (enlarge letters) and a lot of light on the page helps me so maybe it helps you too with your problem

wobblybee profile image
wobblybee

Good Morning Siver 52! (or is it Silver?)

I do this as well. But, I also 'speed-read', skim and pick out what I want or what is

interesting. I've got a kindle, at first I didn't think it would be as appealing as holding

a book but I do like it. My concentration varies, so I download a lot of samples, it's

surprising how many samples you read that turn out to be very disappointing!

When my eye problems first started (late 1990s), I was doing college courses (late

starter). Searching in the library became very frustrating, looking along the shelves

with my head at an angle, made focus almost impossible. At the time I didn't know

why this was becoming an issue, and it hasn't gone away. Despite being seen on

a regular basis at the Eye Department at my local hospital (for Iritis), Nystagmus

wasn't actually identified until 2011. A doctor was excited when she spotted

'bouncing eyes'!

I've always loved to read and I could always be tempted into bookshops. Now I'm

fairly indifferent, I prefer to look on Amazon, although not always for the kindle.

I hope you don't mind but I read your profile (cute dog, I have a cat)! I suspect I

might have your condition, the fog can last for weeks at a time, I've had it for years

and it drives me mad. The problem with most of these conditions is that a lot of

the symptoms overlap making diagnosis difficult but, NEVER GIVE IN!

siver52 profile image
siver52 in reply to wobblybee

Hi wobblybee, It was supposed to be Silver but was having a brain fog that day lol x

siver52 profile image
siver52

Thank you all for your answers. Very helpful.

silkwood profile image
silkwood

I have had Cerebellar Ataxia for about 6 years now.

My eyes skip words and lines and I often drop the whole book and look at it on the floor.

With a whole lot of grimacing and contortion I manage to pick up the book only to forget where I got to.

I have got a kindle but will probably drop that as well.I think the Ataxia has made my eyes slow to focus;nothing wrong with the sight just the muscles.

siver52 profile image
siver52 in reply to silkwood

That sounds exactly like it. I had my eyesight tested recently coz of the double vision I get sometimes. My sight was fine. Thank you

february profile image
february

Yes, a symptom for some people with ataxia is "nystagmas", where the eyes move back and forth or up and down. Also ability to focus, as well as double vision can be a symptom. I have a difficult time turning my head from side to side, as my eyes are slow to follow. Therefore, no multitasking for me (like walking and looking sideways at the same time)...,ha! ;o)

Litty profile image
Litty

I am hopeless at reading . My lot spoilt me and enrolled me in audible.co.uk . It is great and I can get on and do other stuff while listening to books : )

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