Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,028 members • 4,569 posts

All posts for June 2015

Insurance for invalid scooter

I have just received my re-newel documents which includes a revision - liability - motorised vehicles, it says you are covered "while being used on a public...

I have just received my re-newel documents which includes a revision - liability...

•9 years ago

Hotel in Blackpool?

We are going to Blackpool next week and believe that 'St Chads hotel' was recommended by some people who have Ataxia. Can anyone tell me if this hotel is...

We are going to Blackpool next week and believe that 'St Chads hotel' was recomm...

•9 years ago

Glasgow Fireman diagnosed with Ataxia http://www.dailyrecord.co.uk/news/real-life/facing-up-ataxia-far-harder-5891202

Just discovered this story from last week. There's a bit in the story about him staggering and falling while in uniform. He was ignored by onlookers and it...

Just discovered this story from last week. There's a bit in the story about him ...

•9 years ago

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Relief

I am so glad to have found this community. For quite a few years not knowing what was wrong with me, and not being able to get to the root cause of this...

I am so glad to have found this community. For quite a few years not knowing wha...

•9 years ago

Advice

Good afternoon Patrick here from Lancs just recently been diagnosed with ataxia would love to get some tips etc etc as how to manage this condition. Thanks in...

Good afternoon Patrick here from Lancs just recently been diagnosed with ataxia ...

•9 years ago

Does anyone's body react abnormally when ill?

Hi all, I was recently diagnosed with breast cancer and at the mo I'm recovering from surgery to remove the tumor. When I'm ill my body doesn't react...

Hi all, I was recently diagnosed with breast cancer and at the mo I'm recoverin...

•9 years ago

Ataxia what?

I've had symptoms for a year or more with the last 4 months getting worse rapidly. Not definitively diagnosed yet, gait issues, I've fallen 4 times in 3...

I've had symptoms for a year or more with the last 4 months getting worse rapidl...

•9 years ago

Charge for Blue badge

I have just been informed that I have to pay £20 for my next Blue badge, which has to be applied for and renewed every three years. I have written to my local...

I have just been informed that I have to pay £20 for my next Blue badge, which h...

•9 years ago

Disabled parking refused

My sister has been diagnosed with cerebellum attaxia. She is so wobbly she is unable to go out on her own, although she still drives. She applied for an...

My sister has been diagnosed with cerebellum attaxia. She is so wobbly she is...

•9 years ago

Genetic testing eg Ataxia or Hypertrophic cardiomyopathy

Who has had it? who did it? Do you need other family members? How were you put forward?

Who has had it? who did it? Do you need other family members? How were you put f...

•9 years ago

ataxia clinic

at long last been seen by the ataxia clinic, seen a lovely lady doctor and have now had confirmation i do have ataxia i can now get some additional help from...

at long last been seen by the ataxia clinic, seen a lovely lady doctor and have ...

•9 years ago

RE: Sheffield Ataxia centre

HAS ANYONE WITH CEREBELLAR ATAXIA (UNKNOWN CAUSE) , EVER BEEN GIVEN A REASON FOR THEIR ATAXIA BY DR H? OR HAVE DID YOU JUST GET TOLD IT IS STILL UNKNOWN?...

HAS ANYONE WITH CEREBELLAR ATAXIA (UNKNOWN CAUSE) , EVER BEEN GIVEN A REASON FO...

•9 years ago

what do the dizzy teams help us with ?

Hi - my consultant has referred me to the hospital dizzy team . I assume they can help me with my wonky sense of balance / or my wavy walking issues ? Am...

Hi - my consultant has referred me to the hospital dizzy team . I assume they c...

•9 years ago

Research into NHS bathroom and toiling facilities

Dear all Have you experienced using hospital toilet facilities that were not accessible to you due to a lack of equipment such as hoists? Rare Disease UK...

Dear all Have you experienced using hospital toilet facilities that were not ac...

Administrator•9 years ago

Have your say in developing guidance for short term interventions to regain independence-deadline for applications Monday 8th June

Dear all Please read below an email from NICE (National Institute of Clinical Excellence)... Best Wishes Harriet Dear Colleague, Short-term...

Dear all Please read below an email from NICE (National Institute of Clinical E...

Administrator•9 years ago

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Anyone else have sensory ataxia ?

I wish to understand this more better and make more sense of the symptoms I experience . I was only confirmed and properly diagnosed last week - so its all...

I wish to understand this more better and make more sense of the symptoms I expe...

•9 years ago

Family

Hi all. I have family members diagnosed with SCA6 my father-in-law was diagnosed in the late 1970's and passed away in 1987 at age 68. My husband was diagnosed...

Hi all. I have family members diagnosed with SCA6 my father-in-law was diagnosed...

•9 years ago

newly diagnosed and confused

I have recently been diagnosed with cerebellar ataxia (3 months ago) although I av had symptons around 16 years...I was wondering if stress,worry and upset can...

I have recently been diagnosed with cerebellar ataxia (3 months ago) although I ...

•9 years ago

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