Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for November 2019

Late on set Cerabeller Ataxia.

Hi everyone, I was diagnosed with the above early this year through an mri at Salford Manchester. Never heard of it but got in touch with Ataxia UK. It comes...

Hi everyone, I was diagnosed with the above early this year through an mri at Sa...

•5 years ago

Frosty

Looked cold outside early this morning. Jack Frost had paid a visit overnight and it seems he’s reluctant to leave 🥶 Hope you are all keeping yourselves warm...

Looked cold outside early this morning. Jack Frost had paid a visit overnight an...

•5 years ago

My latest project

HI all, I hope it is not too cold if you live in the northern hemisphere, here in Portugal it has been raining for many days. I realy miss the sun. I have...

HI all, I hope it is not too cold if you live in the northern hemisphere, here i...

•5 years ago

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Friedrichs Ataxia

Hi everyone My 16 year old son has friedrichs ataxia...are anyone of you taking supplement s etc that you feel are helping. He is detiorating quite a lot and...

Hi everyone My 16 year old son has friedrichs ataxia...are anyone of you taking...

•5 years ago

So very down

I fell over on the birthday and gashed my head really badly. I can’t take much more and thinking about the next 10 or 20 years fills me with dread. What is...

I fell over on the birthday and gashed my head really badly. I can’t take much ...

•5 years ago

What do you do for work?

Currently I don’t work but I want to. I’m having trouble identifying what I still have to offer. I have trouble holding a pen. I can type but I’m not that...

Currently I don’t work but I want to. I’m having trouble identifying what I stil...

•5 years ago

This study is

This study is an investigation into the response of Tasigna to hereditary cerebellar atrophy in Korea

This study is an investigation into the response of Tasigna to hereditary cerebe...

•5 years ago

This study is

This study is an investigation into the response of Tasigna to hereditary cerebellar atrophy in Korea

This study is an investigation into the response of Tasigna to hereditary cerebe...

•5 years ago

Be the first to reply

This study is

This study is an investigation into the response of Tasigna to hereditary cerebellar atrophy in Korea

This study is an investigation into the response of Tasigna to hereditary cerebe...

•5 years ago

Be the first to reply

This study is

This study is an investigation into the response of Tasigna to hereditary cerebellar atrophy in Korea

This study is an investigation into the response of Tasigna to hereditary cerebe...

•5 years ago

Be the first to reply

I’ve been taking tasigna for 11 months

I've been taking tasigna for 11 months and the best thing about it is that I speak clearly, and my muscle consumption has been reduced and my gaps with stamina...

I've been taking tasigna for 11 months and the best thing about it is that I spe...

•5 years ago

Thanks

Thank you to everyone that has been so kind to me. I’m grateful to have new friends thanks to this site. I hope everyone is doing well.

Thank you to everyone that has been so kind to me. I’m grateful to have new frie...

AtaxicFarmer2017

•5 years ago

Wobbly Eyes

Recently been experiencing wobbly eyes. Can be watching TV or just sitting contemplating life and my eyes will involuntary ‘wobble’ from side to side, up and...

Recently been experiencing wobbly eyes. Can be watching TV or just sitting conte...

•5 years ago

https://www.ageukmobility.co.uk/media/cache/product_365/upload/3e/77/3e7778d4d7faebce3ed80d478ce3e169f3b01ec7.jpeg

🙂 By chance, this was already in place in our rental home. At first I thought 😬 but I now realise it’s very practical. Click on link to see image🙂

🙂 By chance, this was already in place in our rental home. At first I thought ...

•5 years ago

Be the first to reply

Log onto the National Ataxia Foundation webinar explaining Clinical Trials

https://ataxia.org/clinical-trials-in-ataxia-hope-opportunity-and-caveats/

https://ataxia.org/clinical-trials-in-ataxia-hope-opportunity-and-caveats/

•5 years ago

Life is hard

I live in the United States, in the west. I have ataxia due to my cerebellum having atrophy from a virus. I used to run a large farm and a twenty two pivot...

I live in the United States, in the west. I have ataxia due to my cerebellum hav...

AtaxicFarmer2017

•5 years ago

Weak bladder

Weak bladder. Lol over the years I have become quite an expert - ataxia can weaken stuff down there, child bearing and age! I am lucky enough to see a...

Weak bladder. Lol over the years I have become quite an expert - ataxia can wea...

•5 years ago

Muscle Cramps/pains & medications

my Neurologist has just prescribed me with Baclofen tablets for really bad muscle pain/cramps in my groin. It starts Ed off at one side & has now moved to...

my Neurologist has just prescribed me with Baclofen tablets for really bad muscl...

•5 years ago

The Cerebellum plays a big part in social interaction

https://www.psychologytoday.com/intl/blog/the-athletes-way/201911/social-cognition-may-rely-heavily-healthy-cerebellum Please click the redirect link 🙂

https://www.psychologytoday.com/intl/blog/the-athletes-way/201911/social-cogniti...

•5 years ago

Test

•5 years ago

GP’s Home Visits to Remain

This is excellent news👍 GP plan to scrap home visits ‘won’t fly’ says health secretary Matt Hancock - Sky News.

This is excellent news👍 GP plan to scrap home visits ‘won’t fly’ says health s...

•5 years ago

Fascinating and encouraging research.

https://medschool.duke.edu/about-us/news-and-communications/som-magnify/finding-hope-darkness-duke-neurologist-develops-and-tests-new-therapy-help-understand-an

https://medschool.duke.edu/about-us/news-and-communications/som-magnify/finding-...

•5 years ago

Diagnosis query

Hi All, I don’t post often but read your comments most days. I have yet to be diagnosed, only with cerebral Ataxia. The doctors, I’ve seen more than one and...

Hi All, I don’t post often but read your comments most days. I have yet to be ...

•5 years ago

took me by surprise

I live in an independent living block of flats and try to get out of it for a walk every day. Yesterday the cleaner/temporary warden commented on how much...

I live in an independent living block of flats and try to get out of it for a wa...

•5 years ago

putting shoes on

another light bulb moment. I find it much easier when putting on footweat, to cross leg and pull shoe on rather than try to keep foot still enough to put into...

another light bulb moment. I find it much easier when putting on footweat, to cr...

•5 years ago

All Aboard! The Canal Trip

I’ve just experienced the most complete 2 hours of relaxation I’ve had for a long time. I’d downloaded (Sky) and watched: An uninterrupted two-hour journey...

I’ve just experienced the most complete 2 hours of relaxation I’ve had for a lon...

•5 years ago

Participate in a study (home-based) re PROM Ataxia

ALL Ataxians living outside of the U.S. can participate. Email me : vdenis@comcast.net for specific details on how you can participate in this study. All...

ALL Ataxians living outside of the U.S. can participate. Email me : vdenis@comc...

•5 years ago

Interesting to people who live in Wales, and diagnosed with SCA2 or SCA6

•5 years ago

anybody experience with orthotics?

I am sca2 sufferer. I can wear ONLY one pair of shoes, clogs, not wooden, specialized medical shoes for nurses as they spend all day long on their feet in...

I am sca2 sufferer. I can wear ONLY one pair of shoes, clogs, not wooden, specia...

•5 years ago

A new level of well being. I wish more would try.

So, I can not describe what has happened to me recently except to say I am feeling a whole new level of well being. People . . . understand I have a genetic...

So, I can not describe what has happened to me recently except to say I am feeli...

•5 years ago

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