Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,084 members•4,658 posts

All posts for December 2020

Ataxia and epilepsy

Hello everyone, I've not posted for quite a while as my ataxia is relatively mild and not too troublesome. Today, after suffering from increasingly severe...

Hello everyone, I've not posted for quite a while as my ataxia is relatively mil...

planetzed

•4 years ago

15 Replies

Are there any idiopathic ataxia sufferers involved in Ion Channel study 07/N018.

We have always believed my son suffered from idiopathic ataxia and he has been invited to join the above study which implies that his symptoms possibly have a...

We have always believed my son suffered from idiopathic ataxia and he has been i...

Poweruser

•4 years ago

2 Replies

SCA in Texas

Good morning, I have been diagnosed with SCA3 and live in Texas. I was wondering if there are others SCA patients on this forum in Texas?

Good morning, I have been diagnosed with SCA3 and live in Texas. I was wondering...

Namitaytrev

•4 years ago

10 Replies

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Need Information from People Who Use Baclofen

I am experiencing increased muscle fatigue, stiffness, and spasticity. If anyone has experience with Baclofen, I would appreciate any information you can...

I am experiencing increased muscle fatigue, stiffness, and spasticity. If anyon...

ninotchka

•4 years ago

35 Replies

SCA 2 update

My name is Vinu Radhakrishnan, I have SCA 2 for the last 6years. I am looking for a good friend to share my thoughts with and discuss ataxia diseases. Thanks

My name is Vinu Radhakrishnan, I have SCA 2 for the last 6years. I am looking fo...

vinupr

•4 years ago

9 Replies

high settee or chair advice

Could anyone let me know the best place to buy a settee or chair that has a higher than std seat height from. Many thanks

Could anyone let me know the best place to buy a settee or chair that has a high...

auntiesally

•4 years ago

6 Replies

Ataxia and blurry vision

Good morning all I hope u all had a good Christmas despite the circumstances . I would like to ask if any of you have problem with progressing blurry...

Good morning all I hope u all had a good Christmas despite the circumstances . ...

aburt449

•4 years ago

9 Replies

Covid-19 vaccine

Dear all I thought you would like the links to the Ataxia UK website with advice on the taking the vaccine from the Medical Advisory Panel at Ataxia UK (first...

Dear all I thought you would like the links to the Ataxia UK website with advice...

HarryB

Administrator•4 years ago

9 Replies

Food Deliveries

🙂 People experiencing difficulty in getting food deliveries might be interested in this service from Amazon and Morrisons. Postcodes Eligible for Amazon...

🙂 People experiencing difficulty in getting food deliveries might be interested...

wobblybee

•4 years ago

2 Replies

Newly diagnosed

Hello Everyone I have just been diagnosed with cerebral ataxia, no specific one just yet as still waiting for results of some genetic testing and been told...

Hello Everyone I have just been diagnosed with cerebral ataxia, no specific on...

Timotae

•4 years ago

7 Replies

CRISPR Gene Editing

🙂 Hopefully this will one day be beneficial to ataxia patients....

wobblybee

•4 years ago

7 Replies

Relationship based query

Hi Everyone, My query is not specifically physical health related. I wanted to know how many people are happily in a relationship with another person? Did you...

Hi Everyone, My query is not specifically physical health related. I wanted to ...

Sherena

•4 years ago

10 Replies

Ataxia and Identity

Ataxia and personal identity In a routine visit to the practice nurse for a blood test this morning, not ataxia related, it occurred to me that our society...

Ataxia and personal identity In a routine visit to the practice nurse for a blo...

nigelrheath

•4 years ago

11 Replies

sca3 patient being treated as MSA

A doctor recomanned me to be administered in hospital to cure my disease for 10 days. What worries me is that he kept talking about mutiple system atrophy...

A doctor recomanned me to be administered in hospital to cure my disease for 10 ...

Collinhucn

•4 years ago

4 Replies

Dystonia

Hi all Hope you are well. Some weeks ago I wrote to mention that my right foot was turning inwards and if anybody else was having or had the same problem. I...

Hi all Hope you are well. Some weeks ago I wrote to mention that my right foot ...

Hidden

•4 years ago

14 Replies

B12 for Ataxia

Is it only a B12 Shot or are supplements good too?

homemaker2000

•4 years ago

9 Replies

COVID vaccine

Is anyone wondering if the COVID vaccine might have an adverse effect on those suffering with a neurological condition and specifically those with ataxia? If...

Is anyone wondering if the COVID vaccine might have an adverse effect on those s...

Libra7

•4 years ago

27 Replies

Vulnerable condition

Is Cerebellar Ataxia considered to be an underlying condition when looking at vulnerability for the virus Covid-19? I am old, very healthy but vulnerable due...

Is Cerebellar Ataxia considered to be an underlying condition when looking at vu...

klazien

•4 years ago

12 Replies

Utensils to help with eating

Liftware Steady™ Liftware Steady (previously marketed as “Liftware”) is an electronic stabilizing handle and a selection of attachments that include a soup...

Liftware Steady™ Liftware Steady (previously marketed as “Liftware”) is an elec...

wobblybee

•4 years ago

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Shopping

This post might help people like me who live alone and can't get out,I'm classed as extremely vulnerable I've struggled with online shopping getting slots and...

This post might help people like me who live alone and can't get out,I'm classed...

Arlo20

•4 years ago

4 Replies

"Drum training induces long-term plasticity in the cerebellum"

Hi, just joined but hoping to find a place to share knowledge and experience. I'm 57 and first noticed symptoms 7 years ago. I and 1 brother inherited it...

Hi, just joined but hoping to find a place to share knowledge and experience. I'...

Ben_

•4 years ago

6 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for December 2020

Ataxia and epilepsy

Are there any idiopathic ataxia sufferers involved in Ion Channel study 07/N018.

SCA in Texas

Need Information from People Who Use Baclofen

SCA 2 update

high settee or chair advice

Ataxia and blurry vision

Covid-19 vaccine

Food Deliveries

Newly diagnosed

CRISPR Gene Editing

Relationship based query

Ataxia and Identity

sca3 patient being treated as MSA

Dystonia

B12 for Ataxia

COVID vaccine

Vulnerable condition

Utensils to help with eating

Shopping

"Drum training induces long-term plasticity in the cerebellum"

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive