Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,570 posts

All posts for May 2021

Legs Shake Going Down Stairs

For years, I did not like going down stairs because my legs shook lightly. It's getting worse, so I have to go down very slow. And I also don't like...

For years, I did not like going down stairs because my legs shook lightly. It's...

Klutzy

•3 years ago

12 Replies

Off to the gym, and to amuse my neighbours

Since using my wheelchair to get into town and to the gym I have noticed how being in a wheelchair makes me even more invisible than being an old white haired...

Since using my wheelchair to get into town and to the gym I have noticed how bei...

nigelrheath

•3 years ago

5 Replies

Great news!

Did anyone watch Celebrity Beat The Chasers on Saturday? Dom Joly gave a wonderful performance and raised £50,000 for Ataxia UK.

Did anyone watch Celebrity Beat The Chasers on Saturday? Dom Joly gave a wonder...

Libra7

•3 years ago

6 Replies

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Ataxia in Covid lockdown

Hi everyone Am wondering how many of us Experienced any worsening of Ataxia symptoms During the Covid lockdown ? I did experience greater wonky gait and...

Hi everyone Am wondering how many of us Experienced any worsening of Ataxia s...

Anna29

•3 years ago

1 Reply

Proprioception under investigation.

My wobbliness when walking is getting worse, as my cerebellum dies off. As it sits across the communication channel from my brain to my body so it is...

My wobbliness when walking is getting worse, as my cerebellum dies off. As it si...

nigelrheath

•3 years ago

33 Replies

Neck and lower back pain

Hi all, I wrote on here some time ago about neck pain and frequent migraines. I just thought I'd update you all and maybe offer a solution to anyone else who...

Hi all, I wrote on here some time ago about neck pain and frequent migraines. I...

ww-wibblywobbly

•3 years ago

6 Replies

CBD Oil? A helpful Oil or a waste or a miracle Oil?

What's everyone's opinions on CBD Oil? It's expensive but I'd happily pay if it will help? I've tried it a few times but never really stick at it? Should I?...

What's everyone's opinions on CBD Oil? It's expensive but I'd happily pay if it ...

Lucycord123

•3 years ago

9 Replies

Do any of you have intermittent ataxia episodes that come on only after eating a meal?

I believe I have gluten-sensitivity ataxia, but none of my three doctors (naturopath, general practitioner, kidney specialist) have heard of it, so am...

I believe I have gluten-sensitivity ataxia, but none of my three doctors (naturo...

Hidden

•3 years ago

28 Replies

My Account

Several days ago I deleted my account in error and recently tried to bring it back to life as it was before my mending but because I have the IT skills as a...

Several days ago I deleted my account in error and recently tried to bring it ba...

paul456

•3 years ago

2 Replies

Should I take the Covid 19 vaccine?

I have not taken the covid 19 vaccine for fear that will worsen my ataxia symptoms. I have cerebellar ataxia. I would like to know how this vaccine has...

I have not taken the covid 19 vaccine for fear that will worsen my ataxia sympto...

Gwojr

•3 years ago

17 Replies

Pending full investigations for Ataxia

5 weeks ago I had a routine op to help with severe stress incontinence. Unfortunately did not go to to plan and ended up in retention . Over the last few...

5 weeks ago I had a routine op to help with severe stress incontinence. Unfortun...

Bizzyissy

•3 years ago

10 Replies

How I describe my diagnosis of ataxia

🤔 For me, ataxia is so much more than a problem with balance and co-ordination. It interferes with my ability to multitask, make decisions and concentrate....

🤔 For me, ataxia is so much more than a problem with balance and co-ordination....

wobblybee

•3 years ago

35 Replies

Lumbar puncture

Hi all just wondered what experience anyone had of a lumbar puncture. Did you find it useful for diagnosis and was it worth going through it and would you do...

Hi all just wondered what experience anyone had of a lumbar puncture. Did you fi...

penelope2

•3 years ago

11 Replies

Children with ataxia

Hi all, Hope you're doing well on this sunny morning (hopefully it lasts!). I'm the Communications Officer at Ataxia UK and I'm looking for case studies about...

Hi all, Hope you're doing well on this sunny morning (hopefully it lasts!). I'm ...

Hidden

•3 years ago

4 Replies

PNPLA6 Mutation - Gordon-Holmes / Boucher-Neuhauser Syndromes -

Hello I am new here, I am looking for people with this rare mutation leading to the mentioned syndromes, in order to share experiences and information and join...

Hello I am new here, I am looking for people with this rare mutation leading to ...

Roman_mom

•3 years ago

2 Replies

Hope

Hi i hope this may give hope to someone,i have just been in uclh for 31 days,prior to admission i was falling a lot and my speech was awful they were marvelous...

Hi i hope this may give hope to someone,i have just been in uclh for 31 days,pri...

Arlo20

•3 years ago

11 Replies

Dentist phobia

Hi, still under investigation for ataxia. I used to be fine with going to the dentist before ataxia. But now I have dysphagia (difficulty swallowing) and...

Hi, still under investigation for ataxia. I used to be fine with going to the de...

Lili986

•3 years ago

6 Replies

FYI.

https://www.acupuncturetoday.com/mpacms/at/press_release.php?t=&id=1836&all=true

https://www.acupuncturetoday.com/mpacms/at/press_release.php?t=&id=1836&all=tr...

nycgeordie

•3 years ago

6 Replies

Walker

Hello, I have decided nows about time I purchase a walker, I preferably want to get a pink one, but can anyone suggest a good site to get it or even a good...

Hello, I have decided nows about time I purchase a walker, I preferably want to ...

ljp103

•3 years ago

13 Replies

Do you have an assistance / therapy dog?

Hi everyone, I am the Communications Officer at Ataxia UK. I am looking for people who have an assistance / therapy dog that supports you. If this is you, and...

Hi everyone, I am the Communications Officer at Ataxia UK. I am looking for peo...

Hidden

•3 years ago

6 Replies

Hearing loss

Has any of you out there been given hearing aids for your ataxia related hearing loss? I was told by one ent doc that I would benefit from them, I was told by...

Has any of you out there been given hearing aids for your ataxia related hearing...

EireAtaxic

•3 years ago

8 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for May 2021

Legs Shake Going Down Stairs

Off to the gym, and to amuse my neighbours

Great news!

Ataxia in Covid lockdown

Proprioception under investigation.

Neck and lower back pain

CBD Oil? A helpful Oil or a waste or a miracle Oil?

Do any of you have intermittent ataxia episodes that come on only after eating a meal?

My Account

Should I take the Covid 19 vaccine?

Pending full investigations for Ataxia

How I describe my diagnosis of ataxia

Lumbar puncture

Children with ataxia

PNPLA6 Mutation - Gordon-Holmes / Boucher-Neuhauser Syndromes -

Hope

Dentist phobia

FYI.

Walker

Do you have an assistance / therapy dog?

Hearing loss

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive