Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for August 2013

Something Different

Ever wondered what it must look like to be able to stand on top of the world and gaze at it`s beauty......................

Ever wondered what it must look like to be able to stand on top of the world and...

•11 years ago

Neuro Psychologist/Clinical Psychologist?

I asked to be referred back to see my Neoropsychologist at the biginning of January and only now do I have the appointment day! However, I have noticed that...

I asked to be referred back to see my Neoropsychologist at the biginning of Janu...

•11 years ago

Does anyone know of a belt-like apparatus, that provides the necessary force to the base of the back.

I have developed a serious postural tilt over many years of being in a wheelchair, or am I in a wheelchair because of a postural Tilt? A good question but, the...

I have developed a serious postural tilt over many years of being in a wheelchai...

•11 years ago

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Water lot of fun

Plumber fitted new taps system to bath today, soooooooo much easier to work with one hand. :-)

Plumber fitted new taps system to bath today, soooooooo much easier to work with...

•11 years ago

Does anyone have a fast or irregular heartbeat causing life to be drawn out of you whilst feeling like you've run a marathan? What do you do

•11 years ago

Does anyone else go to a MS group exercise class

When I joined my local gym they suggested that I joined the MS Group exercise class which I have done.

When I joined my local gym they suggested that I joined the MS Group exercise cl...

•11 years ago

Visit from Physiotherapists today

I had two physio`s at my house today - quite a good visit. Showed me some exercises to do whilst sitting in my wheelchair. To be honest, I enjodye doing them,...

I had two physio`s at my house today - quite a good visit. Showed me some exerci...

•11 years ago

Coming to London today

After much trepidation, I am fiyiing to London today to meet my husband. My friend's told me that at Heathrow (Terminal 1) that there is a long way from my BA...

After much trepidation, I am fiyiing to London today to meet my husband. My frie...

•11 years ago

Need some advice :(

My mum has ataxia, she has had it a good ten years now, she lives oh her own. She has started to get really worse, she makes excuses to not do things, she...

My mum has ataxia, she has had it a good ten years now, she lives oh her own. Sh...

•11 years ago

Why am I not receiving any emails from healthunlocked?

Could it be that I unintentionally opted out?

Could it be that I unintentionally opted out?

•11 years ago

when will findings on Ataxians be spied on ?

maybe we Ataxian are already documented by NSA & Co It is all very Orwellian, the police state under one world Government is on it's way.

maybe we Ataxian are already documented by NSA & Co It is all very Orwellian, th...

•11 years ago

Remember this one thing..........

You are "Unique" :-) :-) :-)

You are "Unique" :-) :-) :-)

•11 years ago

HealthUnlocked APP

ATAXIA HealthUnlocked should bring out an APP for Android Mobiles. It would make life ab it easier when on my bed with my mobile. :-) Do you think they...

ATAXIA HealthUnlocked should bring out an APP for Android Mobiles. It would make...

•11 years ago

Small rant on hearing test!

I went for a pre-hearing test at my local health centre and was told that ear pain is not a symptom of Meneirs disease? I have all the classic symptoms of...

I went for a pre-hearing test at my local health centre and was told that ear pa...

•11 years ago

What will you do for International Ataxia Awareness Day on the 25th September?

http://www.ataxia.org.uk/data/files/info_publication/general/Branson_-_what_will_you_do_b.pdf Harriet

http://www.ataxia.org.uk/data/files/info_publication/general/Branson_-_what_will...

Administrator•11 years ago

How shiny is your backspace/delete button????

Hi all, if there's one thing I'm glad about with the tremors is that I learned to touch type! I still find it very difficult to run off a post first time...

Hi all, if there's one thing I'm glad about with the tremors is that I learned t...

•11 years ago

Does anyone use Betahistine for dizziness and nausea?

I have been taking Betahistine on a regular basis for quite a few months now and any kind of dizziness I occasionally get is mild. Previously I tended to get...

I have been taking Betahistine on a regular basis for quite a few months now and...

•11 years ago

Starry, Starry Night

Unable to sleep - feeling like yuch, so I thought I`d come on and say what a nice night it is. Looking out the window at bright stars and patchy clouds - moon...

Unable to sleep - feeling like yuch, so I thought I`d come on and say what a nic...

•11 years ago

E-mail notifications

Dear all In order to make sure you are getting the correct e-mail notifications when somebody writes a new post/responds to something you have written, I...

Dear all In order to make sure you are getting the correct e-mail notifications...

Administrator•11 years ago

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Zipwire challenge

Hi everyone. On 22 sept. I have organised a zipwire challenge. Myself and 10 family and friends will be flying down scotland's longest zipwire. All money...

Hi everyone. On 22 sept. I have organised a zipwire challenge. Myself and 10 fam...

•11 years ago

Ataxia UK meeting in Inverness, Scotland on 24 August 2013 at 11.30am

come and join us in the small meeting room at the Fairways leisure and Loch Ness Golf Club, Castleheather Inverness IV26AA

come and join us in the small meeting room at the Fairways leisure and Loch Ness...

•11 years ago

Finally saw the Neurologist

Hi all I went to see the Neurologist and neither the Consultant or the Doctor had seen my symptoms. I tried to touch the Doc's finger then my nose and nearly...

Hi all I went to see the Neurologist and neither the Consultant or the Doctor ha...

•11 years ago

It's a fact, GPs don't know everything

This morning I asked a GP for a Gluten sensitivity test. Although he should have had all my information available on his computer, I explained I had SCA and...

This morning I asked a GP for a Gluten sensitivity test. Although he should ha...

•11 years ago

Re problems encountered when attempting to post

After several frustrating minutes when I couldn't figure out why the post wouldn't enter, it occurred to me to click on help. Lucky it wasn't earlier in the...

After several frustrating minutes when I couldn't figure out why the post wouldn...

•11 years ago

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Where is everybody?

I'm really surprised to see so little activity on the site. Either everybodys' away on holiday at the same time, or they've taken a vow of silence. Just keep...

I'm really surprised to see so little activity on the site. Either everybodys' ...

•11 years ago

Here we again.................

Another night of vomiting, dizziness, blurred vision. I thought I was going back into hospital again. Last time this happened, I lost a few days from memory,...

Another night of vomiting, dizziness, blurred vision. I thought I was going back...

•11 years ago

i am a nurse inbusy surgical ward, anyone have any hints or tips on how to cope working whilst working.

finally getting to see genetisit to help confirm which form of ataxia, was being treated with DIAMOX but was taken off due to very abnormal lft's. i can't...

finally getting to see genetisit to help confirm which form of ataxia, was being...

•11 years ago

Yes You Can

"A great pleasure in life is doing what others say you cannot." From when I can I remember I suffered from a very bad stammer. It affected me making friends....

"A great pleasure in life is doing what others say you cannot." From when I ca...

•11 years ago

How do you handle depression

I suppose when you have chronic health problems like most of us have an element of depression is not unusual. So do members get depressed and how do they...

I suppose when you have chronic health problems like most of us have an element ...

•11 years ago

To scoot or not to scoot...

Recently, I have unfortunately been finding that my legs feel as though they are about to collapse under me, and this has been happening more regularly - in...

Recently, I have unfortunately been finding that my legs feel as though they are...

•11 years ago

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