Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members • 4,576 posts

All posts for April 2014

The invisible 10,000 who demand to be seen

I don't go on the AtaxiaUK website much (sorry!) but I just visited it and saw these posters. I think the idea behind them and the posters themselves are...

I don't go on the AtaxiaUK website much (sorry!) but I just visited it and saw t...

wildone

•10 years ago

29 Replies

For Parents of Children who have Ataxia

A new group specifically for Parents of Children who have Ataxia, has been started on Living with Ataxia.org This is an American forum but a lot of people...

A new group specifically for Parents of Children who have Ataxia, has been start...

wobblybee

•10 years ago

1 Reply

Mobility scooter insurance

Before you splash out on a specific insurance for scooters ect check with your house contents most pollicys cover you but not for breakdowns or puncures ect...

Before you splash out on a specific insurance for scooters ect check with your h...

wobelyjohn

•10 years ago

11 Replies

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Getting the right advice, help and aftercare with your mobility products

I currently run my mobility shop with my husband and a strong team of experienced, friendly, supportive staff and have done for over 10years. We are members...

I currently run my mobility shop with my husband and a strong team of experienc...

morganburns

•10 years ago

1 Reply

Hi, does anyone suffer from head nodding. Mine happens several times a day, when I get up or move. It started 2 months ago. My neurologist

says. Botox. in. the neck might help. Any one had this? Also. It has been suggested that I use an Oswestry standing. Frame a I can' walk any more , use a...

says. Botox. in. the neck might help. Any one had this? Also. It has been sugge...

Marygate

•10 years ago

5 Replies

How many Ataxians out there are having to rely on Parents, Off-spring and Friends due to the absence of a Husband, Wife or Partner?

I always say that my Ataxia does not and will never stop me doing what I really want to! and it wouldn't but without a constant companion around I do suffer...

I always say that my Ataxia does not and will never stop me doing what I really ...

memielou

•10 years ago

30 Replies

I have spino cerabellar ataxia, the soles of my feet are numb and has an effect on my balance when trying to walk.

helsie

•10 years ago

11 Replies

cerebellar syndrome

I have been diagnosed with cerebellar syndrome and I have no idea what the long term outlook is .. It is late onset and possibly caused by a small bleed on the...

I have been diagnosed with cerebellar syndrome and I have no idea what the long ...

debs1305

•10 years ago

14 Replies

Double vision and squint surgery to correct it

I've had double vision for about 15 yrs. Initially I thought it was caused by either : a) Carbamazaphine Retard (side effects) b) Iritis ( the pupil...

I've had double vision for about 15 yrs. Initially I thought it was caused by ...

wobblybee

•10 years ago

7 Replies

Wobbly TV

Dear all Since January of this year Ataxia UK has released one short video a month for people affected by ataxia. There have been 4 released to date with a...

Dear all Since January of this year Ataxia UK has released one short video a mo...

HarryB

Administrator•10 years ago

5 Replies

Survey on on the value of services in the home to support independent living and care for people with long-lasting illnesses or conditions

Dear all Ataxia UK has received a request from the European commission for all of us to complete a short survey. I have included their invitation below with...

Dear all Ataxia UK has received a request from the European commission for all ...

HarryB

Administrator•10 years ago

Be the first to reply

my hands are hurting all the time the left worse than the right, I have rheumatoid arthritis but this is a different pain.

xray25

•10 years ago

4 Replies

Painful legs all day

Interesting day today. Legs have been painful all day, and I keep leaning more to the left than usual when moving from one room to another using the rollator -...

Interesting day today. Legs have been painful all day, and I keep leaning more t...

Hidden

•10 years ago

14 Replies

Has anyone managed to improve their walking and balance after being diagnosed with ataxia with treatment from a physiotherapist.

jaffa12

•10 years ago

11 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for April 2014

The invisible 10,000 who demand to be seen

For Parents of Children who have Ataxia

Mobility scooter insurance

Getting the right advice, help and aftercare with your mobility products

Hi, does anyone suffer from head nodding. Mine happens several times a day, when I get up or move. It started 2 months ago. My neurologist

How many Ataxians out there are having to rely on Parents, Off-spring and Friends due to the absence of a Husband, Wife or Partner?

I have spino cerabellar ataxia, the soles of my feet are numb and has an effect on my balance when trying to walk.

cerebellar syndrome

Double vision and squint surgery to correct it

Wobbly TV

Survey on on the value of services in the home to support independent living and care for people with long-lasting illnesses or conditions

my hands are hurting all the time the left worse than the right, I have rheumatoid arthritis but this is a different pain.

Painful legs all day

Has anyone managed to improve their walking and balance after being diagnosed with ataxia with treatment from a physiotherapist.

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive