Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members • 4,576 posts

All posts for October 2012

emergency fall alarms

there were questions asked sometime ago about emergency alarms I have just spoken to my technical adviser [son] about apps for smartphones and if the movement...

there were questions asked sometime ago about emergency alarms I have just spoke...

•12 years ago

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Does anyone know of anyone who has ataxia, is 16-28 years old and is currently pregnant?

Ataxia UK have been contacted by a TV production company who have been commissioned to make a programme about disability and pregnancy who wish to include...

Ataxia UK have been contacted by a TV production company who have been commissio...

Administrator•12 years ago

has anyone experienced using weights to help with balance, either on leg or body.

my 15 yr old son has CA, his balance is getting worse, started using wheelchair more often but i'm keen for him to walk as much as possible. i remember reading...

my 15 yr old son has CA, his balance is getting worse, started using wheelchair ...

•12 years ago

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Things that shake up your day!

While I was using my hairdryer this morning a flame shot out from the plug! For a brief second I was torn between deciding whether I was going to be...

While I was using my hairdryer this morning a flame shot out from the plug! For...

•12 years ago

Useful Gluten free Guide

I thought you might find this useful for anyone wanting to know about the gluten free diet and what it entails. Its mainly for British coeliacs, but may be of...

I thought you might find this useful for anyone wanting to know about the gluten...

•12 years ago

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slow loading site

Hi am I doing something wrong or am I the only person who finds this site very very slow to load everywhere else is almost instant but here isn't. I can't...

Hi am I doing something wrong or am I the only person who finds this site very v...

•12 years ago

Photos taken at Stansted

I've just been on American Ataxia Network. There were lots of photos taken by one of their members who was at the Stansted Conference. It was nice to see...

I've just been on American Ataxia Network. There were lots of photos taken by ...

•12 years ago

Prisms in glasses

When my left eye became bloodshot a GP treated it as conjunctivitis. Intense pain resulted in an early morning visit to Eye Casualty, where I was seen by a...

When my left eye became bloodshot a GP treated it as conjunctivitis. Intense pa...

•12 years ago

friends

hi i am 17 years old and have had cerebellar axatia from the age of 2. i am looking to talk and make friends with people as i don't go out much and have very...

hi i am 17 years old and have had cerebellar axatia from the age of 2. i am lo...

•12 years ago

All the fun of a support group without having to leave the house!

Hello I have read several posts on Healthunlocked about plucking up the courage to go to support groups and similar. Can I mention again the...

Hello I have read several posts on Healthunlocked about plucking up the c...

•12 years ago

How to cope?

I'm finding it really hard to cope. I've felt like this for years, but I've always put it down to being a 'blip' because every so often I find things easier to...

I'm finding it really hard to cope. I've felt like this for years, but I've alwa...

•12 years ago

Weight control and exercise, not easy when you have CA.

Like most women, my weight has gone up and down like a yo-yo over the years. Two pregnancies saw it rise each time by a good 3 stone, although it did...

Like most women, my weight has gone up and down like a yo-yo over the years. Tw...

•12 years ago

Computer uppityness!

Isn't is great when a computer/printer doesn't co-operate? I only know the basics, and have to seek advice from family quite often. What surprises...

Isn't is great when a computer/printer doesn't co-operate? I only know the ...

•12 years ago

Transport (part two)

I am writing this from a able bodied perspective. Having pushed my wife around (in a wheel chair, she bosses me most of the time). I have to find someone else...

I am writing this from a able bodied perspective. Having pushed my wife around (...

•12 years ago

Virtualataxia

As some of you will have seen, Alice and I were the Anne Ford Cup (details at http://www.ataxia.org.uk/pages/awards.html) for running Virtualataxia at the...

As some of you will have seen, Alice and I were the Anne Ford Cup (details at ht...

•12 years ago

Ataxia UK Annual Conference

As I am sure you have read in other posts, it was Ataxia UK's annual conference in Stansted at the weekend. If you were there I hope you enjoyed it....

As I am sure you have read in other posts, it was Ataxia UK's annual conference ...

Administrator•12 years ago

beware repeat billing

Beware of sites offering free trials/3day memberships or the like that require your card details you may be agreeing to repeat billing without knowing and when...

Beware of sites offering free trials/3day memberships or the like that require y...

•12 years ago

Transport (part one.) Outward Bound.

Travelling to Stanstead was the first time I used the Railway for a considerable time, Ripon not having a rail station (victim of Mr Beeching in the 1960's). I...

Travelling to Stanstead was the first time I used the Railway for a considerable...

•12 years ago

Stanstead

Just got back from the conference where I joined up health unlocked. My wife, Ann has unspecified Ataxia.

Just got back from the conference where I joined up health unlocked. My wife, An...

•12 years ago

Stansted Conference

I just want to say it was lovely meeting such a lot of nice people at the Stansted Conference. It was the first time I'd been to one and I was a bit...

I just want to say it was lovely meeting such a lot of nice people at the Stans...

•12 years ago

How often do you see your physiotherapists ?

as physiotherapists also have an appreciation of psychological, and social factors which influence their clients.I Iike a lot to drive twice a week from my...

as physiotherapists also have an appreciation of psychological, and social facto...

•12 years ago

i must go to one of these meetings or at least chat with someone

i must go to a meeting, at least someone understands, i broke my ankle and the hospital insisted i used crutches, when i explained i had attaxia they just...

i must go to a meeting, at least someone understands, i broke my ankle and the h...

•12 years ago

London Ataxia Centre

This is not a moan, because I still really enjoy my check-up, but I am interested to know if it happens to other people? The London Ataxia Centre is...

This is not a moan, because I still really enjoy my check-up, but I am intereste...

•12 years ago

what do you do to pass time when your having a bad day

when your having a bad day how do you pass the time I spend a lot of my time on facebook playing games or just catching up with news (anybody want to add me...

when your having a bad day how do you pass the time I spend a lot of my time on ...

•12 years ago

when to listen to your own body

when I was diagnoised with sca6 I had difficulty accepting I would need help with my walking as I was so used to walking all over rarely used buses unless I...

when I was diagnoised with sca6 I had difficulty accepting I would need help wi...

•12 years ago

Apart from severe bruising, has anyone had broken bones, sprains etc. as the result of a fall?

I haven't had a severe fall for a while, and had begun to get a bit complacent. This morning I excelled myself, nearly squashing the cat and almost giving my...

I haven't had a severe fall for a while, and had begun to get a bit complacent. ...

•12 years ago

Would you like to join a Focus Group for Ataxia UK?

Hi, We sometimes need help in reviewing publications - for content, design and accessibility. If you would like to help, please email me with your preferred...

Hi, We sometimes need help in reviewing publications - for content, design an...

•12 years ago

OK?

Does anyone else have days when they don't feel fine-I'm sick of tellling folk I feel ok when I could do with a good cry.I used to be so independant-now i'm...

Does anyone else have days when they don't feel fine-I'm sick of tellling folk I...

•12 years ago

Newbie here-Does 'swimmy eyes'/drowsy/clumsy feeling sound familiar to anyone?

Hi, I'm trying to find out if i may have some form of Ataxia (vestibular?).I've suffered with this weird spaced- out swimmmy eyes/head feeling for over 20...

Hi, I'm trying to find out if i may have some form of Ataxia (vestibular?).I've...

hayleyhappyface

•12 years ago

Walking with Ataxia...

I'm new to this site and have jst put this as an answer to a question about rollators, however, after browsing the 'blog' posts, I think my 'musings' may be...

I'm new to this site and have jst put this as an answer to a question about roll...

•12 years ago

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