Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for December 2018

Happy new year 🍾🎉🥰

Hi all fellow ataxias, their families, friends and caregivers - happy new year to everyone, whether you post regularly on this forum or are just quietly...

Hi all fellow ataxias, their families, friends and caregivers - happy new year t...

ww-wibblywobbly

•6 years ago

7 Replies

HAPPY CHRISTMAS XXX

To you all and your lovely families xxx

Litty

•6 years ago

6 Replies

tDCS for Ataxia

Has anyone with Ataxia tried tDCS? It is supposed to be good for cerebellar problems.

Has anyone with Ataxia tried tDCS? It is supposed to be good for cerebellar pro...

billiecorton

•6 years ago

10 Replies

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Benefits entitlement

Hi, I want to ask for some information for my sister in law, who doesn't have Ataxia but another illness. She's had to reduce her work hours due to her...

Hi, I want to ask for some information for my sister in law, who doesn't have At...

ww-wibblywobbly

•6 years ago

8 Replies

SCA 44 and GRM1 gene

My wife and brother-in-law both have SCA 44, as did their mother. Age of onset about 60. It affects walking, hand and eye movements, speech, and hearing. We...

My wife and brother-in-law both have SCA 44, as did their mother. Age of onset a...

grubs

•6 years ago

7 Replies

CBDoil and Cholesterol medication

I have Ataxia and am considering using CBDoil. A Googlesearch has indicated that my particular Cholesterol medication (Atorvastin) does not work well with...

I have Ataxia and am considering using CBDoil. A Googlesearch has indicated that...

chelpet

•6 years ago

2 Replies

Happy Christmas

Wishing all my fellow Ataxians a very Merry Christmas. We can have a drink among friends and family and it doesn’t matter if we speak more slurred and wobble...

Wishing all my fellow Ataxians a very Merry Christmas. We can have a drink amon...

Staggy1

•6 years ago

23 Replies

Support group

Is there a support group in Blackburn? I currently live in the south but am moving back to my home town to be near family.

Is there a support group in Blackburn? I currently live in the south but am mov...

ConfusedAtaxian

•6 years ago

4 Replies

Merry Christmas

A Merry Xmas and Happy New Year to all Ataxians. Don't forget, January 10th at 1pm, New Year lunch at the Crown Inn, Barnburgh, Doncaster. DN5 7JQ. All are...

A Merry Xmas and Happy New Year to all Ataxians. Don't forget, January 10th at 1...

Capricorn9157

•6 years ago

1 Reply

Knowing when your Ataxia has taken a turn.

Here is my situation during this time of my ataxia. I have come to realize I must use a wheel chair. With my rollator my balance is bad I see the changes as...

Here is my situation during this time of my ataxia. I have come to realize I mu...

4Heavenly

•6 years ago

25 Replies

Disabled Toilets

Is there a law now that restaurants have a disabled toilet.... in uk.?

sutty789

•6 years ago

7 Replies

Life changes.

My partner after 2 years put a letter on the bosses desk to reveal his health problems a week ago..Within 7 days we have been to the Occupational Health doctor...

My partner after 2 years put a letter on the bosses desk to reveal his health pr...

Alip-j

•6 years ago

6 Replies

ataxia

Is there an ataxia support group in Nottingham.

andam

•6 years ago

3 Replies

Sca 2 patient need friends

I am a sca2 patient. here I am searching for a good friend to discuss our worries and thoughts..kindly please message me you are interested in friendship with...

I am a sca2 patient. here I am searching for a good friend to discuss our worrie...

vinupr

•6 years ago

19 Replies

Vitamin b12

Does anyone take b12 who have ataxia & stiff persons syndrome

golfingsue

•6 years ago

8 Replies

South Yorks meal in January

Hi all. South Yorks support group has a meal booked for Thursday 10th January, 1pm, at the Crown Inn, http://www.crowninnbarnburgh.co.uk/ If you would like to...

Hi all. South Yorks support group has a meal booked for Thursday 10th January, 1...

Capricorn9157

•6 years ago

Be the first to reply

Ataxia questions help

My mom has a shrunken cerebellum shown by the MRI scanning. she has a gait but walks almost fine when stressing her legs. She has had the unbalanced issue...

My mom has a shrunken cerebellum shown by the MRI scanning. she has a gait but w...

kalaganginparis

•6 years ago

4 Replies

Dysphagia

Swallowing difficulties are common with ataxia people. First appears to be coming from lungs, asthma, chest infection etc. Ivan recently had a fluoroscopic...

Swallowing difficulties are common with ataxia people. First appears to be comi...

icdowsettNZ

•6 years ago

1 Reply

Swallowing

Do any of you have problems with swallowing? Recently I have found mine has got worse. I am having recurrent coughing fits and almost being sick or choking...

Do any of you have problems with swallowing? Recently I have found mine has got ...

Grapes12

•6 years ago

23 Replies

Restless sleep

Does anyone else experience restless sleep and take any supplements or natural rememdies to counteract it? By restless I mean that I toss and turn quite a bit...

Does anyone else experience restless sleep and take any supplements or natural r...

C2a2o2

•6 years ago

9 Replies

Ileostomy

As my ataxia gets worse and my gastrointestinal issues are continuously flaring up my Gastroenterologist has suggested I have an ileostomy bag as I can no long...

As my ataxia gets worse and my gastrointestinal issues are continuously flaring ...

hab29

•6 years ago

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Today's herbal supplement of interest: Skullcap.

A while back I was arguing with someone about which herbal flavonoid was best for helping clear toxic proteins from the brain. At the time my research pointed...

A while back I was arguing with someone about which herbal flavonoid was best fo...

sunvox

•6 years ago

11 Replies

Yet another big setback

I have in the past 2 days, had yet ANOTHER setback with the NHS round here. 7 months ago was the last time I saw the consultant Neurologist, within a week of...

I have in the past 2 days, had yet ANOTHER setback with the NHS round here. 7 mo...

peterallison

•6 years ago

12 Replies

ESSEX SUPPORT GROUP QUIZ NIGHT?

Did anyone on here go?If so HOW WAS IT??

benning

•6 years ago

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How do you know when it's time to start using a wheelchair full time?

I use a scooter or wheelchair if i'm going out anywhere. But I use a crutch for very short distances and around the house. But I keep losing my balance and...

I use a scooter or wheelchair if i'm going out anywhere. But I use a crutch for ...

Grapes12

•6 years ago

13 Replies

Stem Cell - Ataxia

Stem cell alternative? Does anyone know about this?...

AtaxiaCarer

•6 years ago

5 Replies

Amazing unspillable mug

Just thought I’d share because I find this product amazing and it solves a problem of me keep knocking over my mug of tea after my PA has gone home. It’s...

Just thought I’d share because I find this product amazing and it solves a probl...

PeteW

•6 years ago

3 Replies

Adult ataxia centre

Till about 2 years ago my daughter (who developed ataxia when she was 14) was being cared for by Great Ormond Street Hospital in London. Now that she is 19 she...

Till about 2 years ago my daughter (who developed ataxia when she was 14) was be...

nfor

•6 years ago

3 Replies

SHEFFIELD AREA

Hi peeps. Our support group are having a get together in January, Thursday 10th, for a meal and fun. All of yu interested let me know. Will be lots of laughs...

Hi peeps. Our support group are having a get together in January, Thursday 10th,...

Capricorn9157

•6 years ago

3 Replies

PIP madness

Got PIP letter today for my partner.Shocked and angry is an understatement.22 pound a week low rate mobility.I wasn't so bothered about that but to be told...

Got PIP letter today for my partner.Shocked and angry is an understatement.22 po...

Alip-j

•6 years ago

18 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for December 2018

Happy new year 🍾🎉🥰

HAPPY CHRISTMAS XXX

tDCS for Ataxia

Benefits entitlement

SCA 44 and GRM1 gene

CBDoil and Cholesterol medication

Happy Christmas

Support group

Merry Christmas

Knowing when your Ataxia has taken a turn.

Disabled Toilets

Life changes.

ataxia

Sca 2 patient need friends

Vitamin b12

South Yorks meal in January

Ataxia questions help

Dysphagia

Swallowing

Restless sleep

Ileostomy

Today's herbal supplement of interest: Skullcap.

Yet another big setback

ESSEX SUPPORT GROUP QUIZ NIGHT?

How do you know when it's time to start using a wheelchair full time?

Stem Cell - Ataxia

Amazing unspillable mug

Adult ataxia centre

SHEFFIELD AREA

PIP madness

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive