Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,570 posts

All posts for November 2017

atiaxia

i have atiaxia any help

coltclose14

•6 years ago

8 Replies

Genetic Ataxia

My daughter who is 11 years old has been ataxic since she was 13 months old. She attends a neurologist at our local children's hospital. After extensive...

My daughter who is 11 years old has been ataxic since she was 13 months old. She...

Leona89

•6 years ago

10 Replies

Exciting opportunity to take part in FA research

Dear all, We are currently funding a project that is testing a speech therapy treatment in people with FA. Although the project is Scotland-based, it's...

Dear all, We are currently funding a project that is testing a speech therapy t...

SMarley

•6 years ago

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My biggest fear

My biggest fear - will my children/grandchildren get this disease? I have an as yet unspecified type of inherited spinocerebellar ataxia ( my consultant...

My biggest fear - will my children/grandchildren get this disease? I have an ...

discodave66

•6 years ago

28 Replies

powerchair

hi everyone looking 4 reliable powerchair

111sillyme

•6 years ago

11 Replies

Urinary tract infection and chest infections due to infections due to ataxia

Ive been having urine and chest infections on and off for yrs now my Gp prescribed 4 differanrt types to clear it up last time now just a few weeks later it’s...

Ive been having urine and chest infections on and off for yrs now my Gp prescrib...

Guyb

•6 years ago

16 Replies

Ataxia and high white cell count / pneumonia?

Hi All, My brother has ataxia and has been sent to hospital with pneumonia. He also has a very high white cell count and a fever. Antibiotics are not working,...

Hi All, My brother has ataxia and has been sent to hospital with pneumonia. He a...

Larobby

•6 years ago

15 Replies

Ataxia Specialist .John Radcliffe Oxford

Hi. I have today had news from my doctors that a referral has been made for me to see the specialists at the John Radcliffe. Hopefully I will now get a full...

Hi. I have today had news from my doctors that a referral has been made for me t...

Woodturnerman

•6 years ago

5 Replies

The knot in my rope of hope

Firstly, would just like to say thanks to everyone on here for the helpful and sometimes silent support you have given me over the last year. Which has been...

Firstly, would just like to say thanks to everyone on here for the helpful and s...

Mermaidia11

•6 years ago

27 Replies

Ataxia ch2

I'm going to Brighton magistrates on Thursday 23rd October 2017 . And I suffer ataxia ch 2: But I'm not in an week chair. And my balance is only affected when...

I'm going to Brighton magistrates on Thursday 23rd October 2017 . And I suffer a...

Atexia1960

•6 years ago

1 Reply

PIP Shambles

I have just found this site. We need to bombard the Government to show our objection to the way we are being treated.....

I have just found this site. We need to bombard the Government to show our obje...

Woodturnerman

•6 years ago

9 Replies

Stemcell treatment

Hi, Can anyone tell me anything about stemcelletreatment ? Does it actually work on ataxia / SCA on children? I have daughter (3 years) who is diagnose with...

Hi, Can anyone tell me anything about stemcelletreatment ? Does it actually wor...

CorinnaN

•6 years ago

1 Reply

Speech and ataxia.

Hi, I’m new to this site, checking in from Canada. Have been struggling with ataxia for several years, cause unknown, had every test, slowly getting worse....

Hi, I’m new to this site, checking in from Canada. Have been struggling with ata...

Jackieb301

•6 years ago

12 Replies

thanks to Malvern

Thanks to everyone from the Malvern group for advice and your welcome, I've managed to find a group in Droitwich ( its ran by an M.S group but welcomes anyone...

Thanks to everyone from the Malvern group for advice and your welcome, I've mana...

carol31271

•6 years ago

1 Reply

Bladder surgery and Friedreich's Ataxia: Should I?

So let me introduce myself first. Good evening everybody! So let me introduce myself: I am a Friedreich’s Ataxia woman, living alone in an apartment in Zurich,...

So let me introduce myself first. Good evening everybody! So let me introduce my...

Hidden

•6 years ago

8 Replies

Neurologist appointment in the future maybe

Saw a new GP yesterday regarding the rejected neurologist appointment. He wanted to know why I want to see one.... he agreed anyway but told me from a previous...

Saw a new GP yesterday regarding the rejected neurologist appointment. He wanted...

springlove

•6 years ago

3 Replies

Can you fix the holes in your roof!

This is an excellent video, and I urge folks to watch it especially the second half. This is the drum that I am beating until my fingers are raw. Treatment...

This is an excellent video, and I urge folks to watch it especially the second...

sunvox

•6 years ago

9 Replies

Funny feeling in my body

So, I don't know how to describe the title but for a while now I been feeling werid like for the past 2 or 3 years. I'm not sure if this has to do with...

So, I don't know how to describe the title but for a while now I been feeling we...

Imrachel

•6 years ago

5 Replies

Let's Get Personally Physical

Hah, I know what you were thinking . . . :D Anyways, todays tiny bit of information is this study on exercise. The "cliff notes" version is that the...

Hah, I know what you were thinking . . . :D Anyways, todays tiny bit of informa...

sunvox

•6 years ago

5 Replies

UK Disabled Facilities Grant

I’ve recently started to use a wheelchair almost full-time after a series of falls. An occupational therapist has recommended a Disabled Facilities Grant to...

I’ve recently started to use a wheelchair almost full-time after a series of fal...

Poweruser

•6 years ago

8 Replies

Pip

Got my pip assessment date come through really quick end of month at home so worried

Got my pip assessment date come through really quick end of month at home so wor...

xray25

•6 years ago

2 Replies

cutlery for disabled

can anyone tell me of any place i can get knife forks spoons cups etc to help my son he was born with ataxia due to bleeds on the brain. He struggles with...

can anyone tell me of any place i can get knife forks spoons cups etc to help my...

Rachael1973

•6 years ago

7 Replies

Hi. I have Ataxia of unspecified type

I have just found this site and as I have ataxia I would like to join in And hopefully find out more about others problems. I would also like to help where...

I have just found this site and as I have ataxia I would like to join in And hop...

Woodturnerman

•6 years ago

14 Replies

SMI ending!

I have been receiving Support for Mortgage Interest - benefit since 2014 and it is ending on April 5, 2018. Are any of you affected? and what are you doing...

I have been receiving Support for Mortgage Interest - benefit since 2014 and it ...

Amynah

•6 years ago

3 Replies

Help!

I am in a bit of a mess at the moment as I had a fall and broke my right ankle in three places, I was stuck in hospital for six days and kept having to explain...

I am in a bit of a mess at the moment as I had a fall and broke my right ankle i...

DeniseLB

•6 years ago

23 Replies

How do you know what type you are??

I was diagnosed a couple of years ago with severe cerebellar atrophy (ataxia). I’m still awaiting DNA results..will that tell me if I have SCA and which type?

I was diagnosed a couple of years ago with severe cerebellar atrophy (ataxia). I...

AtomicBubba

•6 years ago

20 Replies

Support group in Nottingham or near

Hi, anyone know there is support group we can go and chat with people, my husband has diagnosed with cerebellar Ataxia. I like to get him out and talk with...

Hi, anyone know there is support group we can go and chat with people, my husban...

phelp

•6 years ago

6 Replies

Support Group

Anyone know of any support groups in Barnet?

AtomicBubba

•6 years ago

1 Reply

SCA17- Why is life so cruel sometimes

My mum, aged 46 has just been diagnosed with SCA17 after two long years of going back and forth to doctors and hospitals, given wrong diagnoses, we finally...

My mum, aged 46 has just been diagnosed with SCA17 after two long years of going...

chartibaldi21

•6 years ago

17 Replies

Cerebellar Ataxia

Hi I’m Gemma and I’m 31 years old. About 2 years ago after a lot of hospital visits and scans etc.. I was finally diagnosed with severe cerebellar atrophy...

Hi I’m Gemma and I’m 31 years old. About 2 years ago after a lot of hospital vis...

AtomicBubba

•6 years ago

8 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for November 2017

atiaxia

Genetic Ataxia

Exciting opportunity to take part in FA research

My biggest fear

powerchair

Urinary tract infection and chest infections due to infections due to ataxia

Ataxia and high white cell count / pneumonia?

Ataxia Specialist .John Radcliffe Oxford

The knot in my rope of hope

Ataxia ch2

PIP Shambles

Stemcell treatment

Speech and ataxia.

thanks to Malvern

Bladder surgery and Friedreich's Ataxia: Should I?

Neurologist appointment in the future maybe

Can you fix the holes in your roof!

Funny feeling in my body

Let's Get Personally Physical

UK Disabled Facilities Grant

Pip

cutlery for disabled

Hi. I have Ataxia of unspecified type

SMI ending!

Help!

How do you know what type you are??

Support group in Nottingham or near

Support Group

SCA17- Why is life so cruel sometimes

Cerebellar Ataxia

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive