Hydroxychloroquine Sulphate

[magria]

My consultant has prescriped Hydroxychloroquine Sulphate to treat my Secondary Raynaud's. I would be very grateful if others who have also been prescibed this could give me their 'take' on this medication. Thank you.

[Deby177]

I was put on it for mixed connective tissue disease for aches,pain, fatigue in etc do have severe Raynaud's as well but was never mentioned that it was for it, certainly found absolutely no improvement been on it last 5 years

[hunkyd0ry in reply to Deby177]

Why are you still taking it if it doesn't help you?

[Deby177 in reply to hunkyd0ry]

It eases my joint pain and keeping me on a smooth level just not the Raynaud's

[Carlettejaque]

Hi, my daughter takes this for Lupus. She said it made her feel sick for the first 6 months but then it settled and it has helped her. I wouldn't have thought it would be prescribed for Reynsauds. I would hsve thojght a blood vessel dilator would be better like Viagra or cialis.

[Kittyanto]

Hi I just been put in this medicine as well but is not for raynauds it is for pain more likely arthritis in the connective tissue. Also I am taking Sildelafil for raynauds. Hope it helps.

[SBQ1971]

I have been taking Hydroxychloroquine for about 12 years for my Secondary Raynaud's (Scleroderma with overlap) and it seems to help with my joint and muscle pain. I don't think it is purely for Primary Raynaud's. I have never had any noticeable side effects from it. Best of luck

[positivedaybyday]

Hi,I have secondary Reynauds following Diffuse Systemic Sclerosis with the bones in my hands bending into a fixed position.

I was on Nifedipine to begin with which did help but it was always out of stock so now I take Sidenfil ( Viagra )

Both help the blood flow in your body.

I try to fend off my hands going claw shaped by hand exercises including swimming. The latter has helped tremendously though my hands will never go back to normal.

I hope you find some relief for your hands as these awful diseases run riot.

Xxx

[Krazykat26]

I've been taking Hydroxy since 2017 when I was diagnosed with lupus. At first it caused me some heartburn so I take it with a glass of goats milk which has sorted the heartburn issue. It's important to have regular eye checks with this drug as it can cause problems with the eyes. It's good to have a baseline check before you start it n then have another one every year or so to check eye health.

Some people find that they can't tolerate some brands of Hydroxy as it can cause gastric issues. Zentiva brand tends to suit most people (but not all). If you pick up your prescription and it's Bristol brand I would suggest swallowing it really quickly coz it tastes foul!!

It can also increase sun sensitivity so make sure you cover up n wear sunscreen..wide brimmed hat if needed n sunglasses.

Good luck 🌈😽😽xx

[1CouchPotato in reply to Krazykat26]

Exactly! I was just at my retina specialist today (vitreous tear), and he said Hydroxychloroquine can cause thinning of the retina as well as some other complications. It is important to let your Opthamologist know you are taking it, and get regular eye exams!

[1939-]

I was taking nefedepine for my secondary raynauds then hydroxy…helped with my joint pain but not my raynauds but now Iam taking sedefil (viagra) which helps with the blood circulation in hands.Hope it suits you but Iam taking it since I have breathing issues too.