Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for March 2018

Update on hospital appointment

Hey all so my husband attended his appointment was told not to go on any medication as he would just be battaling with side effects. As he has had this illness...

Hey all so my husband attended his appointment was told not to go on any medicat...

•6 years ago

Ssc and vomiting

I have today vomited last night's undigested dinner (apologies to anyone squeamish). Is this likely to be related to my scc? I'm so dehydrated struggling to...

I have today vomited last night's undigested dinner (apologies to anyone squeam...

•6 years ago

Some good news !!

Soooooooo my case was put in front of the panel again.... with the help and supporting letters from my GP, my Rheumatologist and my MP the welsh assembly have...

Soooooooo my case was put in front of the panel again.... with the help and supp...

•6 years ago

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Cannabis oil

Hey all just wondering if anyone has used this have done a little research and from what I have found it’s a good pain relief helps inflammation and increases...

Hey all just wondering if anyone has used this have done a little research and f...

•6 years ago

Systemic sclerosis and exercise

How to you guys cope with exercise? I am training for London Marathon and struggling so much. I did 5 half marathons last year before I was diagnosed with...

How to you guys cope with exercise? I am training for London Marathon and strugg...

•6 years ago

Cold/numbness feeling in my forearm

About 3-4 centimeters above my wrist I have a cold/numb feeling. I have been up playing games for 6-7 hours that might be why but I'm still worried. Is there...

About 3-4 centimeters above my wrist I have a cold/numb feeling. I have been up ...

•6 years ago

Fish Oil

Hello, is it safe to take fish oil with prednisone with schleroderma?

Hello, is it safe to take fish oil with prednisone with schleroderma?

•6 years ago

stem cell transplantation

Did anyone try stem cell transplantation?

Did anyone try stem cell transplantation?

•6 years ago

Infusion for Raynauds question!

Hello everyone Infusion for Raynauds, will they offer it even if you don’t have digital ulcers? I have severe secondary Raynauds, pain is excruciating, takes...

Hello everyone Infusion for Raynauds, will they offer it even if you don’t have...

•6 years ago

The Worst Thing Happened

I got up yesterday morning to a very cold house and the boiler not working. Raynaud's nightmare, and of course we're deep in snow with icy winds. I have a...

I got up yesterday morning to a very cold house and the boiler not working. Rayn...

•6 years ago

Fingers crossed

Hey all, So mananged to get an emergency appointment, is there anything I should ask for in terms of medication or treatment. I have been so scared as I can...

Hey all, So mananged to get an emergency appointment, is there anything I shou...

•6 years ago

I’m struggling :(

I just want to break down and cry! I’m on no medication because I did not respond to the previous treatment my rheumy gave me! I went to see my GP last night...

I just want to break down and cry! I’m on no medication because I did not respon...

•6 years ago

Kidney

Hello, I just had a sonogram. It showed mild thickening on my kidney wall. I do not have high blood pressure. Anyone had this and if so what was it

Hello, I just had a sonogram. It showed mild thickening on my kidney wall. I do ...

•6 years ago

appointment

Hi, hospital just rang to say no clinic today, the Doctor can not get in. Extra clinic details to follow, so its under the blanket, watching tele for me. Am I...

Hi, hospital just rang to say no clinic today, the Doctor can not get in. Extra ...

•6 years ago

Keeping warm

Hello everybody, I hope you are all keeping warm in this wintry weather. Its a good reason for hiding under the blankets, watching tele and treating ourselves...

Hello everybody, I hope you are all keeping warm in this wintry weather. Its a g...

•6 years ago

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