Kidney

[agnbg0826]

Hello, I just had a sonogram. It showed mild thickening on my kidney wall. I do not have high blood pressure. Anyone had this and if so what was it

[Tollie]

Hello agnbg0826

I had different tests and blood work done and my kidney was actually getting smaller and now it’s gone I have had ultrasound ct scans but my kidney is gone. I hope that is not what’s happening to you. I could feel bad pain on my side and I wasn’t surprised when they told me when I was in the hospital that it was no longer functional. They couldn’t see the kidney it didn’t show up on any test.

[agnbg0826 in reply to Tollie]

So sorry to hear that. How are you managing without it?

[Tollie in reply to agnbg0826]

I have one kidney that is fine the scleroderma has affected my stomach and lungs but no medicine yet

[agnbg0826 in reply to Tollie]

Why aren't they giving you medicine? How long have you had this disease

[Tollie in reply to agnbg0826]

My doctor says it’s nothing they can do the scleroderma just took my kidney as if I never had one they can’t even see it on any type of xray. And there is no medicine for my stomach except acid reflux medicine or medicine to help with the pain. My lungs he said the medicine they use to help with the lungs is toxic so he wants to wait till they hear a crackling noise when they check my lungs my hands and feet all I can do is keep them warm and wear compression gloves and socks and it’s nothing they can do for my face I have what I call facial seizers and my lips are so small they can’t cover my teeth my ears are smaller so is my nose my face is just all pulled back really tight the muscles in my esophagus are almost gone I have a hard time swallowing but no medicine or treatment for this my lower spine is also deteriorating which affect my legs I have know since I was 26 and I am 41 now I can no longer work