Cannabis oil : Hey all just wondering... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Cannabis oil

Kc_1411 profile image
27 Replies

Hey all just wondering if anyone has used this have done a little research and from what I have found it’s a good pain relief helps inflammation and increases appetite

Thanks guys would love to hear if anyone has used this???

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Kc_1411 profile image
Kc_1411
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27 Replies
fibro10 profile image
fibro10

I'm in so much pain 😥😥😥😥

Kc_1411 profile image
Kc_1411 in reply tofibro10

So sorry to hear that I hope you can take something that works and feel better soon x

Kingfisherblue profile image
Kingfisherblue in reply tofibro10

I am so sorry me too. My pain is 10 out of 10 for months. I do know how you are feeling. it is a horrible illness. And what gets me doctors, friends, relations, people, in general, have not got a clue what we are going through every day. Fibro10 take care and I hope the pain starts to go away. the winter months has not helped us. Roll on spring and summer.

Kingfisherblue profile image
Kingfisherblue

I am trying it out for the last few weeks in a capsule form. It does not seem to help me with the pain yet. The reason I took it. You know what it is like for Scleroderma suffers. I have been in that much pain 10 out of 10 for that many months now. Where you cannot sit, lie in bed and just can not get comfortable, push yourself to walk because you just stiffened up. The one thing I noticed within days. I take antidepressants for my depression. They did lift my mood.

SherrySanford65 profile image
SherrySanford65 in reply toKingfisherblue

The cannabis strain “sativa” does wonders for my depression. I use that and sometimes an “indica “ strain to relax and treat pain and nausea. Better than any pill if you get the right strains.

SherrySanford65 profile image
SherrySanford65 in reply toSherrySanford65

That’s not what I wrote. What did you do with what I wrote? How dare you edit my comments!!!

Kc_1411 profile image
Kc_1411

Sorry to hear this, does your doctors offer you anything for the pain? I really hope things get easier for u xx

Kingfisherblue profile image
Kingfisherblue in reply toKc_1411

I am on lots of painkillers but they don't work all the time. Plus the fact I am on that many tablets you just get sick to death of taking more. So this is why I tried the 1000mg Hempseed (Cannabis Sativa) Oil one a day capsules. Off Amazon Lindens make in a green and white bag. Anything is worth a try. It has lifted my depression a bit which is great. After losing my dog of 12 years, Christmas I was that upset. It nearly tipped me over the edge.

Kc_1411 profile image
Kc_1411 in reply toKingfisherblue

So sorry to hear about your dog that must have devistating. I hope u have good support at home, I know all these medicines are not great. Always here if u need to chat XX

fibro10 profile image
fibro10

Thank you all! Still in agony day and night wareing me down 😥

Kc_1411 profile image
Kc_1411 in reply tofibro10

U need to ask the docs for something u can’t live like that I feel for you. Hope they give u good pain relief x

Susanissufferingtoo profile image
Susanissufferingtoo in reply tofibro10

Fibromyalgia? I've had it since my twenties! I found stuff that works no side affects either. It's called CMO i already sid it years ago. It did wonders! With the help if God! Its a hundred bucks but it works! When you order make sure there is a boat logo on the website to make sure you don't buy a knock off. Now i have these 2 new conditions im so new idk what to do. Thinking of ordering it again for these! I'm so stiff I can't even squat down. Hope this helps

Mylreaclairelee profile image
Mylreaclairelee

Hope to get some this week. I wasn't aware that you could buy it in Holland and Barrett.

Kc_1411 profile image
Kc_1411 in reply toMylreaclairelee

No way will definitely get my husband to give this a go xxx

Littleleni profile image
Littleleni

Yes I use it for scleroderma and back spine compression. I make

My own. Two kinds of oil with 100 percent organic coconut oil, one with just cbd for spasms and inflammation and one for the severe pain I get with cbd and thc and that helps pain, inflammation and appetite! This has been my savior! I am not on any other meds except low-dose naltrexone.

SherrySanford65 profile image
SherrySanford65 in reply toLittleleni

Amen. Doing the same thing!

kel55 profile image
kel55

KC, my pet subject is vasoconstriction and vasodilation which naturally includes canabis, heres my findings: while you have active canabis in your body your arteries relax (vasodilate) thus allow more blood to flow and therefore greater body relaxation. BUT as soon as youstop there is a bounce effect. inother words youhav a major vaso constriction meaning that your blood pressure rises and you become tense, therefore greater pain

SherrySanford65 profile image
SherrySanford65 in reply tokel55

I have never gotten high blood pressure from using or not using cannabis. Have you been checked for pulmonary hypertension? 12 percent of people get this with systemic scleroderma. . I did.

Kc_1411 profile image
Kc_1411

Oooh so this is something you would have to continue with??

SherrySanford65 profile image
SherrySanford65

I use cannabis edibles for pain and nausea. Works better than any pill.

SherrySanford65 profile image
SherrySanford65

I use Cannabis edibles for pain and nausea. Works well for both. Better than any pill.

Kc_1411 profile image
Kc_1411

Can someone send me a link as to which product to purchase ? Getting confused so many to choose from

SherrySanford65 profile image
SherrySanford65

I have systemic scleroderma and am 65 years old. I’m nauseated 24/7, and have plenty of pain, but I take cannabis edibles. Don’t know what I’d do without them. The pills don’t work, and the side effects of fatigue cause double fatigue for me. Sativa cannabis gives me energy and keeps me going during the day. It works also as an antidepressant, a decongestant, as well as a pain reliever. I use indica cannabis to relax and sleep. I’ve been able to get off my antidepressant, lyrica and fentanyl patches which is a major achievement for me! I wish you all the best!

Kc_1411 profile image
Kc_1411

Sounds great 👍🏽 will definitely try them x

SherrySanford65 profile image
SherrySanford65

I live in the USA and have been using cannabis for awhile now for pain and nausea due to systemic scleroderma. Really works well. Because of cannabis, I’ve been able to wean myself off lyrica and fentenyl patches. I used cannabis oil (Rick Simpson oil recipe) when I was diagnosed also with lymphoma. Because of that treatment my last cat scan showed that in a year 74% of the cancer cells have disappeared and the rest are dying. Cannabis is truly amazing for so many ailments. I’m thankful it’s legal.

I'm also in the U.S How do you ask for it? And who do ask? I believe you It's good for alot of things probably

SherrySanford65 profile image
SherrySanford65

Susan, what state do you live in? Every state has different laws. We have several dispensaries and placed where drs give you a license and you’re free to buy anything that has to do with cannabis. I would like to talk to you if possible. We could talk on the phone if you want. Let me know.

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