Nifedipine: hello was put on Nifedipine... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Nifedipine

18 Replies

hello

was put on Nifedipine 3 weeks ago 1 tablet 3 times a day 5mg each tab , wow my hands and feet felt better,and my moods felt better (probably because i felt warmer !) But now i cant get any more tablets because of manufacturing problem :( any body else out there with the same problem ??

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18 Replies
ilovedancing profile image
ilovedancing

The last lot I got was in different packet and the tablets were a different colour but the chemist assured me they were the same as the nepifitine I had been taking. This was about 2 weeks ago so my be the problems were starting then. I am going for some more today o will see what i get.

in reply toilovedancing

hi,i do hope you get the right medication today,its so frustrating being told to wait ! good luck

Pipsmum profile image
Pipsmum

Hi I take nifedepine 5 mgs and have been told the problem is short use by dates-July, I think. I said I would take them,rather tgan nothibg, and the pharmacy got me some. They offered me amlodopine as an alternative but they cause me muscle prlems. Good luck!

in reply toPipsmum

hi, i have just looked at my expiry date and yes july but 2016 ? my doc said i have to go without until they come back out again ! :(

leezals profile image
leezals

Hi. I am same as Pipsmum and had the expiry date of July on. The pharmacy did also make up rest of prescription with Adalat (or something spelt like that) which says on leaflet in brackets nifidipene..

Like you Gizmo 75 my hands, feet and mood is much better for being on these tablets :-)

Good luck

in reply toleezals

hi, yes mine are called Adalat so i think the problem might be quite big ? i've been told they can't give me anything else as Nifedipine is only liscenced for Raynauds , so i am trying to make mine last by having 1 a day 5mg ,which to be honest does nothing oh well back to cold hands and feet for a while :(

leezals profile image
leezals in reply to

I am due to order another perscription at end of month, do hope there isn't any problems getting some :-( Don't think people realise how much Raynaud's affect us, I was getting progressively worse and feeling down right miserable until I started on these tablets. Hope you manage to get some sorted out soon

adele69 profile image
adele69

Yes I had problems trying to get hold of them recently.

in reply toadele69

hi, its not good for us all especially as it helps us feel good again ! please let me know how you are getting on .

Riverrat profile image
Riverrat

Nifedipine comes in different mg strengths, check w/your doctor maybe it is just that strength? I take a 30mg tablet daily and it is a slow release. No trouble getting it.

Leenie profile image
Leenie

I also got a different brand this time. I take 3 a day and it helps.

ceegee profile image
ceegee

glad I am not the only one who has problems... I am still owed 38 tablets from my last script and that was 2 months ago. The tablets I have are dated end of june and because of manufacturing shortages I cant get them. I take 15mg a day (Adalat which was the new lot the chemist could get in) and the chemist has advised that they have plenty of the 10mg slow release, so have to speak to doctor to get it changed. that there poses yet another problem..... 5 week waiting for an appointment!!!!!!! luckly I managed to get a cancellation spot for next friday with a doctor I have never dealt with personally

Pipsmum profile image
Pipsmum

Hi

I get the TEVA brand, and having spoken to them, it seems those are the only ones affected. Adalat are no good for me, unfortunately. The thing is, if I reduce my dose, I get the cold problems, but then when I increase again, I get the flushing and headaches for a while. Maybe we should try and get an email address for TEVA and email them individually, if they are the brand you use. It might just make them sort the date problem out. Of course, if it's a quality issue, then we have no chance of getting them. Incidentally, there was a shortage some time ago, maybe a year, and it was only certain distributors who who were unwilling to pay the correct price for them. I think it might have been Boots/Morrisons pharmacies, but I'm not sure.

titanicus profile image
titanicus

This is very interesting because over the past 3 months my chemist has apologised because they are unable to supply me with my full prescription of nifedipine. They have put an IOU for x amount of tablets owing.

If you look on the leaflet that is always provided in any box of medication, you will find Marketing Authorisation Holder and Manufacturer.

It will give the name and address of said Holder, if you put this information through the internet it will provide you with an E-Mail address that you may then use to communicate your concerns to the Manufacturers directly.

Ex4wd profile image
Ex4wd

I take a 90 mg extended release form of Nifedipine daily. I also have seen it come under the names Procardia and Adalat CC and to me they all work the same.

adele69 profile image
adele69

Hi thank you for your comments very usefull. I think I need a stronger dose. My toes have started to swell up and blister agony walking ,

hi everyone , good news ive finally been put on slow release Nifedipene 20mg . There is no problems getting hold of these ! just have to wait for them to get working

galaxie profile image
galaxie

I take nifedipine 10mg twice a day this seems to work for me. My hands are so much better

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