Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2019

Holiday

My wife and I booked a 14 day break in our happy place in Limassol Cyprus ages ago. I am still up for it despite all my new problems. We aren’t ones for...

My wife and I booked a 14 day break in our happy place in Limassol Cyprus ages a...

Hidden

•5 years ago

17 Replies

Plaquenil?

I have been on prednisone for 15 months and am down to 5 mg. I cannot seem to get below that dose without having a flate. My rheumatologist has started me on...

I have been on prednisone for 15 months and am down to 5 mg. I cannot seem to ge...

Sped53

•5 years ago

11 Replies

GP Monitoring

My GP is looking after my PMR does not seem keen to refer me to a Rhummy had PMR 10 weeks not had a blood test since the first one. How often should I have...

My GP is looking after my PMR does not seem keen to refer me to a Rhummy had PM...

sauntergirl76

•5 years ago

31 Replies

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Dr. Put steroids back up.

I have had PMR since Oct 17. I was put on 15 mg of pred. Was in a terrible state as I am also type 1 diabetic but managed after a few weeks to cope and get my...

I have had PMR since Oct 17. I was put on 15 mg of pred. Was in a terrible state...

Kathymilner

•5 years ago

17 Replies

Oh what fresh hell is this?

Hi Every Body, I’ve had standard PMR @ 3 years. Pred sorted it and I am on 1 mg per day. I have these extensor tendinitis problem (tops of feet ACHE)....

Hi Every Body, I’ve had standard PMR @ 3 years. Pred sorted it and I am on 1 ...

whitefishbay

•5 years ago

6 Replies

“I suddenly thought I’d aged”

http://eprints.whiterose.ac.uk/85252/1/WRRO_85252.pdf As per request, sharing again for those who haven’t read this, by Dr Helen Twohig et al.

http://eprints.whiterose.ac.uk/85252/1/WRRO_85252.pdf As per request, sharing a...

Soraya_PMR

•5 years ago

13 Replies

Bit of a bummer!

Hello all, Diagnosed November 18. On pred 15mg then increased to 20mg by GP because of awful pain in leg. Wonderful Rheumy sussed out within minutes that leg...

Hello all, Diagnosed November 18. On pred 15mg then increased to 20mg by GP bec...

Oxford8

•5 years ago

8 Replies

Fatigue and PMR

So many folks on here speak of having extreme fatigue, and I haven’t had any with my (apparently) mild case of PMR. How common is fatigue in PMR sufferers,...

So many folks on here speak of having extreme fatigue, and I haven’t had any wit...

OutdoorsyGal

•5 years ago

85 Replies

Have you had problems with other infections while taking prednisone and/or methotrexate?

I’m on my 3rd course of antibiotics for chest/sinus infection and worried my vacationing immune system is responsible.

I’m on my 3rd course of antibiotics for chest/sinus infection and worried my vac...

Joblow

•5 years ago

7 Replies

I had PMR age 60, resolution after 1 year of prednisone. Now, 9 years later, it’s back.Any others with a long interval between episodes?

First time was after shingles vaccine; resolved and was able to taper off meds. Absolutely no problems for 9 years- thought it was gone for good. This time no...

First time was after shingles vaccine; resolved and was able to taper off meds. ...

Joblow

•5 years ago

20 Replies

Update re:dentist and root canal link to PMR

You might recall my earlier post a few months back about a possible link with root canal treatment and PMR. Whilst nothing can be verified as research is...

You might recall my earlier post a few months back about a possible link with ro...

Lonsdalelass

•5 years ago

44 Replies

Word of Wisdom for those struggling out there.

After living with PMR for 2 years 6 months, and all the ups and downs along the way, one of the things l have learnt is to listen to my body. Let’s be kind to...

After living with PMR for 2 years 6 months, and all the ups and downs along the ...

Gillgetmeoffthemeds

•5 years ago

19 Replies

Hepatitis B and vasculitis.

Has anyone had an acute form of hepatitis b or told by your rheumatologist that you have had hepatitis b in the past? I don’t recall ever having it. Being...

Has anyone had an acute form of hepatitis b or told by your rheumatologist that...

Aleish

•5 years ago

7 Replies

PMR AND CANCER

Hi the experts say that my lung cancer was the most likely cause to bring on my PMR. Which was proved to be right as when a third of my lung was removed it...

Hi the experts say that my lung cancer was the most likely cause to bring on my ...

Snookerball

•5 years ago

14 Replies

Exceptionally bad flare! Advice please

I have written before. Had virus and awful flare 6 weeks ago. Doctor upped pred from 12.5 to 15 mg. I’m just beginning to feel ‘normal’ with some energy...

I have written before. Had virus and awful flare 6 weeks ago. Doctor upped pre...

Pmrmolly2018

•5 years ago

4 Replies

GCA treatment success stories. ARE THEY OUT THERE ?

I want/need to know: If anyone has gone through a year - to a year and a half - perhaps two years of Steroid treatment for GCA and now living...

I want/need to know: If anyone has gone through a year - to a year and a half -...

Blurry62

•5 years ago

19 Replies

PMR, Bursitis, Sciatica, Sacroiliac or Piriformis Syndrome

After being diagnose with PMR a year ago, finding this HU group was truly a blessing as I've attempted to navigate this autoimmune journey. You have all been...

After being diagnose with PMR a year ago, finding this HU group was truly a ble...

colmarin

•5 years ago

46 Replies

Rheumatologist appointment

So I went to a rheumatologist appointment today which had been requested by the rhumy I had seen previously to investigate possibility of periodic fever...

So I went to a rheumatologist appointment today which had been requested by the ...

Trish21

•5 years ago

6 Replies

One of the main reasons I tell very few people about PMR...

I get very frustrated with what my son cleverly terms the "self-appointed lifestyle gurus" who immediately launch into litanies like "oh Don't take...

I get very frustrated with what my son cleverly terms the "self-appointed lifes...

SheilasPMR

•5 years ago

78 Replies

GCA stories - what our symptoms were like

I thought it would be a good idea to have a collection of our own experiences with GCA symptoms before being diagnosed so that when people want to know there...

I thought it would be a good idea to have a collection of our own experiences wi...

PMRpro

Ambassador•5 years ago

69 Replies

Morning headache and sore head and face with PR

Is this normal? Every bone in my face and neck and head hurt when I wake in the morning, the headache goes eventually. Anyone else with PR experienced this?

Is this normal? Every bone in my face and neck and head hurt when I wake in the...

Birdboxinthegarden

•5 years ago

4 Replies

Newly diagnosed with pmr and Gp has suggested alendronate to preserve bone density while taking prednisone. Would prefer diet & excercise.

Having read all I can on the topic it seems the research points to biphosphonates as being superior to diet (including extra calcium & vit D) & excercise for...

Having read all I can on the topic it seems the research points to biphosphonate...

Ann-1

•5 years ago

16 Replies

London Meeting - 15th April

I note Kate's talk will be an update on PMR. Will there be anything of interest to those of us with GCA?

I note Kate's talk will be an update on PMR. Will there be anything of interest...

prunus

•5 years ago

4 Replies

Blocking Members/Deleting posts

I asked a question on a post this morning - have been away most of day and evening and now find the post gone. Don't like this at all! Might well depart...

I asked a question on a post this morning - have been away most of day and eveni...

Nuff1

•5 years ago

35 Replies

Computer job with GCA

Thanks to everyone who answered my question about working on s computer. There were some great tips and suggestions from all you knowledgeable folks. So...

Thanks to everyone who answered my question about working on s computer. There ...

Mstiles

•5 years ago

1 Reply

Lower right arm pain after running, goes away after day or 2

Hi guys everytime I run or go to gym later on my lower right arm has full ache from elbow to wrist on the inside ,its goes away after 2 days ,but after I work...

Hi guys everytime I run or go to gym later on my lower right arm has full ache f...

degsey

•5 years ago

4 Replies

Prednisolone free for two weeks!

So far, so good just passed two weeks of no prednisolone, omeprazole, alendrotnic acid and colecalciferol etc etc. After almost three years of daily...

So far, so good just passed two weeks of no prednisolone, omeprazole, alendrotni...

DevonMichael

•5 years ago

76 Replies

I am new to this site, about 9 m ago I had finally recovered from about 18 months of PMR.

It now seems that it is back with a bang. Just had blood test to try to check. My question is would it have been better to stay on a small dose of...

It now seems that it is back with a bang. Just had blood test to try to check. ...

Dawnint

•5 years ago

5 Replies

Computer job-OK with GCA?

Hello everyone, I’ve just been offered an online educational test scoring job, I’ve done this work before at times. I have GCA/PMR, diagnosed January...

Hello everyone, I’ve just been offered an online educational test scoring j...

Mstiles

•5 years ago

15 Replies

Trying to taper as instructed

Afternoon All, I don’t write much on this site but I read most of the messages and enjoy their content. I’ve been told to taper at 1mg of pred per month, by my...

Afternoon All, I don’t write much on this site but I read most of the messages a...

Graememidsussex

•5 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2019

Holiday

Plaquenil?

GP Monitoring

Dr. Put steroids back up.

Oh what fresh hell is this?

“I suddenly thought I’d aged”

Bit of a bummer!

Fatigue and PMR

Have you had problems with other infections while taking prednisone and/or methotrexate?

I had PMR age 60, resolution after 1 year of prednisone. Now, 9 years later, it’s back.Any others with a long interval between episodes?

Update re:dentist and root canal link to PMR

Word of Wisdom for those struggling out there.

Hepatitis B and vasculitis.

PMR AND CANCER

Exceptionally bad flare! Advice please

GCA treatment success stories. ARE THEY OUT THERE ?

PMR, Bursitis, Sciatica, Sacroiliac or Piriformis Syndrome

Rheumatologist appointment

One of the main reasons I tell very few people about PMR...

GCA stories - what our symptoms were like

Morning headache and sore head and face with PR

Newly diagnosed with pmr and Gp has suggested alendronate to preserve bone density while taking prednisone. Would prefer diet & excercise.

London Meeting - 15th April

Blocking Members/Deleting posts

Computer job with GCA

Lower right arm pain after running, goes away after day or 2

Prednisolone free for two weeks!

I am new to this site, about 9 m ago I had finally recovered from about 18 months of PMR.

Computer job-OK with GCA?

Trying to taper as instructed

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