Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,300 members • 38,031 posts

All posts for February 2018

PMR and carpal tunnel syndrome

Having read a couple of posts today which mentioned Carpal Tunnel syndrome I wondered whether there is any connection with Polymyalgia? I ask because I have...

Having read a couple of posts today which mentioned Carpal Tunnel syndrome I won...

kathleen18

•6 years ago

33 Replies

The Lighter Side: ‘Dear MB…’ Readers’ Letters - You couldn't make it up. Or could you....? ;-)

Greetings Polymarauders and Pred-posers everywhere :-) Well, there’s an old saying: ‘Feedback is a Gift' - and I always appreciate Feedback. Here are a...

Greetings Polymarauders and Pred-posers everywhere :-) Well, there’s an old...

markbenjamin57

•6 years ago

28 Replies

Hi Everyone....

I'm new here but was diagnosed with PMR in May 2017 when I was 50. Once diagnosed I started on 20mg prednisolone reducing to 15 and 12.5 over the next 4 weeks....

I'm new here but was diagnosed with PMR in May 2017 when I was 50. Once diagnose...

funnylee

•6 years ago

19 Replies

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Tooting own horn !!

toot toot. must toot my own horn. My UK publisher has just put up my collection of short stories on AMAZON in both the UK and USA. Paperback (no more...

toot toot. must toot my own horn. My UK publisher has just put up my collection ...

yogabonnie

•6 years ago

52 Replies

Low Carb/High Fat diet discussion on Radio4

https://www.bbc.co.uk/programmes/b09smnhd Just listened to this and found it very interesting, viewpoints from various angles and scientific studies beginning...

https://www.bbc.co.uk/programmes/b09smnhd Just listened to this and found it ver...

Slowdown

•6 years ago

18 Replies

Trauma and illness later in life

Someone posted this link over on the LupusUK forum and I thought you might be interested. It isn't the only contributing factor - if you think hard enough you...

Someone posted this link over on the LupusUK forum and I thought you might be in...

PMRpro

Ambassador•6 years ago

16 Replies

New to pmr

Hi just been diagnosed with pmr and struggling a bit, on prednisolone doesn't seem to work all the time just had bad painful night and getting out of bed...

Hi just been diagnosed with pmr and struggling a bit, on prednisolone doesn't ...

Angelabur

•6 years ago

23 Replies

Achy legs and feet. Too little or too much Prednisone?

I'm nearly two months in, trying to fine tune my Prednisone dose. The rheumy prescribed 10mg, and I was hovering between there and 15 (which is a common...

I'm nearly two months in, trying to fine tune my Prednisone dose. The rheumy pre...

Mahnahvu

•6 years ago

5 Replies

steroid side effects

After just being hospitalized for almost 2 weeks and going through every test the hospital had I am now home and on 3liters of oxygen 24/7 for the first...

After just being hospitalized for almost 2 weeks and going through every test th...

carolpatriarco01

•6 years ago

13 Replies

Pregnenolone

Had anyone been on Pregnenolone to get their cortisol levels up?

Leeleep

•6 years ago

17 Replies

Just my update on 1mg coated Pred

Thank you everyone for your help and advise. I have collected my 1mg coated Prednisolone from my pharmacist, who have now decided to order them for me....

Thank you everyone for your help and advise. I have collected my 1mg coated P...

Marlenec

•6 years ago

18 Replies

TAPER

I checked out he TAPER PLANS. (The ones they “print” out on steroidtaper.azurewebsites.net) My problem with BSR & BHPR is they don’t taper under 5 by 1/2 mg...

I checked out he TAPER PLANS. (The ones they “print” out on steroidtaper.azurewe...

ConventCassie

•6 years ago

13 Replies

I need to rant!

I find this forum invaluable. I was diagnosed with PMR last April. My ESR was high so doctor prescribed 20mg pred as a test for PMR. I wasn't completely...

I find this forum invaluable. I was diagnosed with PMR last April. My ESR was hi...

Louisepenygraig

•6 years ago

14 Replies

Light headed, GCA or steroid reduction?

Trying to reduce below 14mg after 2 years and various false starts, particularly 10 months on coated pred which resulted in random malabsorbtion. Now find that...

Trying to reduce below 14mg after 2 years and various false starts, particularly...

Cally55

•6 years ago

14 Replies

Friend Probably Suffering With GCA (Me again!)

Hello Everyone Thank you all so so much for your excellent help and support. I am passing on all your useful information to my friend which is gratefully...

Hello Everyone Thank you all so so much for your excellent help and support. I a...

ValFF53

•6 years ago

4 Replies

Small increase - great improvement

Following a scare over a possible GCA flare last week, I increased my prednisolone dose from 9 - 10mg - my GP had left this up to me - and I'm feeling much...

Following a scare over a possible GCA flare last week, I increased my prednisolo...

maria40

•6 years ago

35 Replies

Hello from someone new to all this PMRGCA stuff

Hello. I have ust been diagnosed with GCA three days ago on 21 Feb 2018. I'm 58 and male. Usually in good health. My apologies if this is a bit long and...

Hello. I have ust been diagnosed with GCA three days ago on 21 Feb 2018. I'm 58...

Brizzleben

•6 years ago

46 Replies

Tendon deterioration

I have ruptured my Achilles’ tendon and am now in a plaster cast. The surgeon told me that prednisone weakens tendons and they are not as strong. Is there any...

I have ruptured my Achilles’ tendon and am now in a plaster cast. The surgeon to...

Suedeshayes

•6 years ago

49 Replies

The jurys still out in diagnosis of PMR

Hi all I saw Dr Khan at WHH Ashford, private wing on 14 Feb. He was on the fence over whether I have PMR or my OA and Stenosis of lumbar spine causes my pain...

Hi all I saw Dr Khan at WHH Ashford, private wing on 14 Feb. He was on the fence...

Hidden

•6 years ago

8 Replies

Tea and chat Woodbridge, Suffolk - CHANGE OF DATE!

Our next tea and chat meeting has been changed from 1st March to Thursday 8th March 2.00pm at Wyevale Garden Centre, Woodbridge, Suffolk. Hope you can make it!...

Our next tea and chat meeting has been changed from 1st March to Thursday 8th Ma...

Soosie56

•6 years ago

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Too soon to celebrate?

As you all have heard.... I stopped absorbing prednisone for some reason and have been on a quest to find something that works . My rheumatologist has no clue...

As you all have heard.... I stopped absorbing prednisone for some reason and hav...

30048

•6 years ago

23 Replies

Suffers view of causes of PM

Seeing there seems no medical explanation for PM it would be good to pool sufferers opinions. I spent 35 years in the NHS and I had never heard of PM, now many...

Seeing there seems no medical explanation for PM it would be good to pool suffer...

Iannewebb

•6 years ago

80 Replies

Recent publication

A series of articles from “ experts “ looking at different aspects of GCA from pathnogenesis to treatment...

A series of articles from “ experts “ looking at different aspects of GCA from p...

Hidden

•6 years ago

15 Replies

My ESR blood test for GCA is back to normal after 2 months...

Hi everyone, in an earlier post I mentioned that I was diagnosed with GCA last December. At that time my blood test marker was 95 however I had another test...

Hi everyone, in an earlier post I mentioned that I was diagnosed with GCA last D...

JaneEd61

•6 years ago

24 Replies

Basal Cell Growth Removal

Hello, I was diagnosed with PCA/GCA in October, with 7 amaurosis fugax incidents (which I have not experienced anymore since mid November. I am currently...

Hello, I was diagnosed with PCA/GCA in October, with 7 amaurosis fugax inciden...

Pamk1949

•6 years ago

16 Replies

Tumeric

Holland and Barrett have a half price deal on Tumeric supplements. I thought it might interest some of the advocates on here. ( Taken to reduce inflammation).

Holland and Barrett have a half price deal on Tumeric supplements. I thought it ...

SheffieldJane

•6 years ago

5 Replies

Visit to see specialists

Jura1959 Well had to visit the specialist at Nuffield orthopaedic hospital yesterday 22/2/18 got really knowledgeable doctor who had ultrasounds preformed on...

Jura1959 Well had to visit the specialist at Nuffield orthopaedic hospital yeste...

Jura1959

•6 years ago

14 Replies

Friends Probable GCA

Hello Everyone Thank you so much for the advice and support you have given me. My friend is definitely improving. She had the Temporal Biopsy taken last...

Hello Everyone Thank you so much for the advice and support you have given me. ...

ValFF53

•6 years ago

16 Replies

Will I ever feel well again?

Hi everyone not posted for a while, have been struggling with GCA/PMR and steriods. Not sure which the lesser of two evils. Have felt awful and now realised...

Hi everyone not posted for a while, have been struggling with GCA/PMR and sterio...

Kyrenia

•6 years ago

8 Replies

New to GCA

Just got diagnosed with Giant cell arteritis. Have so many questions and feeling scared. Did the pills help? How long have you been on them? Do you get to...

Just got diagnosed with Giant cell arteritis. Have so many questions and feelin...

viamonv

•6 years ago

23 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2018

PMR and carpal tunnel syndrome

The Lighter Side: ‘Dear MB…’ Readers’ Letters - You couldn't make it up. Or could you....? ;-)

Hi Everyone....

Tooting own horn !!

Low Carb/High Fat diet discussion on Radio4

Trauma and illness later in life

New to pmr

Achy legs and feet. Too little or too much Prednisone?

steroid side effects

Pregnenolone

Just my update on 1mg coated Pred

TAPER

I need to rant!

Light headed, GCA or steroid reduction?

Friend Probably Suffering With GCA (Me again!)

Small increase - great improvement

Hello from someone new to all this PMRGCA stuff

Tendon deterioration

The jurys still out in diagnosis of PMR

Tea and chat Woodbridge, Suffolk - CHANGE OF DATE!

Too soon to celebrate?

Suffers view of causes of PM

Recent publication

My ESR blood test for GCA is back to normal after 2 months...

Basal Cell Growth Removal

Tumeric

Visit to see specialists

Friends Probable GCA

Will I ever feel well again?

New to GCA

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