Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for December 2017

should I continue with predinsone?

I am 61 years old, I am taking predinsone for my PMR condition for 18 months already. I tried to get off and I tapered down 0.5 mg every week. when I got...

I am 61 years old, I am taking predinsone for my PMR condition for 18 months al...

jcohend

•6 years ago

11 Replies

Tapering and struggling

Good morning PMR friends, grateful to your thoughts. Ive struggled with taper from 30mg to 12mg since August. I saw the rheumatologist Monday who has advised...

Good morning PMR friends, grateful to your thoughts. Ive struggled with taper ...

CarysL

•6 years ago

11 Replies

Long overdue update on Moms Giant Cell

I have to admit this was a ride I was not sure I could take with my Mom! Some of you will remember my posts of the battle she faced with her diagnosis of GCA.....

I have to admit this was a ride I was not sure I could take with my Mom! Some of...

Joyismami

•6 years ago

17 Replies

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drinking and predisolone

does drinking iager regulary reduce effect of predisolone on pmr i am on 3 mgs from 20mgs in 2 years 66year old male in uk

does drinking iager regulary reduce effect of predisolone on pmr i am on 3 mgs f...

sissymcardle

•6 years ago

22 Replies

Spine

Any one having problems with not only PMR and GCA but now problems with the spine?

Any one having problems with not only PMR and GCA but now problems with the spin...

Skrtjg

•6 years ago

14 Replies

Swelling hands and feet

Hello all, I am a first time poster and have a question. I have had PMR for 3 years now with occasional flare ups when tapering. Currently trying to taper...

Hello all, I am a first time poster and have a question. I have had PMR for 3 ...

ljbrat61

•6 years ago

13 Replies

Legs on fire

I'd be interested to know if any other pred takers have this problem or anything similar, especially if they have found some kind of solution to it. At present...

I'd be interested to know if any other pred takers have this problem or anything...

Marijo1951

•6 years ago

36 Replies

Is it GCA or isn't it?

Hi, I am an otherwise healthy 63 year old woman who recently developed a massive headache! Not only has it lasted 24 days now, I have spots on my temples that...

Hi, I am an otherwise healthy 63 year old woman who recently developed a massive...

Hidden

•6 years ago

33 Replies

Methotrexate/Omeprazole

I have been unable to reduce below 10 mg pred after 5 years. Rheumatologist put me onto methotrexate/follicles acid to see if after some months I could then...

I have been unable to reduce below 10 mg pred after 5 years. Rheumatologist put ...

Mike364

•6 years ago

7 Replies

UPDATE ON PMR JOURNEY

Hello everyone, Started taking pred on 30th September this year after 3 mths undiagnosed. It feels much longer than that, however I am now taking 10mg. Went...

Hello everyone, Started taking pred on 30th September this year after 3 mths un...

Cheshy72

•6 years ago

15 Replies

Disappointing 🙄 I have messed up

Double booked for next Tuesday. I was looking forward to seeing a few of you a Ilkley. 🙄😲 Also a favourite place of mine always had a soft spot for it. A...

Double booked for next Tuesday. I was looking forward to seeing a few of you ...

Rocketronzy

•6 years ago

11 Replies

Tapering Prednisolone

I thought I had done very well tapering down from 60mg to 9mg for the 4th time since 2015. So I went to see the Rheumatologist, after some questioning and some...

I thought I had done very well tapering down from 60mg to 9mg for the 4th time s...

Epimondas

•6 years ago

6 Replies

Tapering prednisolone

I have been trying to get down prednisolone 10mg for years. It seems to get harder no matter how slow I take it. I now get a stuffy heavy sometimes painful...

I have been trying to get down prednisolone 10mg for years. It seems to get hard...

Dimplevegus

•6 years ago

4 Replies

Physiotherapist?

Hi, can anyone recommend a physio or personal trainer in London who is familiar with PMR? Thanks!

Hi, can anyone recommend a physio or personal trainer in London who is familiar ...

skye_blue

•6 years ago

6 Replies

When spellcheck isn't helpful...

Good article in the Press and Journal (Scotland) yesterday, except in the caption, heading and within the article (every time), they referred to it as...

Good article in the Press and Journal (Scotland) yesterday, except in the captio...

allykat

•6 years ago

13 Replies

Poly myalgia-prednisone

Have just been diagnosed as having poly myalgia. Have been told prednisone is treatment of choice. I have been on pred. before with very severe side effects....

Have just been diagnosed as having poly myalgia. Have been told prednisone is tr...

janecm

•6 years ago

8 Replies

Weather or not

Big change in weather over night, yesterday was unusually warm, rain, even thunder, which is strange for this time of year in the U.P. Of Michigan,,,we should...

Big change in weather over night, yesterday was unusually warm, rain, even thund...

daworm

•6 years ago

15 Replies

EMG test not the end of the world

Had an EMG test yesterday to rule out MS. Thanks G-D got good results. I do NOT have MS but probably a very severe stubborn case of Polymyalgia... A day prior...

Had an EMG test yesterday to rule out MS. Thanks G-D got good results. I do NOT ...

mepoly20

•6 years ago

17 Replies

?? Decisions??

Have been down at 10mg for just over 3 weeks now. Fine at first but these last few days have had sore shoulders to varying degrees. Today is bad 😔 Trying to...

Have been down at 10mg for just over 3 weeks now. Fine at first but these last f...

Hollyseden

•6 years ago

18 Replies

Suracon

Have been on steroids for 2 1/2 years and have reduced down to 3mg daily. My pain and stiffness have gradually returned as I reduce and so am feeling depressed...

Have been on steroids for 2 1/2 years and have reduced down to 3mg daily. My pai...

suracon

•6 years ago

14 Replies

Problems Agreeing Taper Plan

Hello, I’m 81, male, and enjoying life (at the moment!!!) – this is my first Post on this excellent Forum. I had an appointment with my Rheumatologist...

Hello, I’m 81, male, and enjoying life (at the moment!!!) – this is my first Pos...

strathearn

•6 years ago

17 Replies

PMR, bad backs and cleaning...

I have just got my very early Chrissie pressy! I have a Roomba 620 iRobot. It is better than a pet... I struggle with my vacuum cleaners - I have a traditional...

I have just got my very early Chrissie pressy! I have a Roomba 620 iRobot. It is...

PMRpro

Ambassador•6 years ago

62 Replies

Still difficulty in tapering

Many thanks to all of you who took the time to reply to my post on tapering, all your advice was most helpful and I learned some new information to bear in...

Many thanks to all of you who took the time to reply to my post on tapering, all...

PatB1948

•6 years ago

2 Replies

Puffy above and below my eyes (help?)

Long time no post. I have had puffiness below my eyes for sometime and related it to steroids. Am increasingly puffy on upper lids now and am aware I am...

Long time no post. I have had puffiness below my eyes for sometime and related ...

IdasMum

•6 years ago

13 Replies

GCA a mystery

Saw the Rheumatologist last week and my confusion abounds. It didn’t help that the original one in April 2014 told me that in 2 years I would be confused...

Saw the Rheumatologist last week and my confusion abounds. It didn’t help that t...

EdithWales

•6 years ago

30 Replies

Oops Iam back to normal !!!???

All ways said I would have fun when I retired GCA had other ideas. Down to 2mg this month only problem is OA rearing it head so needed to do something for me...

All ways said I would have fun when I retired GCA had other ideas. Down to 2mg ...

olive2709

•6 years ago

10 Replies

Still difficulty in tapering

I had reduced from 40mg Pred prescribed for GCA/PMR in May to 15mg towards end of October. I have been trying to reduce to 12.5mg since middle of November...

I had reduced from 40mg Pred prescribed for GCA/PMR in May to 15mg towards end o...

PatB1948

•6 years ago

34 Replies

Newbie!!

I am 71. Three years ago I started taking Atorvastatin as a precautionary measure, I'm assuming they are doing me some good. I broke my wrist Nov 11th 2016 and...

I am 71. Three years ago I started taking Atorvastatin as a precautionary measur...

Hidden

•6 years ago

17 Replies

Gout. PMR

Does anyone know the relationship if any. Got gout on big toe when got PMR. Remission until tapered down to 8 and came back. What to do.

Does anyone know the relationship if any. Got gout on big toe when got PMR. Remi...

Miguel13

•6 years ago

8 Replies

Help

Thank you for all the feedback unfortunately some were to late for appointment but gives me idea what to do next time

Thank you for all the feedback unfortunately some were to late for appointment b...

Christi2

•6 years ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2017

should I continue with predinsone?

Tapering and struggling

Long overdue update on Moms Giant Cell

drinking and predisolone

Spine

Swelling hands and feet

Legs on fire

Is it GCA or isn't it?

Methotrexate/Omeprazole

UPDATE ON PMR JOURNEY

Disappointing 🙄 I have messed up

Tapering Prednisolone

Tapering prednisolone

Physiotherapist?

When spellcheck isn't helpful...

Poly myalgia-prednisone

Weather or not

EMG test not the end of the world

?? Decisions??

Suracon

Problems Agreeing Taper Plan

PMR, bad backs and cleaning...

Still difficulty in tapering

Puffy above and below my eyes (help?)

GCA a mystery

Oops Iam back to normal !!!???

Still difficulty in tapering

Newbie!!

Gout. PMR

Help

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