Posts - PBC Foundation | HealthUnlocked

Administrator•1 day ago

Anyone still keep in contact with a best friend from school?

Friday Fun Question

Administrator•1 day ago

I just watched a very interesting documentary on Netflix called Hack your Health: Secrets of the Gut (or something like that). Scientists discussing the gut...

documentary on Netflix about the gut

I just watched a very interesting documentary on Netflix called Hack your Health...

CeeCee101

•2 days ago

Hi All, I have a question and wondered if anyone had an answer to if they had a similar experience. I just started taking Urso and have been on it now...

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Why would my Alk Phos go up after just starting urso?

Hi All, I have a question and wondered if anyone had an answer to if they had...

Toddyboo

•2 days ago

Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all,...

for some of our newer members

Hi - and welcome! My name is Donna - I facilitate this support group for The PB...

Administrator•2 days ago

What is your biggest fear about having PBC?

Thursday's Thoughts

Hi everybody, I’ve just been told that I should now start ocaliva aswell as urso I’m so worried about side effects after reading up on it, wondering how many...

Administrator•2 days ago

9 Replies

Ocaliva

Hi everybody, I’ve just been told that I should now start ocaliva aswell as urso...

Lena2011

•2 days ago

4 Replies

Liver lesion

Diagnosed with PBC in 2018. After numerous scans doctors have found 18 mm lesion on my liver. They were going to do a biopsy but have now decided to remove...

Diagnosed with PBC in 2018. After numerous scans doctors have found 18 mm lesio...

nunbrook

•3 days ago

PBC Foundation Prof David Jones is with us tomorrow ( Thursday ) at 2pm to answer your #PBC questions. You can join us in our private Clickmeeting room...

Time with the Expert

PBC Foundation Prof David Jones is with us tomorrow ( Thursday ) at 2pm to a...

Administrator•3 days ago

While vacationing last winter, I developed an unbearable itch on my feet. They felt like they were on fire and I was itching so hard I was afraid I’d tear the...

Itch Relief?

While vacationing last winter, I developed an unbearable itch on my feet. They f...

ILik3Pizza

•3 days ago

3 Replies

Wednesday's Word

PPAR drugs - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used...

PPAR drugs - This is a class of drugs used as second line treatment in Urso non...

Administrator•3 days ago

Do you feel anything 'positive' has come as a result of your diagnosis? What would you tell a newly diagnosed patient about being...

Tuesday Tips

Do you feel anything 'positive' has come as a result of your diagnosis? What wo...

Taking time for yourself is so important. We can't care for others when we've got nothing to give of ourselves. We all deserve some 'me' time'. We matter......

Administrator•4 days ago

12 Replies

Monday "ME"

Taking time for yourself is so important. We can't care for others when we've go...

this is from a Canadian PBC Society PBC FACT SHEET (09/02/16) (may vary by lab) ALP Alkaline Phosphatase This enzyme occurs mainly in liver cells next...

Administrator•5 days ago

7 Replies

Understand Your Blood Work

this is from a Canadian PBC Society PBC FACT SHEET (09/02/16) (may vary by lab)...

Administrator•6 days ago

https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB3eulAZZduYdqnytaPjLXB9ZdFhw53LtO0m0MZWIG09DGKjSAU58KK3Gx6FqL1ztOVQvumdzQlbjfVPHG

information about liver transplants/liver cancer

https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB...

Administrator•6 days ago

I know many of you live all around the world. I want to share some contact info with you for certain countries. I have a contact person for Switzerland, US,...

Around the World Contacts

I know many of you live all around the world. I want to share some contact info ...

Administrator•8 days ago

PBC/PSC Seminar

Upcoming seminar....

Administrator•8 days ago

If you knew you couldn't fail, what would you try??

Friday Fun Question

from The PBC Foundation.... Next Thursday we launch a new on-line service, the PBC Community Café, open 9.30-11am UK time every Thursday morning. This...

Administrator•8 days ago

14 Replies

new chat forum

from The PBC Foundation.... Next Thursday we launch a new on-line service, the ...

Administrator•9 days ago

What have you found to be the greatest challenge for you since diagnosis?

Thursday's Thoughts

hepatocyte A hepatocyte is a cell making up the main functional tissue of the liver. Hepatocytes make up 80% of the liver's mass. These cells are...

Administrator•9 days ago

22 Replies

Wednesday's Word

hepatocyte A hepatocyte is a cell making up the main functional tissue of the l...

Administrator•10 days ago

Umecrine Cognition is developing a completely new type of drug for neurological disorders in the brain that can occur as a result of a number of underlying...

Hope for confusion/brain fog

Umecrine Cognition is developing a completely new type of drug for neurological ...

Would anyone be willing to post here when there are events or meetings locally in areas of the UK? I know these are usually part of The Bear Facts. I would...

Administrator•11 days ago

3 Replies

local groups

Would anyone be willing to post here when there are events or meetings locally i...

Administrator•11 days ago

What are some ways you cope with the fatigue? How has the fatigue affected your life overall? What have you found helpful on those......

Tuesday 'tips'

What are some ways you cope with the fatigue? How has the fatigue affected your...

my spouse was at Costco recently and after shopping ate at the food court. Shared a table with another couple. They got to talking. Turns out the man had...

Administrator•11 days ago

4 Replies

interesting encounter

my spouse was at Costco recently and after shopping ate at the food court. Shar...

CeeCee101

•12 days ago

3 Replies

another pharma update

This is in regards to the pharma Ipsen... They are trialing a drug called Elafibranor. It is being used for treatment in PBC, biliary atresia (in children) ,...

This is in regards to the pharma Ipsen... They are trialing a drug called Elafi...

Administrator•12 days ago

What have you done for yourself in the past week? We all need to believe we deserve to take care of ourselves ...both mentally as well as...

It's 'Monday Me'....

What have you done for yourself in the past week? We all need to believe we des...

Administrator•12 days ago

Been feeling really draggy and have had a cold which will not go away for a month. So got a physical. Only abnormality was fasting glucose at pre-diabetes...

Pre-diabetic. Related?

Been feeling really draggy and have had a cold which will not go away for a mont...

Sister65

•13 days ago

5 Replies

milk thistle

has anyone taken milk thistle and alk phos or lft improve? are they any vitamins or supplements that have have been known to help PBC test results? thanks!

has anyone taken milk thistle and alk phos or lft improve? are they any vitamin...

Samanthaann

•13 days ago

I don't want anyone to think that this group is mainly for the newer members who are adjusting to their diagnosis. Anyone who has this diagnosis of PBC, still...

New or old...

I don't want anyone to think that this group is mainly for the newer members who...

Administrator•13 days ago