Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,427 members • 8,106 posts

All posts for June 2024

Tuesday 'Tips'

Who is dealing with brain fog? What are you experiencing? How are you dealing with it?

Who is dealing with brain fog? What are you experiencing? How are you dealing wi...

Administrator•16 days ago

more of Dr. Jones' '2 minutes versions'

from Dr Jones' book - Cholestyramine (Questran) is the first line treatment for the itching. If this doesn't work, then taking Rifampicin is the next line...

from Dr Jones' book - Cholestyramine (Questran) is the first line treatment fo...

Administrator•17 days ago

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Monday "Me"

Oh my, I am so sorry I nearly forgot post this. No excuses... What have you done lately to take care of yourself mentally and/or physically?...

Oh my, I am so sorry I nearly forgot post this. No excuses... What have you d...

Administrator•17 days ago

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Random liver discomfort

Curious if anyone experiences random liver area discomfort. Not pain, just a tender discomfort. Last usually 7 or so hours, then its good. Causes? PBC since...

Curious if anyone experiences random liver area discomfort. Not pain, just a te...

•18 days ago

anybody?

Someone who facilitates another support group is looking for someone from Algeria - or someone who speaks Arabic or French. We just need to connect some folks...

Someone who facilitates another support group is looking for someone from Algeri...

Administrator•19 days ago

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Important from The PBC Foundation....

We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need your help. This is the most important thing the Foundation has ever worked...

We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need...

Administrator•20 days ago

Please Read!

from the PBC Foundation...... We Need You! We are calling for change and your voice must be heard . If you are part of the #PBCCommunity a patient, family...

from the PBC Foundation...... We Need You! We are calling for change and yo...

Administrator•20 days ago

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Friday Fun question

If you could only listen to one song for the rest of your life, what would it be?

If you could only listen to one song for the rest of your life, what would it be...

Administrator•20 days ago

Lichen Planus

Can lichen planus affect your skin ? I do not have anything orally, but this sure look suspicious.

Can lichen planus affect your skin ? I do not have anything orally, but this su...

•21 days ago

Thursday's Thoughts

What - if anything - has been positive about being diagnosed with PBC?

What - if anything - has been positive about being diagnosed with PBC?

Administrator•21 days ago

Wednesday's Word

Urso responder........ Right now the criteria used is that the patients' alkaline phosphatase result is LESS than 1.67 times the upper...

Urso responder........ Right now the criteria used is that the patients' alkali...

Administrator•22 days ago

Tuesday's Thoughts

Why do you think so many of us still have a difficult time making time for ourselves? Why is it so hard to just do something that takes...

Why do you think so many of us still have a difficult time making time for ourse...

Administrator•23 days ago

Dr. Jones' Knowledge

Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book The Definitive Guide for Patients Who...

Several times a week I want to share some of Dr. Jones' statements regarding PBC...

Administrator•24 days ago

It's Monday 'Me'....

What have you done for yourself in the last week or so? How have you taken care of 'you' either physically or mentally lately?...

What have you done for yourself in the last week or so? How have you taken care...

Administrator•24 days ago

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Colesevelam for itch

I have been on finofibrate and rifampcin for my itch but neither helped. My pharmacist told me colesevelam can help. Has anyone here tried it, and was it...

I have been on finofibrate and rifampcin for my itch but neither helped. My phar...

•26 days ago

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