Colesevelam for itch: I have been on... - PBC Foundation

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Colesevelam for itch

Carly92 profile image
6 Replies

I have been on finofibrate and rifampcin for my itch but neither helped. My pharmacist told me colesevelam can help. Has anyone here tried it, and was it effective? I'm at my wits end with incessant scratching.

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Carly92 profile image
Carly92
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DonnaBoll profile image
DonnaBollAdministrator

Hi! I am not familiar with that. I did read on it.... it can have GI issues as many drugs do. If you take vitamins or other certain drugs, there has to be a time space between taking all of these. It can greatly increase your tryglycerides so if you take it, monitor those with your other lab work. I did read in Dr.Jones' book he refers patients often to take Naltrexone if Rifampicin is not effective. You might talk to your pharmacist about this. As I don't know what other medications or health conditions you have, just make sure whatever you do take is compatible with other issues/medications. Did you see the list of itching 'do's and don'ts' I just posted the other day? Might have some helpful hints for you. I remember all too well how awful the itching was for me as well. Take a look at that list I posted..... hope you find something that at least helps in some way.

Carly92 profile image
Carly92 in reply to DonnaBoll

Hi Donna, Thanks for the info. I do space out the drugs, but still not finding relief. Naltrexone seems to have negative side effects so I'm leery about taking it. How do I get to your post about your list?

DonnaBoll profile image
DonnaBollAdministrator in reply to Carly92

healthunlocked.com/pbc-foun......

hope something here helps... I ended up ordering the Calendula lotion online. We do get desperate I know all too well.

DonnaBoll profile image
DonnaBollAdministrator in reply to Carly92

Did you find the post about itching suggestions?

Dexiedog profile image
Dexiedog

hi I’ve been on colesevelam for about 6 months, it’s helped a bit but doesn’t take it away. I have been on a glisten trial for about 6 months also and that drug has really helped but gave me a lot of stomach pain so I’m now off the trial and looking for another option as my itch is back already x

Larrysgirl profile image
Larrysgirl

Hya Carly

I had very severe itching and tried all the usual meds. Nothing worked until sertraline. I take 25mg a day and have had NO itching!!!! It was a miracle. The constant itch kept me from getting any sleep and I was scratching until I would bleed.

hope this helps❤️

God bless, Anni

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