Posts - PBC Foundation | HealthUnlocked

Administrator•6 months ago

A recent ultrasound revealed possible gallstone blocking a bile duct. An MRCP was recommended and carried out a couple of weeks ago although more like an MRI...

Urso and gallstones

A recent ultrasound revealed possible gallstone blocking a bile duct. An MRCP w...

Cressy

•6 months ago

4 Replies

another help for us

This year Metal Health Awareness Week will focus on movement. We here at the Foundation could not agree more, we call it #MovementIsMedicine a walk, a boogie...

This year Metal Health Awareness Week will focus on movement. We here at the Fou...

Administrator•6 months ago

Pouring down rain here most of the morning - glad I don't need to water any plants or vegetables for a day or two. Still dealing with my lower back issues but...

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just checking in...

Pouring down rain here most of the morning - glad I don't need to water any plan...

Administrator•6 months ago

What are some of the aspects PBC that you feel are needed to understand first? Is there something you still need to really learn more...

Tuesday's Tips

What are some of the aspects PBC that you feel are needed to understand first? ...

Administrator•6 months ago

Please share with us what you've done for taking care of yourself this past week or so.... Mental health is just as important as physical...

Monday 'Me'!

Please share with us what you've done for taking care of yourself this past week...

Administrator•6 months ago

A week or so ago someone mentioned they were from Australia. I want to get back to you with the name and email for you to contact Sally Castle CEO.......

Australia contact

A week or so ago someone mentioned they were from Australia. I want to get bac...

Administrator•6 months ago

I'm hopeful that the top of my bucket list can be checked off this evening here in the US. You are supposed to be able to see the Northern Lights several...

Northern Lights!

I'm hopeful that the top of my bucket list can be checked off this evening here ...

I just tried to post pictures of a gorgeous oriole on my feeder as well as some of my flowers. Didn't happen yet... but I'll work on it. Please feel free to...

Administrator•6 months ago

15 Replies

I tried...

I just tried to post pictures of a gorgeous oriole on my feeder as well as some ...

What is your favorite movie? Are you willing to share with us how many times you've seen it? 😀 For me it's Tombstone - loved Val Kilmer in...

Administrator•6 months ago

5 Replies

Friday Fun

What is your favorite movie? Are you willing to share with us how many times yo...

I have for the last 7+ years I have had the privilege of facilitating a support group for those who have been diagnosed with PBC. I can honestly say that there...

Administrator•6 months ago

5 Replies

Don't Underestimate Yourself

I have for the last 7+ years I have had the privilege of facilitating a support ...

Administrator•6 months ago

What just makes you smile?

Thursday's Thought

Have you visited our on-line PBC Community Cafe yet? You can do so by registering and logging in here:...

Administrator•6 months ago

13 Replies

PBC Chat

Have you visited our on-line PBC Community Cafe yet? You can do so by registerin...

MRCP - This is a type of body scan that examines the bile ducts in great detail. It uses magnetic resonance imaging (MRI). Prior to this...

Administrator•6 months ago

5 Replies

Wednesday's Word

MRCP - This is a type of body scan that examines the bile ducts in great detai...

Administrator•6 months ago

Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all,...

Welcome to more of our new members

Hi - and welcome! My name is Donna - I facilitate this support group for The PB...

Administrator•6 months ago

What's the best advice you received when first diagnosed that you would pass along to our newer members?

Tuesday's Tip

What's the best advice you received when first diagnosed that you would pass alo...

This past weekend I did a virtual 2 day retreat on 'Food Freedom". For many years I have struggled with weight and my relationship with food. A huge part of...

Administrator•6 months ago

16 Replies

We Matter

This past weekend I did a virtual 2 day retreat on 'Food Freedom". For many year...

The American Liver Foundation is a proud partner in the Know Your Dose campaign, which is led by the Acetaminophen Awareness Coalition. The initiative seeks...

Administrator•6 months ago

4 Replies

Dosage Awareness

The American Liver Foundation is a proud partner in the Know Your Dose campaig...

Administrator•6 months ago

I hope you can all truly believe that you matter. We all deserve to take time for ourselves to 'charge' so to speak ourselves mentally as well as physically....

it's Monday Me!

I hope you can all truly believe that you matter. We all deserve to take time f...

Administrator•6 months ago

My question this Thursday was " what are your biggest fears having PBC?" The responses from this were, I'm sure, some things many of us had...

please share

My question this Thursday was " what are your biggest fears having PBC?" The re...

Anyone still keep in contact with a best friend from school?

Administrator•6 months ago

10 Replies

Friday Fun Question

I just watched a very interesting documentary on Netflix called Hack your Health: Secrets of the Gut (or something like that). Scientists discussing the gut...

Administrator•6 months ago

16 Replies

documentary on Netflix about the gut

I just watched a very interesting documentary on Netflix called Hack your Health...

CeeCee101

•6 months ago

6 Replies

Why would my Alk Phos go up after just starting urso?

Hi All, I have a question and wondered if anyone had an answer to if they had a similar experience. I just started taking Urso and have been on it now...

Hi All, I have a question and wondered if anyone had an answer to if they had...

Toddyboo

•6 months ago

27 Replies

for some of our newer members

Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all,...

Hi - and welcome! My name is Donna - I facilitate this support group for The PB...

Administrator•6 months ago

What is your biggest fear about having PBC?

Thursday's Thoughts

Hi everybody, I’ve just been told that I should now start ocaliva aswell as urso I’m so worried about side effects after reading up on it, wondering how many...

Administrator•6 months ago

14 Replies

Ocaliva

Hi everybody, I’ve just been told that I should now start ocaliva aswell as urso...

Lena2011

•6 months ago

4 Replies

Liver lesion

Diagnosed with PBC in 2018. After numerous scans doctors have found 18 mm lesion on my liver. They were going to do a biopsy but have now decided to remove...

Diagnosed with PBC in 2018. After numerous scans doctors have found 18 mm lesio...

nunbrook

•6 months ago

6 Replies

Time with the Expert

PBC Foundation Prof David Jones is with us tomorrow ( Thursday ) at 2pm to answer your #PBC questions. You can join us in our private Clickmeeting room...

PBC Foundation Prof David Jones is with us tomorrow ( Thursday ) at 2pm to a...

Administrator•6 months ago

While vacationing last winter, I developed an unbearable itch on my feet. They felt like they were on fire and I was itching so hard I was afraid I’d tear the...

Itch Relief?

While vacationing last winter, I developed an unbearable itch on my feet. They f...

ILik3Pizza

•6 months ago

3 Replies

Wednesday's Word

PPAR drugs - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used...

PPAR drugs - This is a class of drugs used as second line treatment in Urso non...

Administrator•6 months ago