Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for May 2014

do you always have PBC or is it something that you develop later on in life?

some people are diagnosed early in some people later on in life so I was wondering if this is something but you always have but never are tested for until...

some people are diagnosed early in some people later on in life so I was wonderi...

mabbott

•10 years ago

11 Replies

Why do I need to Urso with a meal?

Abigail53

•10 years ago

8 Replies

Probably Cure for PBC will come from Molecular / Cellular / Genetic Research.

http://www.novimmune.com/products/ni-0801.html http://www.medigene.com/products-pipeline/development-projects/rhudex...

http://www.novimmune.com/products/ni-0801.html http://www.medigene.com/products...

Betonarme

•10 years ago

3 Replies

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Is Vitamin D the answer to auto-immune diseases?

"Vitamin D could provide a "miracle cure" for up to 18 auto-immune diseases ranging from multiple sclerosis, diabetes, coeliac disease,........."...

"Vitamin D could provide a "miracle cure" for up to 18 auto-immune diseases rang...

Betonarme

•10 years ago

8 Replies

Alp and cholesterol

what were your levels when you were tested for PBC

mabbott

•10 years ago

3 Replies

What are the chances I will need&get a liver? 27yrs old&scared for my life

Anyone know?

mabbott

•10 years ago

27 Replies

I have recently won my esa appeal. I always got 71.00 every weeks. Do I get any backdated money after winning my appeal or what happens?

Heather17

•10 years ago

2 Replies

Hi again, our doctor advised us that in the face of PBC diagnosis it would be good to have Hepatitis B Vaccination.

Even it's a small chance to catch the HBV he says as an add-on to PBC things would be much worse. Has anyone got also similiar advise from consultant? Is there...

Even it's a small chance to catch the HBV he says as an add-on to PBC things wou...

Betonarme

•10 years ago

5 Replies

Levels??

I just made an appointment with a local Gi....so let bc my alt and ast were elevated. I have horrible nerves and im so scared. What do typical pbc results...

I just made an appointment with a local Gi....so let bc my alt and ast were elev...

mabbott

•10 years ago

18 Replies

Loose bowels on Urso. How long does it last?

Good afternoon from the USA, or night in the UK. I started URSO on Monday ( I take 1200 mgs daily) two in the morning and two at night. I seem to have...

Good afternoon from the USA, or night in the UK. I started URSO on Monday ( I t...

NotorDJP

•10 years ago

14 Replies

What is pbc?

Minnymouse

•10 years ago

9 Replies

Any thoughts??

I am a PBC sufferer and other than horrendous fatigue, I am not too bad. My concerns are that my 20 year old son has been unwell, fatigued, weight loss for at...

I am a PBC sufferer and other than horrendous fatigue, I am not too bad. My conc...

Lisacj

•10 years ago

5 Replies

Has anyone achieved any improvement in any of their symptoms by anything they've done/tried?

Just wondering if anyone has had any relief from itching/fatigue.aching etc from anything other than pain relief urso etc.i apprieciate everyone is different...

Just wondering if anyone has had any relief from itching/fatigue.aching etc from...

cazz22

•10 years ago

30 Replies

I have pbc and for the last few days I have had a lot of pain in my right groin I'm worried that I may have dvt as the pain runs down my leg

Does anyone know what symptoms to look for xxx

sophie666

•10 years ago

7 Replies

PBC & Pregnancy

Hi Everybody, I've jost joined. We're also confronted with PBC since hmmmm...2 Weeks or so....very fresh :(. Since my wife was complaining about some...

Hi Everybody, I've jost joined. We're also confronted with PBC since hmmmm...2 ...

Betonarme

•10 years ago

9 Replies

Hi, I have been told that raised ALT is associated with AIH/PBC overlap and not pure PBC.Does anyone have PBC and have raised ALT? Thanks

I have been on URSO since jan 2014 following positive AMA and raised ALP of 135. ALT has been around 60 for a year and after 6 weeks on URSO came down to 40....

I have been on URSO since jan 2014 following positive AMA and raised ALP of 135....

Mumoftwo81

•10 years ago

28 Replies

We need to get the right information out there!

I was freaked out after my diagnosis of PBC read all the information out on the web as my vast library of books had nothing mentioned and freaked me out more....

I was freaked out after my diagnosis of PBC read all the information out on the ...

Mickey1964

•10 years ago

2 Replies

Biopsy results

I have stage 2 pbc. Surprised that it is not stage 1 but grateful to have it diagnosed at a relatively early stage. Doc says ive had for awhile

I have stage 2 pbc. Surprised that it is not stage 1 but grateful to have it di...

NotorDJP

•10 years ago

5 Replies

Still No Specialist

I have now been waiting 9 months to get another appointment with a Liver specialist (NHS). My usual one, who was very nice, left the hospital I attend in...

I have now been waiting 9 months to get another appointment with a Liver special...

Alley27

•10 years ago

11 Replies

Stressed? I ran across this free online course 'Becoming a Resilient Person - The Science of Stress Managament' and thought I'd share.

Many of us on this forum live with continual stress (I know I certainly do) and I'm considering auditing this free online course offered by edx.org. I...

Many of us on this forum live with continual stress (I know I certainly do) and ...

JennerLayne

•10 years ago

4 Replies

Anyone here have issues with 'falling down' for no reason? (not slipping, or tripping over obstacles --- just going down?)

I've recently experienced a few falls, all of which have transpired quickly. When it happens, I feel as though my leg just isn't there. It's not necessary...

I've recently experienced a few falls, all of which have transpired quickly. Wh...

JennerLayne

•10 years ago

12 Replies

can young people get PBC?

hi all, looking for a little advice. my daughter is 14 and has been complaining for past few months of feeling nauseous and she is itchy.. I have confirmed...

hi all, looking for a little advice. my daughter is 14 and has been complaining...

Hidden

•10 years ago

25 Replies

Not sure why I was put on meds

Everything was in the "normal" range except my mitochondrial antibodies were rather high which seems to indicate high chance of having PCC. As a naturopath I...

Everything was in the "normal" range except my mitochondrial antibodies were rat...

Hidden

•10 years ago

44 Replies

Doctor's appt on Tuesday-Biopsy results

Hello everyone! Haven't been on in a bit, had my Biopsy on April 21 and I will be seeing my doctor on Tuesday to get results. Thought I would have them by...

Hello everyone! Haven't been on in a bit, had my Biopsy on April 21 and I will ...

NotorDJP

•10 years ago

14 Replies

Hi there tried to do an insurance quote for my holiday for 1 week with stay sure insurance - they said £183! Anyone know of a cheap ish one?

Perkywerky76

•10 years ago

13 Replies

What does your tongue look like?

I am a Naturopathic Doctor and was alway told a tongue like mine was sign of liver issues... Never really thought much. Wondering how many of you have the big...

I am a Naturopathic Doctor and was alway told a tongue like mine was sign of liv...

Mickey1964

•10 years ago

11 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for May 2014

do you always have PBC or is it something that you develop later on in life?

Why do I need to Urso with a meal?

Probably Cure for PBC will come from Molecular / Cellular / Genetic Research.

Is Vitamin D the answer to auto-immune diseases?

Alp and cholesterol

What are the chances I will need&get a liver? 27yrs old&scared for my life

I have recently won my esa appeal. I always got 71.00 every weeks. Do I get any backdated money after winning my appeal or what happens?

Hi again, our doctor advised us that in the face of PBC diagnosis it would be good to have Hepatitis B Vaccination.

Levels??

Loose bowels on Urso. How long does it last?

What is pbc?

Any thoughts??

Has anyone achieved any improvement in any of their symptoms by anything they've done/tried?

I have pbc and for the last few days I have had a lot of pain in my right groin I'm worried that I may have dvt as the pain runs down my leg

PBC & Pregnancy

Hi, I have been told that raised ALT is associated with AIH/PBC overlap and not pure PBC.Does anyone have PBC and have raised ALT? Thanks

We need to get the right information out there!

Biopsy results

Still No Specialist

Stressed? I ran across this free online course 'Becoming a Resilient Person - The Science of Stress Managament' and thought I'd share.

Anyone here have issues with 'falling down' for no reason? (not slipping, or tripping over obstacles --- just going down?)

can young people get PBC?

Not sure why I was put on meds

Doctor's appt on Tuesday-Biopsy results

Hi there tried to do an insurance quote for my holiday for 1 week with stay sure insurance - they said £183! Anyone know of a cheap ish one?

What does your tongue look like?

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