I have now been waiting 9 months to get another appointment with a Liver specialist (NHS). My usual one, who was very nice, left the hospital I attend in December 2013. My last appointment was August 2013. It was arranged as shared care between hospital and Gp. If I am unwell my Gp has no idea how to treat me and when I had a virus recently, she asked if I had been given a list of common medications she could prescribe for me. I have overlap AIH/PBC, I also have hashimotos.
I suffer with joint pain (arthritis) and have been in pain with my heels for months now. We resorted to an old fashioned steroid injection (not gold) because I could not walk. It is helping a bit but there is nothing I can take really for pain. Are there any medications we can have for arthritis?
My Gp has written to the NHS trust I am with to find out if there is another specialist who deals with autoimmune liver disease and so far no reply. I do know there is a shortage of staff there in gastro from a friend who works on outpatients. I am considering asking my Gp to refer me to Leeds. I know it would be a long day for me but I need to see someone because I keep getting bad days like today, no energy, can't walk far or manage stairs and my house needs cleaning. I have no help from anywhere financially or physically and am getting so fed up with everything. I feel they have been very latent with my care recently. My Gp is really supportive but she is always concerned that if I were very unwell she could not help me.