Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,001 posts

All posts for December 2012

Anyone had a PLASMAPHERESIS- similar to dialisis. Used to cleanse the blood?

my Gastro has suggested this as my itch is taking over my sanity. it is so bad that i cant sleep. this procedure can cleanse the blood of bile salts that cause...

my Gastro has suggested this as my itch is taking over my sanity. it is so bad t...

•11 years ago

Has anyone had a fibroscan done and know what the scores mean?

I had a fibroscan done almost two years ago but was just discussing it recentlly with my consultant who indicated my reading means I have advanced fibrosis of...

I had a fibroscan done almost two years ago but was just discussing it recentlly...

•11 years ago

Feel much better today, been snacking more but not helping with my mission to lose weight any ideas how I can do this without feeling ill?

•11 years ago

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Been trying to lose half stone but been in bad pain in muscles and back eyes very fatigued do you think it's not eating enough xx

•11 years ago

I've had an AMA test and lots of other tests and all come back negative. Has anybody else had a negative PBC test ?

I'm still getting loads of PBC type symptoms. I ache like crazy every day and feel exhausted, I have severe itching every evening and red marks that appear on...

I'm still getting loads of PBC type symptoms. I ache like crazy every day and fe...

•11 years ago

Neti Pot - Nasal cleansing for Sjogren's, dry nose, allergic rhinitis, sinus problems, colds.

I have found testimonials and tests showing that nasal cleansing (with salty water, for starters at least) can help tremendously with many nose/...

I have found testimonials and tests showing that nasal cleansing (with salty wat...

Cristina_Romania

•11 years ago

Methotrexate...Anyone got any experience with it?

Hi all, I have asymptomatic PBC (positive AMA test) and a month ago the Rheumatolgist confirmed what I had suspected, I have Fibromyalgia. In my follow up...

Hi all, I have asymptomatic PBC (positive AMA test) and a month ago the Rheu...

•11 years ago

Does anyone with pbc ever get dizzy spells the last 2 days I've had a few don't know why xx

•11 years ago

The PBC genetics study!!!!

Hello everyone, hope everyone is doing good, well as good as we can do with this disease!!!!! Anyway im a 41 year old female ,I was diagnosed with this back...

Hello everyone, hope everyone is doing good, well as good as we can do with this...

•11 years ago

Latest hospital visit.

Hi all went to the hospital yesterday and mixed news for me. Scan looking same as it was in May,bloods have stabalised,but was told i now have a gallstone and...

Hi all went to the hospital yesterday and mixed news for me. Scan looking same ...

•11 years ago

Can anyone understand these results!

I've posted previously about possible PBC, turns out my auto immune heamolytic anemia is back and hospital are re-testing regarding PBC, in the meantime I have...

I've posted previously about possible PBC, turns out my auto immune heamolytic a...

•11 years ago

Has anyone with PBC been through the Adoption process?

My husband and I are 8 months into the adoption process and following our medicals, my PBC has been highlighted as an issue. I advised them of my condition at...

My husband and I are 8 months into the adoption process and following our medica...

•11 years ago

Ranting again

I saw the consultant today. It was the head honcho this time and not the same person that I saw last time. My day got off to a bad start because the bus didn't...

I saw the consultant today. It was the head honcho this time and not the same pe...

•11 years ago

my mother was diagnosed nearly 4 years ago. since then shes lost a lot of weight and goes days with out eating. is this normal?

She has been on urso since the diagnosis? Is that part of the disease or a side effect ot the medication.

She has been on urso since the diagnosis? Is that part of the disease or a side...

•11 years ago

Someone slap me please!

I need to stop reading! I need to stop panicking and I need to think positively! I know all this but when I read things all I see is people having...

I need to stop reading! I need to stop panicking and I need to think positively!...

•11 years ago

Delicate

Anyone have mucous in stools.

Anyone have mucous in stools.

•11 years ago

I started on urso about 1 month ago and have noticed I'm gaining weight anyone had this problem or am I eating to much help xx

•11 years ago

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