I saw the consultant today. It was the head honcho this time and not the same person that I saw last time. My day got off to a bad start because the bus didn't show up (icy roads) and it took ages to sort a lift to the hospital. I left the house at 8.30 am and it was about 11.30 befor I saw him. I was exhausted by the time I got in to see him and unfortunately, being exhausted makes me tearful.
He asked about how I was feeling and I described really severe fatigue, problems with concentration and memory and pains in my joints and bones. He said that he has experience of treating 100s of people with PBC and they don't present with symptoms like these - even in the advanced stages of liver disease. So my symptoms are not consistent with PBC and are probably a result of something else. The twin spectres of Chronic Fatigue Syndrome and depression rose again. I think at that point, I just gave up. I've no faith in any of the hospital docs now.
The good news for me (and probably for him and for my GP) is that I only have to go to the hosp every 6 months and I only have to get bloods done every 4 months.
The interesting thing was that he has written to my work telling them that I will be fit to return to work on lighter duties or reduced working hours. He wrote that before he ever met me.