Hello everyone, hope everyone is doing good, well as good as we can do with this disease!!!!!
Anyway im a 41 year old female ,I was diagnosed with this back in August after a year of visiting my GP and basically harassing them with my problems, my blood results were high for over a year, and getting higher every time I went, appart from the GP telling me to stop drinking ( which I'm tea total!!!) being asleep for upto 16 hours a day, joint muscle pains( for many years , but anyway enough of my rambling, the reason I'm writing this is because I received a letter from my hospital asking if I would like to take part in a genetic study to help researches help find more effective treatments for this disease!!! So I'm wondering how many of you have received this letter after your diagnosis or recently, and if your going to take part in the study ? ........I have replied yes, to the study as I feel that maybe they could help more than the specialist do , ie more in depth investigations , staging of the disease, and other conditions related to it!!!!
This site has given me lots of information , and also possible other underlaying conditions which I wouldn't of though was because of the PBC !!!! I olive everyone's blogs , questions and read it about 4 times a week!!!! And would like to say thank you to the website and all it's users !!!!