Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,214 members • 23,384 posts

All posts for June 2024

My symptoms seem to be getting worse

I have had PA for years, it was discovered because I had a mini stroke at 34. Once discovered I was put on B12 injections. After some time my energy came...

I have had PA for years, it was discovered because I had a mini stroke at 34. O...

outlander28

•9 days ago

8 Replies

Humira side effects?!

so as anyone who has read up any of my posts I’ve got frequent urination with blood and bladder pain. Now I’ve been telling my rheumatologist every time I...

so as anyone who has read up any of my posts I’ve got frequent urination with bl...

Gobbozoid

•9 days ago

3 Replies

Frequent urination after injections

Just wondering...I have recently been increasing my injections from 1 monthly, to 2 weekly and now to one weekly. I have noticed with this increase that the...

Just wondering...I have recently been increasing my injections from 1 monthly, t...

EiCa

•9 days ago

4 Replies

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needle sizes

Hello, I’m currently using BD MICROLANCE 3 NEEDLES BLUE 23G X 1" to SI into my thigh, at the Doctors they use an orange needle. Which is best for the least...

Hello, I’m currently using BD MICROLANCE 3 NEEDLES BLUE 23G X 1" to SI into my t...

FlorencePocket-Owl

•9 days ago

13 Replies

B12 and piece of mind. Coming to terms with being sick.

Every time I feel I am dealing with this, something troubles me. As well as low B12 I seem to have had cystitis again recently and am antibiotics, I can’t...

Every time I feel I am dealing with this, something troubles me. As well as low ...

Gobbozoid

•9 days ago

11 Replies

Arthritis and P.A

Today the g.p. has told me that the mri I had shows arthritis in my upper back and neck. He says its likely to be osteoarthritis rather than rheumatoid...

Today the g.p. has told me that the mri I had shows arthritis in my upper back a...

Suesue246

•10 days ago

20 Replies

Abdominal Cutaneous Nerve Entrapment

I have been suffering with bloating, nausea and burning pain from my hip down to my groin, and across my abdomen for over two years. I have seen many...

I have been suffering with bloating, nausea and burning pain from my hip down to...

Chickens44

•10 days ago

4 Replies

New concept

At least to me. I wanted to do a trial of Folic Acid and knew it might be impossible to evaluate the effects as it is summer and I am able to improve by what...

At least to me. I wanted to do a trial of Folic Acid and knew it might be impo...

WIZARD6787

•10 days ago

2 Replies

Anxiety and panic attacks

Hello, I am a newbie... I have been SI every other day for 6 weeks. I had increased anxiety and a panic attack after my last couple of injections so have...

Hello, I am a newbie... I have been SI every other day for 6 weeks. I had in...

Krysagnes

•10 days ago

29 Replies

Too much b12?

As a coeliac I don’t absorb b12 and after much stress with doctors I had the 2wks of loading doses and one every 3 mths with doctor. I pay for an injection in...

As a coeliac I don’t absorb b12 and after much stress with doctors I had the 2wk...

Palum

•10 days ago

9 Replies

Methyl ampoules shipment in hot weather

Hi, I ordered Methylcobalamin from Arnika in Germany and they said that it will be shipped next week. According to the weather report it will be around +30...

Hi, I ordered Methylcobalamin from Arnika in Germany and they said that it will ...

olga67

•11 days ago

8 Replies

Wondering about the possibility of Pernicious Anaemia?

Hello everyone, My B12 is historically low normal and one of my GP’s thinks it could be due to a fast metabolism. However, my mind wont let it rest and some...

Hello everyone, My B12 is historically low normal and one of my GP’s thinks i...

Owl84

•12 days ago

32 Replies

Lump after jab.........

Good morning everyone I have eventually purchased B12 and all the required stuff to SI.......Been having jabs every 8 weeks since 2016..........Going to start...

Good morning everyone I have eventually purchased B12 and all the required stuf...

edeuweed

•12 days ago

21 Replies

Pins and needles in back

Just wanting to see if anyone else has experienced pins and needles in there back? It comes and goes just not sure if it's normal in the back as everything...

Just wanting to see if anyone else has experienced pins and needles in there bac...

gemmacampbell

•13 days ago

4 Replies

Sleep issues and melatonin

Hi everyone, has anyone sound information regarding the use of melatonin with autoimmune disease. I am reading conflicting advice about using it with certain...

Hi everyone, has anyone sound information regarding the use of melatonin with au...

Helliborous

•13 days ago

22 Replies

Update on ferritin testing issue - private vs. NHS results

Hi everyone. Posting as a new post, rather than add to the long thread on my previous post....

Hi everyone. Posting as a new post, rather than add to the long thread on my pr...

KBird01

•13 days ago

2 Replies

scared again. Blood in urine.

So I’ve previously had blood in urine, and urination issues non stop since that time. Approximately 3-4 years ago. I was peeing loads and had sensitive...

So I’ve previously had blood in urine, and urination issues non stop since that...

Gobbozoid

•13 days ago

23 Replies

Low Potassium/High Calcium Caution

Hi Guys I had a mineral check via a hair test and a DNA Methylation report via a mouth swab (corrected 16 June as I had them the wrong way round) as suggested...

Hi Guys I had a mineral check via a hair test and a DNA Methylation report via ...

Wwwdot

•13 days ago

32 Replies

Support Groups

Did you know that we have lots of active support groups both online and in person. After a quiet period during lockdown restrictions, many of our volunteers...

Did you know that we have lots of active support groups both online and in perso...

PAScomms

•13 days ago

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Medisave checkout problem-help needed

how do i get past this does anyone know?

Doeyditdot

•13 days ago

8 Replies

Phlegmy chest and snotty nose - B12 reversing symptoms??

Hi all, I recently completed my 6 loading doses and am 4 weeks away from my 12 week top up. I am glad to say that most of the B12D issues have subsided if not...

Hi all, I recently completed my 6 loading doses and am 4 weeks away from my 12 w...

Sailing63

•13 days ago

1 Reply

Am I reversing out?

I feel like death. Every other time when I’ve been put on B12, twice before I noticed a gradual improvement in all my symptoms. My gp gave me loading doses...

I feel like death. Every other time when I’ve been put on B12, twice before I no...

Gobbozoid

•13 days ago

4 Replies

Problems with Pascoe B12

Hi, I live in Holland and SI EOD. I have a prescription for Hydroxocobalamin HCL twice a week and the rest I order from Germany. (Rotexmedica/Panpharma)....

Hi, I live in Holland and SI EOD. I have a prescription for Hydroxocobalamin HCL...

olga67

•13 days ago

2 Replies

Active B12 29 (37.5-150)

These are my student daughter's results. She is at uni in Edinburgh and struggling to find g.p. practice to take her on. She has an iron panel coming too but...

These are my student daughter's results. She is at uni in Edinburgh and struggli...

AKatieD

•14 days ago

12 Replies

Antibiotic for UTI

I have been prescribed nitrofurantoin from my surgery for my UTI. Bearing in mind they don’t acknowledge that I have a b12 deficiency, should I be taking...

I have been prescribed nitrofurantoin from my surgery for my UTI. Bearing in mi...

Chickens44

•14 days ago

11 Replies

Dr Klein Podcast Interview

Hi, an interesting podcast of Dr Klein being interviewed by two ladies. In case some have not heard it....

Hi, an interesting podcast of Dr Klein being interviewed by two ladies. In case ...

B12again

•14 days ago

1 Reply

still v tired

hi All. I have PA. I SI weekly , take iron and multivitamins which includes folate . My bloods seem ok . Yet most of the time I’m still exhausted. I miss the...

hi All. I have PA. I SI weekly , take iron and multivitamins which includes fola...

lifegems

•14 days ago

17 Replies

needle size for IM injection?

just wanted to know what needle size I should be using? I am not sure what size the gp was using and was concerned the ones I am using may be a bit to short. I...

just wanted to know what needle size I should be using? I am not sure what size ...

Gobbozoid

•14 days ago

19 Replies

PA what GP should have told me and I have only just found out myself due to not being treated with all my other abnormal results deficiency

please help me I have B12 + folate + ferritin deficiencies but being given B12 injections should have been 12 weekly but was more 20 weeks plus they would not...

please help me I have B12 + folate + ferritin deficiencies but being given B12 ...

mjm1929

•15 days ago

3 Replies

Warfarin and B12 injections?

Could anyone tell me if oral anticoagulation treatment has caused them any issues with B12 injections please? My father is on Warfarin for long-standing...

Could anyone tell me if oral anticoagulation treatment has caused them any issue...

bookish

•15 days ago

14 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2024

My symptoms seem to be getting worse

Humira side effects?!

Frequent urination after injections

needle sizes

B12 and piece of mind. Coming to terms with being sick.

Arthritis and P.A

Abdominal Cutaneous Nerve Entrapment

New concept

Anxiety and panic attacks

Too much b12?

Methyl ampoules shipment in hot weather

Wondering about the possibility of Pernicious Anaemia?

Lump after jab.........

Pins and needles in back

Sleep issues and melatonin

Update on ferritin testing issue - private vs. NHS results

scared again. Blood in urine.

Low Potassium/High Calcium Caution

Support Groups

Medisave checkout problem-help needed

Phlegmy chest and snotty nose - B12 reversing symptoms??

Am I reversing out?

Problems with Pascoe B12

Active B12 29 (37.5-150)

Antibiotic for UTI

Dr Klein Podcast Interview

still v tired

needle size for IM injection?

PA what GP should have told me and I have only just found out myself due to not being treated with all my other abnormal results deficiency

Warfarin and B12 injections?

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