My dad has parkinsons and I have read that most patients with a parkinsons diagnosis have low b12. My dad has been taking cyanocobalamin for years so he must have had a low reading at some point. It frustrates me that this hasn't been reviewed.
When we arrange a test, will he be required to stop the cyanocobalamin for a while? How long is best to get an accurate reading?
Does anyone have any knowledge of b12 deficiency and parkinsons? It would be great if we could improve some symptoms with b12 injections.
We've managed to get my mum b12 injections via GP and that's thanks to this group and the thyroid group and all the helpful info available. I'm very grateful.
Thank you 😊
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RedOne1
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It really is short sighted. The more I learn about b12, the more horrified I am at the lack of knowledge or care by medical professionals. I'm very pleased that your mum can continue with the injections. I will be making my mum aware that they shouldn't re-test once started treatment, as they want to review it in 9 months. We'll go by symptoms hopefully.
I think my dad has a lot of symptoms of b12 deficiency. He also has rheumatoid arthritis and it's difficult to know which symptom is from what. I do think its worth a trial of b12 though so I'll see what we can get sorted, noting that he is already supplementing. Thank you 😊
There is some evidence suggesting a link between vitamin B12 deficiency and Parkinson’s disease. Several studies have indicated that individuals with Parkinson’s disease often have lower levels of vitamin B12 compared to the general population. This deficiency could exacerbate some of the symptoms associated with Parkinson’s, such as cognitive impairment and peripheral neuropathy.
Oral results may appear high but it depends on whether it is being absorbed or not.
The blood is in a constant state of renewal. The complete turnover of the entire blood supply, especially focusing on red blood cells, would roughly take about four months. However, the renewal process is ongoing and dynamic, with cells being produced and removed continuously.
If the concern is specifically about clearing out supplemented B12 from the system to accurately measure natural levels, the focus should be more on how quickly supplemented B12 is metabolised and excreted rather than the complete renewal of the blood. A waiting period of one to two weeks after stopping B12 supplements is usually sufficient to get a more accurate blood test result for B12 levels. Some would advocate waiting four months. But that puts the focus on red blood cells rather than how quickly the B12 is metabolised and excreted and four months is a long to needlessly suffer.
I actually believe it could be related however I have found a strong correlation in the medical journals with b1 deficiency and parkinsons. Sadly, there are tests for b1, but none are even close to being accurate so the only thing to do is see if you can get clinical results by dosing with b1. High dosing B1 is trickier than b12 because it requires careful progression into higher doses and absolutely necessary to suppment other vitamines as b1 metabolism requires things like magnesium and others to process and those will get depleted if not properly supplemented along side the b1.
A clevland clinic PHD/MD figured all this out, Dr Longsdale and Elliot Overton took his information and started relaying it applying it with great results.
I bought his guide to high dosing b1. I have had great results from it although never took the time to dose higher than 250MG.
He explains that it is important to get the right form of b1 and what to supplement with it. the symptoms that may occur with high dosing and why (as in not supplementing the covariants like magnesium along with it), which covariants you will need and how to ramp up. He also has a forum on facebook.
At one time, I suspected I was in early stages of Parkinsons due to various neuro symptoms including tremors but this was ruled out.
My neuro symptoms eg restless legs, periodic limb movements, muscle twitching, dystonia type symptoms suggested I was low in dopamine. B12 is a co-factor in the production of dopamine and other neuro transmitters such as seretonin and low dopamine levels are a feature of Parkinsons.
Parkinsons disease is mentioned in Sally Pacholok's book "Could it Be B12".
If you search online for "Sally Pacholok B12 deficiency slide show" you should find a presentation she gave some years ago to an Anti- Ageing conference.
I also think it's mentioned in Martyn Hooper's book " What You Need to Know about Pernicious Anaemia and Vitamin B12 deficiency".
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Shall I start taking 1000mcg lozenges, or should I give it a bit longer? 
Link to German company that supplies Hydroxocobalamin injections
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