B12 injections: Hi,I've been diagnosed... - Pernicious Anaemi...

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B12 injections

GranolaLover60 profile image
5 Replies

Hi,I've been diagnosed with PA since 2021. I was on loading doses, then 3 monthly. This didn't agree with me and I was exhausted so I was moved from 3 months to 6 weeks. I was still finding myself wiped after 4 weeks ish so was moved to 3 weeks.

During my 3 weekly treatment I began getting facial tingling. This was really intense so I dropped my B12 down to every 4 weeks.

At my last B12 as soon as I was injected I got facial flushing, a really horrible head rush and high heart rate (it went up to 145) for 10 minutes. It was awful. After it passed I don't remember too many other unpleasant symptoms.

However, I'm worried that it will happen again so have postponed my B12 to 5 weeks this time. I'm due it tomorrow but I'm so anxious. I'm feeling extremely tired though so I'm certain it's B12 but are those side effects common? I've never had them before and it scared me.

My folate is around 4.2 (pretty low) and my potassium is 3.9 so I'm taking 400ug folate and drinking coconut water daily. Should I keep waiting until my numbers go up for folate and potassium or should I just get it done?

Thank you!

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GranolaLover60
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5 Replies
Nackapan profile image
Nackapan

Just get it done.Your symptoms sound like you need it.

I've had that reaction you've had .

It passed quite quickly.

No idea why.

Probably the rush of B12.

Just ask for it to go in slowly.

Sit down for z whole afterwards and have a drink.

Sometimes I even take a pain killer before I go . As can give me s headache.

Also ask what brand you are given.

I do every time .

Additives can differ.

Keep notes.

Technoid profile image
Technoid

Coconut water is overrated, high potassium foods are more worthwhile, which will in any case have health benefits besides their potassium content.

There is no reason for concern with potassium at 3.9 as potassium is an electrolyte and thus levels in the blood are extremely tightly controlled and unlikely to waver with diet anyway. The following video may help to explain. Watch from 12:34.

m.youtube.com/watch?v=4ahW3...

Your folate is low so keeping going with the folate supplementation is wise, folinic acid might be something to consider.

You could consider some allergenicity testing for the B12 injection - reactions can sometimes happen, maybe another brand or form can be tried.

For severe deficiency or neurologic symptoms, much more frequent B12 injections would likely be needed for some time.

Tingling or increased nerve sensations (including severe nerve pain where nerves are damaged), pins and needles etc, would all be normal to feel when correcting a severe deficiency.

Bellabab profile image
Bellabab

You say :

"At my last B12 as soon as I was injected I got facial flushing, a really horrible head rush and high heart rate (it went up to 145) for 10 minutes. It was awful. After it passed I don't remember too many other unpleasant symptoms."

This sounds like a normal adrenalin response to being jabbed with a sharp needle. Its probably that you are noticing things more and/or that your nervous system is working better.

B12life profile image
B12life

what type of b12 are they using?

Hydroxocobalamine, cyanocobalomine or methyl?

OldmanD profile image
OldmanD

I;ve noyt hand facial tinging but the first loading doses I got played havoc inside my head for maybe the first 3 or 4 . . . . . . Wifey actually done the driving. . . . . . Conclusion. . . . . My head was returning to normal. . . . . . It all stopped. . . . . . . . People often talk about steroids keeping ye up all night bouncing. . . . . Well I didnt stay awake all night but I was full of it whatever that be for those 2 weeks. . . . . . . Weeks after I had went backwards again and then a big decision and a some DIY I had not comtemplated before. . . . . . I did ask for more and did get 3 more jabs one week apart. . . . . . Roller coaster and really showed me I needed this stuff. . . . . . . Any of it. . . . . Hydroxo, cyano anything. . . . .

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