Why I now use Methylcobalamin rather ... - Pernicious Anaemi...

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Why I now use Methylcobalamin rather than any other form.

WIZARD6787 profile image
14 Replies

I reviewed the medical field's rationale for prescribing whatever form they preferred and found the rationale based on retention times as established by the same method as medication with no regards to effectiveness of healing and therefore not credible. Same with amounts and frequency. It suits them and they do not feel a thing.

I did notice that Methylcobalamin was sometimes thought to cause side effects and I made the assumption this was likely from healing and or under supplementation.

I have done trials of Cyanocobalamin, Methylcobalamin, Hydroxcobalamin and Adenosylcobalamin and combinations of two at a time.

Methylcobalamin causes the most effect in my experience. It is not at first wonderful. Eventually it is more positive than any other forms for me.

I am aware that others report far different experiences than I do and trust their reporting of those experiences. I do not trust their conclusions as to why, what healing is possible or comparative analysis.

There is not enough legitimate knowledge about treatment for me to follow exclusivity. Pretty much I want to heal as much as possible and am not limited to the results possible by following or just finding what works.

I at one time considered if one form was superior to another than that would be known. I came to reject that concept as invalid.

My conclusion to self treat with Methylcobalamin is not based on robust experimentation. My conclusions are more valid than the “experts.” Low standards and poor results.

I heal and understand what form I use now may not be the best as my body heals over time.

I do not expect any legitimate information to come from any future study. If that were to happen that would be great. I am glad I did not wait and depend on that. There is no study of the effectiveness or efficacy of the different forms, value of more frequent injections or efficacy of amounts. Current treatment is effective for those who make a living treating.

The only protocol that I know of that is designed utilizing symptoms is based on work done by Chandy 30 + years ago and was then limited to every other day 1mg hydroxocobalamin. The cause of this limitation is unknown and not legitimate if healing is the goal. The results of that protocol are not effective for an unknown percentage of people and the reasons for those results are not known nor does it matter with my method of designing self treatment.

Currently injecting 5 times a day including setting an alarm at night. 1.5 mg methylcobalamin and 0.5 mg adenosylcobalamin. 100 mg of B6 in the form of P-5-P.

I do accept the recent study done by nutritionists with regards to B12 upper limit and accept the recent study by NIH who reviewed the nutritionists work on June 16, 2023. If I follow the nutritionist work I suffer the pain of peripheral neuropathy. I experience B6 deficiency as evidenced by the symptoms eliminated by supplementation and returning if reduced.

I will soon start a trial eliminating adenosylcobalamin. I want to do more study before I decide if I want to substitute with methylcobalamin. Study for me is not limited to research of other’s work, conclusions or results.

Note: All forms "work" for me.

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WIZARD6787 profile image
WIZARD6787
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14 Replies
B12life profile image
B12life

thanks for this info. It's very interesting and may e I'll try and switch. Where do you get your methyl?

WIZARD6787 profile image
WIZARD6787 in reply to B12life

Oxford.

ACritical profile image
ACritical in reply to B12life

Oxford but you also need to order sterile saline ampoules from somewhere else( I get mine from Germany) to mix which can be a bit of a hassle . I prefer ready to use vials. The Oxford Methylcobalamin comes with instructions how to mix and where to order the sterile saline ampoules.

B12life profile image
B12life in reply to ACritical

Acritical, where do you get your ready to use?

ACritical profile image
ACritical in reply to B12life

I don’t…. I would prefer… so follow Wizard8767’ s suggestion.

Noelnoel profile image
Noelnoel

For how long have you been injecting 5x/day and will you continue indefinitely? Not that it would be relevant but it would be interesting to know your lab numbers. Would be also interesting to see your GP’s face should you decide to tell her/him

WIZARD6787 profile image
WIZARD6787 in reply to Noelnoel

I think it was last November after reviewing the scientific rationale for frequency, amount and form to be based on retention times of medication and not valid although accepted.

It has been 14 weeks since I started the 5 times a day including setting an alarm to inject at night so as to not have a time when my body did not have enough B12 to continually heal. This is based on my understanding of the error in the design of treatment protocols.

My tests are all within range now. My B12 is >2000 and has been since I started self treating for 3+ years.

Speaking with a GP about B12 would only serve to annoy me. They will not be able to emotionally accept they are not as wonderful as they delude themselves to be. It is not unlike those on this forum who need to believe all I can do is find what works for me and do not have the ability to think.

As far as what I will do in the future that will be determined by my study which includes more than reading what others believe/accept as factual.

I did skip an injection in the night in error and that caused a 24 hour minor downturn.

I am 14 days into my last design which was an improvement. Being honest I am sick of all this work and not up for creating another design. I am going to track the bobcats I came across this winter and see if they have any direction for me. 🙂 As I write perhaps they came across me. 🙂

B12life profile image
B12life in reply to Noelnoel

Oh heyall no! I am never telling any GP what I do, except my fav one who gets it. The rest are idiots and freak out if they know I even inject once a week. But I also get that you making a very sarcastic comment here in which case cheers!!!

As long as the kidney and liver function were good before any injections. B12 won't cause kidney or liver issues. Now if there was a prexisting liver or kidney issue before injections, according to medical journals, THAT IS THE ONLY time b12 is toxic.

That being said, do what clinically works. We are all different.

Cheers!

Noelnoel profile image
Noelnoel

And will will you continue indefinitely because 5x/day is a lot of inconvenience I would imagine

WIZARD6787 profile image
WIZARD6787 in reply to Noelnoel

It is not as inconvenient as I anticipated. Any improvements to my future self treating will be based on information that I don't have yet and study I have not done yet.

The results of the healing of my neurological system are well worth the inconvenience. Definitively.

Noelnoel profile image
Noelnoel

The results of the healing of my neurological system are well worth the inconvenience

I’d be very scared to advocate that my son or husband injected so frequently so thank you for being our guinea pig but I admire your persistence in your quest for information

WIZARD6787 profile image
WIZARD6787 in reply to Noelnoel

Not a guinea pig in any sense. Rational thinking prevents that!!!

It was more about doing the work to understanding much of the information accepted is based on poor conclusions than persistence.

I admire success although I understand that many accept mediocrity. I do not admire those in the medicial field that do not treat successfully but are successful in being followed. "It must be true if enough people believe.

Although there is a problem with medicial personnel that reuse to use guidelines. That is only part of the issue as the guidelines do not successfully treat many people.

I am non-sheeple comes to comes to my mind if there has to be name calling.

WIZARD6787 profile image
WIZARD6787 in reply to Noelnoel

I do not give advice rather I share my experiences. I also have stopped completely taking advice and completely evaluate information and shared experiences. As best as I can with whatever abilities I happen to possess.

That being said it is possible that more frequency without increasing the amount MAY be more effective.

As an example 0.5 mg every 12 hours MAY be more effective than 1mg every 24 hours.

Just a thought.

B12life profile image
B12life in reply to Noelnoel

I totally agree with you!! Thanks wizard!

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