I am new to this sight . Having B12 every 10 weeks since 2019 .. took 2 years to feel better and lose majority of symptoms. Diagnosed with IFA deficiency.. why do I get periods when I feel well and then get a dip even after a B12 jab ? I am wondering if I should be taking folate (folic acid) ? I also get a dull ache in right leg and hip .. waiting for an endoscopy on NHS , I was concerned re stomach cancer after reading the concerns online and consultant agreed .. product called ‘symprove’ has been fantastic and stopped the diahorrea and bloating , not cheap but worth it .
feelings of palpitations in torso and... - Pernicious Anaemi...
feelings of palpitations in torso and faint ..
Hi Altinkum50,
Please make an appointment with your GP and discuss with them. They can order blood tests. It may be something simple like Iron Deficiency Anaemia (IDA) and they can check your folate too.
Great to read about Symprove being effective and you are having endoscopy to investigate your concerns.
You may have a dip because when we feel well we have a tendency to forget that we have a chronic illness. So, we can over do it and have a ‘crash’ or a blip. P.A./B12D is an energy limiting illness and people need to be reminded of it. It does include the Medical profession.
I went for one injection and the nurse told me that I would be running marathons next. I quietly chuckled.
Best wishes.
🐳
what was your b12 level before your first ever injection?
Once you inject the serum b12 test is no longer accurate, thus pointless unless you stop injections for a min of 3 months. At which point it isn't worth it as our symptoms will just come back and you will have to start healing again which takes a lot of time.
Thus my recommendation is to start daily or EOD - every other day injections. If the doc won't do it, get the supplies yourself.
Additionally take a b-multivitamin.
Once you get up on the b12 say, 6 months. hit us up for more tips on other b vitamines to take that may help in addition to b12. I think it's best to try one thing at a time.
Also, send us any recent blood labs, be sure to include the ranges as each lab may have different ranges; without the ranges we can't determine what the levels mean.
We are not doctors, but have a lot of experience on what may help. esp when docs drop the ball and won't listen or ignore (for whatever reason).
So it doesn't hurt to get tips on things that might look off from a clinical perspective (experience in heuristic approach )