Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,211 members • 23,379 posts

All posts for January 2024

Hypothesis XIII

That there is a point where if B12 is injected at a certain amount and frequency that any increase in amount or frequency will have no effect....

That there is a point where if B12 is injected at a certain amount and frequency...

WIZARD6787

•6 months ago

1 Reply

”Reduced b12” - panicking

Hi everyone, I must confess, about 3 months ago, I didn’t even know what b12 was! But I can only apologise for the essay you’re about to endure. My story...

Hi everyone, I must confess, about 3 months ago, I didn’t even know what b12 w...

WanderingCrust

•6 months ago

43 Replies

I am new here - concerned about recent B12 blood test

Hello I am new to this forum but a long time member of Thyroid UK who basically saved my life 13 years ago. I am 70, have mild COPD, and until recently have...

Hello I am new to this forum but a long time member of Thyroid UK who basicall...

sheenah

•6 months ago

3 Replies

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high active B12

Hi, This is an extension from my previous post which has all the history on it. I think I’m going to email my haematologist for a referral to gastro re my 2...

Hi, This is an extension from my previous post which has all the history on it....

Fluffyone

•6 months ago

4 Replies

stomach acid

happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips...

happy new year everyone I was diagnosed with PA approx 9yrs ago with some atro...

lifegems

•6 months ago

23 Replies

Supplement Help Please

Hello, First time writing and being on the forum so I apologise if this question has asked before. I have been diagnosed with PA for just over a year and a...

Hello, First time writing and being on the forum so I apologise if this questio...

Barley_84

•6 months ago

10 Replies

Levothyroxine and B12 possible interactions

I have been taking Levothyroxine for many years and believe that the symptoms I experience for both too much or too little Levothyroxine are identical. When I...

I have been taking Levothyroxine for many years and believe that the symptoms I ...

yorkshiregirl4

•6 months ago

10 Replies

Money saving

I’ve never posted on here before as I’ve been really lucky with my surgery and treatment of my B12. However, on 05/01/24 I was informed that this would be my...

I’ve never posted on here before as I’ve been really lucky with my surgery and t...

raye-12

•6 months ago

25 Replies

Nerves

Hi been taking b12 now 3 years I inject every 4 weeks over the last couple of months notices tingling pain in feet and knees and arm and tightness in my...

Hi been taking b12 now 3 years I inject every 4 weeks over the last couple of mo...

Mozza127

•6 months ago

13 Replies

advice please

I posted before my trial off B12 and now I’m posting recent bloods and diary of symptoms. I hope that someone can look over them to help me. I fear that they...

I posted before my trial off B12 and now I’m posting recent bloods and diary of ...

Fluffyone

•6 months ago

48 Replies

What is supplies run out?

Hello all. I use Methylcobalamin and was wondering if the place I buy mine from goes out of business, what I would do. I've tried finding a backup or two, but...

Hello all. I use Methylcobalamin and was wondering if the place I buy mine from ...

MrJustatip

•6 months ago

11 Replies

Vitamin B12 produced by gut bacteria modulates cholinergic signalling

I simply can't help but think that this has some relevance to Pernicious Anaemia. But goodness knows what! And the lack of access precludes reading it all to...

I simply can't help but think that this has some relevance to Pernicious Anaemia...

helvella

•6 months ago

18 Replies

Tracey Whitty...

Hi All, I have seen several references to Tracey Whitty and Folly Lane, but can't find any link when searching. It clearly seems an informative and important...

Hi All, I have seen several references to Tracey Whitty and Folly Lane, but can'...

Myoldcat

•6 months ago

3 Replies

Teva/Actavis Hydroxo US Shortage

Hello, this is the latest update that I can find on the Actavis hydroxo shortage in the US: Teva has hydroxocobalamin 1,000 mcg/mL solution for intramuscular...

Hello, this is the latest update that I can find on the Actavis hydroxo shortage...

mcg-woo

•6 months ago

19 Replies

ESR results 44 (inflammation markers)

hello everyone I wasn’t feeling well this week and I went and had some lab work done. Turns out my ESR results are 44 when they should be under 30 and my BASO...

hello everyone I wasn’t feeling well this week and I went and had some lab work...

Reembow

•6 months ago

5 Replies

Arnika Apotheke, anyone UK having trouble ordering?

I have been on the website and it is asking me to register as a professional. I know they have changed over their systems and it is causing delays. I want to...

I have been on the website and it is asking me to register as a professional. I...

Katherine1234

•6 months ago

Be the first to reply

B12 Deficiency and being a Night Owl

Does anyone else here with B12 deficiency prefer to stay up late and sleep late? I am reading about circadian rhythms and all the experts seem to be convinced...

Does anyone else here with B12 deficiency prefer to stay up late and sleep late?...

GracePV

•6 months ago

20 Replies

Albeit we have had similar posts by Julian Owen some might find this of interest.

If only all our Gps / consultants had the same understanding of the condition I feel the number of people on this site would rapidly fall. I do hope the new...

If only all our Gps / consultants had the same understanding of the condition I ...

Jillymo

•6 months ago

19 Replies

B12 Specialist in the South East/London

In 2009 I was suffering from tingling in my feet, legs, hand and arms. The GP ordered several tests and all were normal. A friend who runs a health and...

In 2009 I was suffering from tingling in my feet, legs, hand and arms. The GP o...

JERandall

•6 months ago

8 Replies

high levels

I did have very low levels of b12 under 100. i now hear injections every 3 months. And my levels are around 800 Is this normal?

I did have very low levels of b12 under 100. i now hear injections every 3 mont...

Hidden

•6 months ago

8 Replies

Problems with stiff joints

Hello everyone! I hope your Christmas was a happy and healthy one, I know sadly it will not be the case for everyone, But! With a New Year ahead of us,...

Hello everyone! I hope your Christmas was a happy and healthy one, I know sadly ...

brenanddave

•6 months ago

18 Replies

elevated MCHC GP unconcerned

I’m sure she’s right but I was told via text with no opportunity to reply or discuss so wondering if anyone here can shed any extra light. I’m 8 months...

I’m sure she’s right but I was told via text with no opportunity to reply or dis...

Roo32

•6 months ago

3 Replies

Anywhere to quickly obtain hydroxocobalamin please

I awaiting a methyl order that’s going to take an age but I want to get my husband started soon so happy to use hydroxo whilst waiting for methyl. Would be...

I awaiting a methyl order that’s going to take an age but I want to get my husba...

Noelnoel

•6 months ago

6 Replies

Multi vial hack

If you draw back the syringe to the amount you are going to draw and pressurize the vial it is a bit easier to make the draw. This has the effect of...

If you draw back the syringe to the amount you are going to draw and pressurize ...

WIZARD6787

•6 months ago

Be the first to reply

Lesson Learnt - back to 4 a day

Hi guys Happy New Year! Pre Christmas I was injecting 4 x 1500ug every 4 hours and doing well with virtually no symptoms other than painful hands and I had a...

Hi guys Happy New Year! Pre Christmas I was injecting 4 x 1500ug every 4 hours...

Wwwdot

•6 months ago

15 Replies

I found this helpful.

https://my.clevelandclinic.org/health/diseases/22722-malabsorption Absorption issues exist. The term is often used as a general explanation without a specific...

https://my.clevelandclinic.org/health/diseases/22722-malabsorption Absorption i...

WIZARD6787

•6 months ago

29 Replies

Functional B12 diagnosis query

Hi, Can anyone advise me what kind of specialist is needed in the UK to diagnose Functional B12 deficiency? My GP practice doesn’t seem to know. After a...

Hi, Can anyone advise me what kind of specialist is needed in the UK to diagnos...

Zmalp

•6 months ago

24 Replies

Goldpharma not letting me buy B12

Hi Everyone. I have had problems with B12 deficiency and have regularly self-injected for years. I always get my B12 from Goldpharma and it has never been a...

Hi Everyone. I have had problems with B12 deficiency and have regularly self-inj...

Hayley31

•6 months ago

4 Replies

Crying

I am crying as I post this. I am blown away by all your responses to the childhood post. I had an idea that I'd have some responses to the post, but not as...

I am crying as I post this. I am blown away by all your responses to the childho...

MrJustatip

•6 months ago

23 Replies

Daughters repeat bloods , off to Rapid Access this afternoon.

Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continues-daughters-bloods so at surgery this am, 5th jab, asked for latest bloods...

Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continu...

Polo22

•6 months ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2024

Hypothesis XIII

”Reduced b12” - panicking

I am new here - concerned about recent B12 blood test

high active B12

stomach acid

Supplement Help Please

Levothyroxine and B12 possible interactions

Money saving

Nerves

advice please

What is supplies run out?

Vitamin B12 produced by gut bacteria modulates cholinergic signalling

Tracey Whitty...

Teva/Actavis Hydroxo US Shortage

ESR results 44 (inflammation markers)

Arnika Apotheke, anyone UK having trouble ordering?

B12 Deficiency and being a Night Owl

Albeit we have had similar posts by Julian Owen some might find this of interest.

B12 Specialist in the South East/London

high levels

Problems with stiff joints

elevated MCHC GP unconcerned

Anywhere to quickly obtain hydroxocobalamin please

Multi vial hack

Lesson Learnt - back to 4 a day

I found this helpful.

Functional B12 diagnosis query

Goldpharma not letting me buy B12

Crying

Daughters repeat bloods , off to Rapid Access this afternoon.

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