Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for July 2022

B12 Patches

The forum has been a true blessing! More information than my GP! My question: Has anyone tried B12 Patches, instead of B12, injections with any success? I...

The forum has been a true blessing! More information than my GP! My question: ...

RisingOne

•2 years ago

11 Replies

do you use the entire ampule

I just got my first B12 ampules and when I drew up what I normally do there was still 2/3 of a bottle left. Do you guys use the entire ampule everyday? My...

I just got my first B12 ampules and when I drew up what I normally do there wa...

EllaNore

•2 years ago

36 Replies

No evidence found that depression is linked to chemical imbalance

Scientists at UCL have discovered that low serotonin levels are not the cause of depression. And therefore a 'chemical imbalance' can no longer be blamed on...

Scientists at UCL have discovered that low serotonin levels are not the cause of...

Pickle500

•2 years ago

29 Replies

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Storage of ampoules in hot weather

I use Hevert hydroxo 2ml and like many of you have been worried about storage during the last few days. I read the packet info sheet (and checked their...

I use Hevert hydroxo 2ml and like many of you have been worried about storage du...

MorningMist

•2 years ago

11 Replies

Hydroxocobalamin Ampoule and heat damage ??

Given our recent 'heat wave' in the UK it started me thinking... Is it possible to tell if the content of an ampoule of hydroxocobalamin has suffered damage...

Given our recent 'heat wave' in the UK it started me thinking... Is it possible ...

MartynLewis

•2 years ago

18 Replies

Don't trust everything you read on the internet

Just sharing the NHS website on B12 and folate deficiency anaemia, which reads as per the below. What this says to me is that there is a distinct difference...

Just sharing the NHS website on B12 and folate deficiency anaemia, which reads a...

Pickle500

•2 years ago

5 Replies

Normal IF test results

My blood tests came back normal - intrinsic factor normal,B12 levels normal. Private neuro recommended IM injections six years ago, again in November last...

My blood tests came back normal - intrinsic factor normal,B12 levels normal. P...

MyrtleMac

•2 years ago

21 Replies

severe Pain

Hi All,I’m new on this page so please bear with me. My GP after a blood test recommended I take Ferrous Sulfate 200mg per day. Well I suffer chronic...

Hi All,I’m new on this page so please bear with me. My GP after a blood test ...

Breathless1943

•2 years ago

20 Replies

Why am I still getting more and more neurological symptoms despite treatment?

hi everyone.. hope every one is enjoying the sun.. I’m after your expert advice again guys !! Why is it that even though I’m having injections every 2 months...

hi everyone.. hope every one is enjoying the sun.. I’m after your expert advice ...

Lowblow

•2 years ago

32 Replies

B12 injections

My 24 year old daughter have been getting B12 injections for 3 years and feels so much better. She was also low in Folate. She has gone gluten free but can’t...

My 24 year old daughter have been getting B12 injections for 3 years and feels s...

JP57

•2 years ago

17 Replies

Where can I get getethylcobalamin

I am from Ebonyi State of Nigeria. I have been trying to get methylcobalamin to treat my b12 deficiency but haven't seen it around. Cyanocobalamin...

I am from Ebonyi State of Nigeria. I have been trying to get methylcobalam...

Agala

•2 years ago

2 Replies

Parasites and B12

The more I research, the more I believe parasites can be a big cause for B12 deficiency. Most doctors never consider this. If they do, they might run the 3 day...

The more I research, the more I believe parasites can be a big cause for B12 def...

AGG7

•2 years ago

11 Replies

Betaine HCl (hydrochloric acid) for autoimmune atrophic gastritis low acid pain (have PA as well)

Happy Sunday to you... I was wondering if any of you use or have used Betaine HCl (with pepsin) for low acid stomach pain and discomfort. I have tried all the...

Happy Sunday to you... I was wondering if any of you use or have used Betaine HC...

Hidden

•2 years ago

28 Replies

Where can I find the most reliable Private B12 test?

When I first discovered I was B12 deficient, I wasn’t quite low enough to be prescribed on the NHS, so I self medicated for a few years. I’ve not used B12 for...

When I first discovered I was B12 deficient, I wasn’t quite low enough to be pre...

knackersyard

•2 years ago

15 Replies

Sleep and B12

Thought I would pose this question. Does anyone else find that the evening after they inject B12 they sleep better? I have a terrible time sleeping. I will...

Thought I would pose this question. Does anyone else find that the evening afte...

Rexz

•2 years ago

17 Replies

PUT YOUR B12 AMPOULES ON THE TOP SHELF OF YOUR FRIDGE PLEASE, DURING THIS HOT SPELL .

This will keep them potent .

wedgewood

•2 years ago

19 Replies

First B12 and feeling worse

I've had my first B12 injection and feel more tired, restless sleeping and definitely irritable. Just to add to the mix I have Hashis. But this doesn't feel...

I've had my first B12 injection and feel more tired, restless sleeping and defi...

RexandBoone

•2 years ago

17 Replies

Burning Mouth Syndrome

I just realized this is my top symptom now. My mouth is dry all the time and my upper palate feels like a pizza burn. I inject once a week. Do you think if I...

I just realized this is my top symptom now. My mouth is dry all the time and my ...

Haveitall

•2 years ago

9 Replies

Even Microbes need B12

I ran across this report and found it interesting although it won't solve any of our issues I thought I'd share anyway. Microbes in soil not only manufacture...

I ran across this report and found it interesting although it won't solve any of...

Rexz

•2 years ago

21 Replies

An understanding GP

Exactly what the title says.....I have one of those!!!!! Following nearly two years of injections at three monthly intervals I have been noticing that for a...

Exactly what the title says.....I have one of those!!!!! Following nearly two...

firee

•2 years ago

13 Replies

Positive Intrinsic Factor

It's obvious to me now i have pernicious anemia. I went round and round with the conventional tests but the symptoms and the positive IF are enough for me....

It's obvious to me now i have pernicious anemia. I went round and round with th...

Ecf123

•2 years ago

28 Replies

LARGER AMPOULES

Hello The latest B12 ampoules that arrived from Germany are larger than the ones I usually receive. Not all the liquid will fit into the syringe/ needle...

Hello The latest B12 ampoules that arrived from Germany are larger than the ...

dollcat

•2 years ago

4 Replies

Newsletter from Holland and Barrett

Today’s copy of the regular newsletter I receive by email from H&B is entitled De-mist-ifying the causes of brain fog and is all about B12. Much of the info...

Today’s copy of the regular newsletter I receive by email from H&B is entitled D...

Little-My

•2 years ago

10 Replies

Heat wave & b12/vitamins/meds

Just a reminder that in the upcoming UK/Europe heat wave, you might want to refridgerate your b12, folic acid, b complex, and any sensitive meds. For pills,...

Just a reminder that in the upcoming UK/Europe heat wave, you might want to ref...

jade_s

•2 years ago

4 Replies

ferrous sulphate giving me terrible stomach cramps

I'm really struggling with stomach cramps from ferrous sulphate.. my gp originally had me on 200g 3 times per day... when my level rose from 17 to 60 he...

I'm really struggling with stomach cramps from ferrous sulphate.. my gp origina...

Lincsangel1

•2 years ago

4 Replies

symptoms returning

I started 1,000mg twice weekly injections six weeks ago. I had a resurge of all B12 deficiency symptoms in first 10 days and then they all subsided. However...

I started 1,000mg twice weekly injections six weeks ago. I had a resurge of all...

Hidden

•2 years ago

10 Replies

Info request

Hi, I have a couple of questions that would help with managing my father's PA and thought there might be someone out there that has relevant experience. We are...

Hi, I have a couple of questions that would help with managing my father's PA an...

Infohungry

•2 years ago

7 Replies

C*vid Preparations

hello all! with the surge in cases in our area (I’m in the US), I want to be sure I know what to do in the event that I test positive. Do you recommend...

hello all! with the surge in cases in our area (I’m in the US), I want to be su...

lambuth_eagle

•2 years ago

9 Replies

Buying Vit B12 injections

Can anyone advise me on where to buy b12 injections from. please?

cheriton22

•2 years ago

33 Replies

Feel Sedated

Hi there, I always feel like I am sedated. I am currently on 1 per week cyano injections. I have been on varying frequencies - every 2 weeks and up to...

Hi there, I always feel like I am sedated. I am currently on 1 per week cya...

KittyKitten

•2 years ago

12 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2022

B12 Patches

do you use the entire ampule

No evidence found that depression is linked to chemical imbalance

Storage of ampoules in hot weather

Hydroxocobalamin Ampoule and heat damage ??

Don't trust everything you read on the internet

Normal IF test results

severe Pain

Why am I still getting more and more neurological symptoms despite treatment?

B12 injections

Where can I get getethylcobalamin

Parasites and B12

Betaine HCl (hydrochloric acid) for autoimmune atrophic gastritis low acid pain (have PA as well)

Where can I find the most reliable Private B12 test?

Sleep and B12

PUT YOUR B12 AMPOULES ON THE TOP SHELF OF YOUR FRIDGE PLEASE, DURING THIS HOT SPELL .

First B12 and feeling worse

Burning Mouth Syndrome

Even Microbes need B12

An understanding GP

Positive Intrinsic Factor

LARGER AMPOULES

Newsletter from Holland and Barrett

Heat wave & b12/vitamins/meds

ferrous sulphate giving me terrible stomach cramps

symptoms returning

Info request

C*vid Preparations

Buying Vit B12 injections

Feel Sedated

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2022

B12 Patches

﻿ do you use the entire ampule

No evidence found that depression is linked to chemical imbalance

Storage of ampoules in hot weather

Hydroxocobalamin Ampoule and heat damage ??

Don't trust everything you read on the internet

﻿Normal IF test results

severe Pain

Why am I still getting more and more neurological symptoms despite treatment?

B12 injections

﻿Where can I get getethylcobalamin

Parasites and B12

Betaine HCl (hydrochloric acid) for autoimmune atrophic gastritis low acid pain (have PA as well)

Where can I find the most reliable Private B12 test?

Sleep and B12

PUT YOUR B12 AMPOULES ON THE TOP SHELF OF YOUR FRIDGE PLEASE, DURING THIS HOT SPELL .

﻿First B12 and feeling worse

Burning Mouth Syndrome

Even Microbes need B12

An understanding GP

Positive Intrinsic Factor

﻿LARGER AMPOULES

Newsletter from Holland and Barrett

﻿Heat wave & b12/vitamins/meds

﻿ferrous sulphate giving me terrible stomach cramps

symptoms returning

Info request

C*vid Preparations

Buying Vit B12 injections

﻿Feel Sedated

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive

do you use the entire ampule

Normal IF test results

Where can I get getethylcobalamin

First B12 and feeling worse

LARGER AMPOULES

Heat wave & b12/vitamins/meds

ferrous sulphate giving me terrible stomach cramps

Feel Sedated