symptoms returning : I started 1,000mg... - Pernicious Anaemi...

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symptoms returning

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I started 1,000mg twice weekly injections six weeks ago. I had a resurge of all B12 deficiency symptoms in first 10 days and then they all subsided. However in last few days the burning throbbing sensations in my feet have returned ☹️ And this morning I woke with a headache.

Can anyone please let me know what this return of symptoms indicates? Could it be that other nerve groupings are being healed or is this wishful thinking

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10 Replies
Pickle500 profile image
Pickle500

Sorry to hear this.

It's common for symptoms to initially improve following treatment before receding and settling back in for the long haul. Very few people will bounce back straight away from B12, but they may get an initial rush of improvements and an associated 'high' before things start to reappear. For most people, it's basically a waiting game.

So if you've had loading doses and you're doing ongoing injections it will basically be a wait of a few months to see them slowly fade away. And it is a slow fade.

Keep going with the injections and don't give up on them!

in reply to Pickle500

Many thanks. This makes lots of sense. And sure after decades of trying to find healthy solutions to my health issues, a few more months isn’t going to rock the boat.

Pickle500 profile image
Pickle500 in reply to

How about your co-factors? Did you have any folate, Vit D, iron (ferritin) or other B vitamins show up on your blood tests as deficient?

If you're not already, I'd recommend taking a multivitamin that includes folate 400mch plus all the B vits.

in reply to Pickle500

Yes I asked my Dutch doctor about this (actually from a previous comment you made) and she told me to wait a few more months until my B12 levels have increased and then we’ll review the other factors. That supplementing with these vitamins at this stage could interfere with the B12 absorption. She’ll then send me a link to buy B vitamins in “active” form (whatever that is). Many thanks for all your help

🙏🙏🙏

Pickle500 profile image
Pickle500 in reply to

Sounds like you're in great hands!

Cherylclaire profile image
CherylclaireForum Support in reply to Pickle500

Yes - impressive !Very hot days seem to make my stiff feet and pins and needles/numbness in legs worse - anyone else finding that ?

Stay cool, people !

Nackapan profile image
Nackapan in reply to Cherylclaire

I'm finding everything aches more in the high temperatures.

Also for some reason tinnitus worse.

Or maybe tuning with the fan??

I think when your body is dealing with anything else b12 def. symptoms are magnified .

Maybe eve needing more b12??

As body working harder.?

Keep cool . Keep still as much as possible

Nackapan profile image
Nackapan in reply to

That's interesting. Wait snd watch approach.

Nackapan profile image
Nackapan

Just keep going.I got slot worse before improvements started .

Like rebooting

Csn be painful as nerves wake up.

I had my first ever migraines and tinnitus started after treatment started

in reply to Nackapan

Thanks for this. It’s SO much easier to endure pain & discomfort when I know it’s actually a healing process. I really like your comment about nerves waking up. It makes sense. Wow I shudder to think what damage could have happened had I not found my way to my Dutch hormone doctor!! I wasn’t even aware I had a B12 deficiency

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