Burning Mouth Syndrome

[Haveitall]

I just realized this is my top symptom now. My mouth is dry all the time and my upper palate feels like a pizza burn. I inject once a week. Do you think if I go back to daily, it will reverse or is it permanent?

[wedgewood]

There’s no way of knowing . So yes , go back to daily and see if that works . You can do no harm if you inject daily for years ! Don’t forget that a daily modest 400 mcg of folic acid is recommended.

[wedgewood]

Try chewing gum . Might relieve those symptoms .

[Haveitall in reply to wedgewood]

I chew gum all day but it doesn’t help.

[Nackapan]

I had a very dry mouth with covud. I got oral thrush. I used half top bicarbonate of sods in warm water rinsing my mouth x few times s day .

Also live yoghurt rate seemed to soothe .

I dud get s anti fungal syrup prescribed.

I know yourd isn't thrush but may help a dry mouth

[Cherylclaire Forum Support]

I am seeing oral medicine consultants for this (and originally for angular cheilitis).

Firstly, they tried to grow cultures expecting candida or streptococcus. Nothing.

The angular cheilitis was healed by using lanolin nipple cream on the area- once in the morning, once in the evening every day. Even now if I stop for a day or two. it returns.

The burning tongue is still there, most of the time. Tongue swells, so becomes pie-crust edged where pressing against teeth, and burns red down the sides, while being white-coated on surface. When I first showed the second consultant, he said "looks like a vitamin deficiency" - but has not managed to find one in blood tests.

I self inject B12 every three days, and take a daily multi-vitamin supplement at about the same frequency as folate and ferritin can be a bit erratic. So should not have any symptoms indicating a vitamin deficiency.

He now says "I don't know what you think is wrong with your tongue. It looks normal to me."

Maybe he's been in the job too long ? Still, he told me to return in four months, so if he's not giving up, neither am I. Anyone could be the one to find an answer.

The saliva gland team (monitoring saliva duct strictures) suggested drinking more- so I did. It made no difference. Two and a half litres per day difficult to maintain !

Tongue, by the way, is not either particularly dry or cracked on surface.

I'm not going to be the one to say "ongoing B12 deficiency symptom"!

So I'm no longer expecting miracles in that area. But using the angular cheilitis treatment was the first time I had been rid of sore, split and bleeding skin at the corner of my mouth for well over a decade. Happy about that.

It could be a B12 deficiency symptom that won't go - or a fungal infection that you can't shake off because of B12 deficiency. So worth trying to see if B12 increase helps as suggested by wedgewood in case of the former but maybe also try Nackapan 's first - in case of the latter.

[Haveitall in reply to Cherylclaire]

My tongue doesn’t burn and I don’t have any cuts. My upper palate is dry and it feels like a pizza burn. I also don’t have candida or thrush.

[Pickle500]

I get that pizza burn thing quite often. Early on in the deficiency I had a dry mouth all the time.

Doctors said it was stress. They would, wouldn't they?

It comes and goes. See if it goes in a week. Avoid too many hot beverages, carbonate drinks, alcohol, caffeine. It is the summer time so keep hydrated.

Check your food intake too and avoid too many acidic things. Keep it clean and simple.

[Haveitall]

Thank you. This will be my third day of going back to daily injections so I’m hoping within a week it will get better.

[Cherylclaire Forum Support in reply to Haveitall]

Hope so too.Let us know.