Hi
After my last B12 injection over a month ago I noticed my legs had a burning sensation in the lower legs below the knees and the feet.
Does anyone know why this could happen? I had the burning sensation in my lower legs and feet on and off before the injection however I noticed it felt stronger after the B12. Wasn’t sure if it was a coincidence. My Gp is currently investigating the burning sensation and refer me to Neurology.
Hopefully it's the healing process .Waking up nerves.
Good you have been referred to a neurologist
Hi I hope so and nothing more horrible ;( it’s quite worrying. Do Neurologists actually know much about B12 I’ve heard they don’t.
A lottery I found one out if 3 took the trouble to research as needed b12 himself.
Ask as a question ,is s good way to go .
I've personally found alot of 'closed ' minds and arrogance.
Seen many more with my daughter for her.
Feeling at times counselling skills needed to get the best out of an appointment.
Shouldn't be hard work.
The good thing is many things can be ruled out.
Scans ordered .
If a student present sometimes more thorough or explains more
I had 3 different theories
Many options if drugs
Had to pick one in the end and pay as getting so confused .
Scans were useful and reassuring with All the theories .
I was discharged after one appointment having waited 4 months with a letter stating to take me up to 50mg amytripyline daiky.
Well I couldn't tolerate 10mg.
So drugged I wouldn't have got back.
Weaned off .
My daughter did well on amytripyline for a few months.
Seemingly 5 drugs they use for first line treatment to calm the nervous system.
Try to keep them on diagnosis rather than discussing drugs to treat symptoms initially.
I stayed off everything after that trial.
Nothing was masked.
Did use painkillers that didn't linger in the body on a when needed basis.
Hope you get on okay 👍
Would a Haemotologist be more useful? As they deal with b12 more. I think the neurologist may be just to rule out more serious causes like MS but I don’t have other symptoms of MS just this leg sensation lower limbs like I’ve got a sock on and burning lower legs and burning feet. This is on and off though and isn’t constant, so could be anything the cause. I don’t want to have countless pointless MRIs via neurology if I don’t need them and also if the cause is something else, it’s all very frustrating as I’ve got other health conditions and need a break from seeing consultants appointments, scans etc. it sometimes can get too much. My last b12 injection was 5 weeks late due to staff sickness in my surgery so I am starting to think this could be related to all of this. Will discuss with my Gp seeing her next week to go over all my blood results. Thanks for your help.
I had the burning feet and lower legs, also the feeling of having on thick socks/more like plaster casts on waking up. These are nerve damage symptoms most likely caused by your b12 deficiency. You need to continue loading doses until you have no more improvement or the nerves may not fully heal if it’s left too long as has happened with me. Go to your GP or write a letter with the information you will be able to find on here about guidelines for b12 injections. If you are unable to get more frequent injections please consider self injection as most of us on this forum have had to do.
Hi thank you for your reply. This does sound similar to me, I feel like my lower limbs have a sock on them it comes and goes and the on and off burning sensation in feet and lower limbs. I’ve written to my GP today to ask her to get me more loading doses. What if she doesn’t do alternate day injections as the nice guideline state she should? I have no clue where to start in getting the stuff to inject myself, can anyone help me with this? I’d also not have a clue how frequent to inject and what was safe etc. I’d need help so I didn’t do it wrongly? I’m happy to self inject just need to know how.
If you scroll down to the bottom of the page or type into the search box you will find information on self injection. Hopefully your GP will agree to trialing more loading doses or at least weekly injections. It’s worth asking if the nurse is able to train you to inject. In the early days of my treatment they were only willing to give me an injection every two months after the initial two weeks but I was really struggling, even needing to borrow a walking frame. Eventuality they agreed to weekly injections for a while, as I was due to go on holiday I asked about doing the injection myself while I was away, she got permission from my doctor to train me how to do it. This was a big help as once they said I had to go longer between injections I ordered them from Germany after finding how to do it from the very helpful admin on here.
I had burning feet snd calve amongst other neurological vile symptoms. Fortunately in Hindsight one of thr earlier symptoms to go .
I still get lead legs or spongy feet 3cf at times but have regular b12 injections.
The longest I've ever gone id 5 weeks waiting for the 12 weekly first one.
Never agsin.
Hopefully you will recover from this particular symptom with more b12
Oh yes I’ve definitely had the spongey feeling so possibly this is a b12 issue after all. I’ve written to my Gp to ask for more loading doses not sure what she will say but I’ve quoted the nice guidelines to her for neuro symptoms. Guessing she will be aware of them already if she’s clued up. I am happy tp self inject but I’d really not have a clue how to or where to start in getting the stuff and doing it safely etc. how can I do this?
See what youf gp says.Bnf guidelines they have are clear if read!
If you look at the search
There are lots if posts on where you can buy it
Wedgewoods shopping list
Cherylclaires post with hints how to inject IM
I do sc
I couid tell you what I do .
I've managed at prrsent I have a 2 weekly prescription.of b12.
During covid I bought some as was concerned about getting it.
.
Hope your gp gives you what you need.
I always asked for a trial of extra b12 then review??
I have horrific burning and numbness in my back, arms and legs after an injection - I was told it's the nerves waking up. It really hurts and is quite frightening. I just have to hope that's the case, so interested to see what is said here...
Hi how often do you get your b12 injections?
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Burning feet at night
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Hot burning feet after B12 Injections of Cyanaco
