Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for March 2022

Testing for PA

Has anyone had all the bloodwork (IFA, parietal cell, MMA, homocysteine) and endoscopy & colonoscopy (including biopsies) that all came back fine yet still...

Has anyone had all the bloodwork (IFA, parietal cell, MMA, homocysteine) and end...

lambuth_eagle

•2 years ago

18 Replies

Hope

Had my b12 injection ten days ago 12weeks.don t feel any improvement. Fatigued still burning when I wake. Was better on eight weeks took of it.Dr day my levels...

Had my b12 injection ten days ago 12weeks.don t feel any improvement. Fatigued s...

Wllliam

•2 years ago

2 Replies

Is that normal blood pressure be higher than normal in B12 deficiency ?

My blood pressure increased soon after my severe neurologic symptoms started l. I have bad muscle weakness and numbness in arms and eyesight problems. Its...

My blood pressure increased soon after my severe neurologic symptoms started l. ...

Hamayeshguy

•2 years ago

3 Replies

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Taste in mouth

Does anyone ever taste there B12 injections after getting them?

Rebecca2845

•2 years ago

2 Replies

New to this forum!

Hi. I was diagnosed with PA about 6 years ago. I had my B12 shots at my surgery but after my initial boosters, they only gave me 1 a month (if that). So when...

Hi. I was diagnosed with PA about 6 years ago. I had my B12 shots at my surgery ...

Hidden

•2 years ago

9 Replies

Buying hydroxycobalamin

I have just tried to buy some on VersandApo , but it wouldn't let me as I don't have a German address. Can anyone tell me where I can safely buy some . Many...

I have just tried to buy some on VersandApo , but it wouldn't let me as I don't ...

Jeddah0

•2 years ago

16 Replies

H Pylori and B12 deficiency

I am aware that untreated H Pylori can cause a vitamin B12 deficiency, but was wondering by how much? (I.e. could this be the *sole* cause of my B12...

I am aware that untreated H Pylori can cause a vitamin B12 deficiency, but was w...

Edso57

•2 years ago

14 Replies

Are my symptoms consistent with B12 deficiency especially burning sensation.

Hi Hoping people can tell me if some weird symptoms I'm having are consistent with B12 deficiency. I'm in the UK London. I have started getting burning skin...

Hi Hoping people can tell me if some weird symptoms I'm having are consistent w...

AlwaysTiredxxx

•2 years ago

15 Replies

Please help me is that to common to have extreme muscle weakness in whole body?

Why my muscles extreme weakness don't get improved. Please help . Is that too common to have extreme muscle weakness. In 2020 September I have experienced...

Why my muscles extreme weakness don't get improved. Please help . Is that too co...

Hamayeshguy

•2 years ago

23 Replies

Hydroxocobalamin injections, buying online ….

Hi everyone 👋 I’ve been looking through the threads of purchasing B12 ampules online & came across vitaminb12online.com mentioned. I had a look & was about...

Hi everyone 👋 I’ve been looking through the threads of purchasing B12 ampules ...

Misty-lady

•2 years ago

6 Replies

Thank you

I just wanted to say a huge thank you to the members of this forum for sharing your experiences and expertise, you have really saved my sanity over the years...

I just wanted to say a huge thank you to the members of this forum for sharing y...

LauraJane2

•2 years ago

13 Replies

B12 testing advice

Hello everyone. I’m wondering if anyone can suggest anywhere I can get a b12 test done to check active b12. I’ve been on PPIs for over two years due to...

Hello everyone. I’m wondering if anyone can suggest anywhere I can get a b12 te...

TattysMum

•2 years ago

16 Replies

How long does it take for B12 injection to kick in?

Diagnosed with PA 5 years ago. Because of nerve damage B12 shot every 9 weeks. How long does it take for B12 shot to kick in? Practically on my knees with...

Diagnosed with PA 5 years ago. Because of nerve damage B12 shot every 9 weeks....

Booterstown

•2 years ago

16 Replies

My blood test showed 57L for B-12.After 8 weekly B-12 injections,and iron infusions, my new blood test showed 136L for B-12. Why still low?

Why B12 Levels still so low after treatement?

Lulu33029

•2 years ago

14 Replies

B12 injections and exercise.

Now that I have the energy to walk a few days a week I am curious about timing my injections with exercise. I usually inject on a Friday or Saturday morning...

Now that I have the energy to walk a few days a week I am curious about timing m...

lambuth_eagle

•2 years ago

4 Replies

Travelling to USA with B12 ampoules bought from Germany

I am planning on travelling soon to the USA for a holiday. I am currently injecting every other day with hydroxocobalamin bought online from Germany. Does...

I am planning on travelling soon to the USA for a holiday. I am currently inject...

jeremycat_

•2 years ago

5 Replies

B12 injections

Hello.. I was wondering if anyone can help me, I am currently on my second week of b12 injections.. my body is so sore with chest pains is that normal? Also I...

Hello.. I was wondering if anyone can help me, I am currently on my second week ...

Rebecca2845

•2 years ago

3 Replies

B12 Side effects

I am on my second week of B12 injections.. is it normal To have a funny taste in your mouth from the injection and your body be sore with chest pains?

I am on my second week of B12 injections.. is it normal To have a funny taste in...

Rebecca2845

•2 years ago

8 Replies

B12 Advocate

Hi, I was wondering if anyone has spoken to Tracey Witty recently for help or advocacy for PA? I have been trying to contact her because of issues with my GP...

Hi, I was wondering if anyone has spoken to Tracey Witty recently for help or ad...

RoseFlowerDew

•2 years ago

6 Replies

When nerve damage should be considered permanent?

I'm so worried with my extensive muscle weakness. After megaloblastic aneamia I started to take sublingual and slow release and injected 4 times...

I'm so worried with my extensive muscle weakness. After megaloblastic aneamia I ...

Hamayeshguy

•2 years ago

6 Replies

Fir how long muscle weakness takes to get revived?

Now about ten months I'm injecting but in last four months I started to stick a firm regime and now injecting for every other day for almost a month. But still...

Now about ten months I'm injecting but in last four months I started to stick a ...

Hamayeshguy

•2 years ago

5 Replies

Weather & Neuropathy

Hi fellow PA/B12d friends! I have been doing weekly injections since October and will most likely be doing them twice a week as soon as I see my neurologist....

Hi fellow PA/B12d friends! I have been doing weekly injections since October an...

lambuth_eagle

•2 years ago

5 Replies

Gp 4th update

The Gp asked advice of a neurologist I've never met as concerned about frequency of my b12 On prescription i have b12 injections 2 weekly. I've noticed on...

The Gp asked advice of a neurologist I've never met as concerned about frequency...

Nackapan

•2 years ago

10 Replies

Pernicious anaemia

Morning from England everyone. I hope everyone is keeping safe and as well as can be expected. Just a query please. After being diagnosed with pernicious...

Morning from England everyone. I hope everyone is keeping safe and as well as ca...

Hedgehogs15

•2 years ago

3 Replies

Logged out

The last two nights I've been logged out? Is this happening to everyone?

Nackapan

•2 years ago

9 Replies

Confused about UK testing...

Can anyone tell my why they dont use this halo tc test in the UK? In 2015 NICE identified it as being a more effective test as it distinguishes between active...

Can anyone tell my why they dont use this halo tc test in the UK? In 2015 NICE i...

Luac

•2 years ago

8 Replies

IM versus Sub-cutaneous for hydroxy

Hi! My new doctor seemed very concerned that I am injecting hydroxycobalamin sub-cutaneously. She insisted hydroxy should always be given IM though she didn’t...

Hi! My new doctor seemed very concerned that I am injecting hydroxycobalamin sub...

EiCa

•2 years ago

7 Replies

B12 stopping injections

Hi I have been on b12 8 weekly injections since 2016 My symptoms were really bad and I couldn’t work or do day to day activities Now my levels are...

Hi I have been on b12 8 weekly injections since 2016 My symptoms were really bad...

Sophielala

•2 years ago

20 Replies

Yet Another Condition Caused by B12 Deficiency

I saw this online and thought I'd share https://www.therabreath.com/articles/the-science-of-bad-breath/bad-breath-causes-include-vitamin-deficiencies/

I saw this online and thought I'd share https://www.therabreath.com/articles/the...

MoKayD

•2 years ago

3 Replies

Is a B12 level of 341 ok?

Hi, Just wondering what your thoughts are on a B12 level of 341. This was my husband's result, and GP says absolutely normal, no need to supplement with B12....

Hi, Just wondering what your thoughts are on a B12 level of 341. This was my hus...

Chasing-rainbows

•2 years ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2022

Testing for PA

Hope

Is that normal blood pressure be higher than normal in B12 deficiency ?

Taste in mouth

New to this forum!

Buying hydroxycobalamin

H Pylori and B12 deficiency

Are my symptoms consistent with B12 deficiency especially burning sensation.

Please help me is that to common to have extreme muscle weakness in whole body?

Hydroxocobalamin injections, buying online ….

Thank you

B12 testing advice

How long does it take for B12 injection to kick in?

My blood test showed 57L for B-12.After 8 weekly B-12 injections,and iron infusions, my new blood test showed 136L for B-12. Why still low?

B12 injections and exercise.

Travelling to USA with B12 ampoules bought from Germany

B12 injections

B12 Side effects

B12 Advocate

When nerve damage should be considered permanent?

Fir how long muscle weakness takes to get revived?

Weather & Neuropathy

Gp 4th update

Pernicious anaemia

Logged out

Confused about UK testing...

IM versus Sub-cutaneous for hydroxy

B12 stopping injections

Yet Another Condition Caused by B12 Deficiency

Is a B12 level of 341 ok?

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